Bridging Gaps in the ELSI of Data Science Health Research in Nigeria (BridgELSI)

缩小尼日利亚数据科学健康研究 ELSI 的差距 (BridgELSI)

• 批准号: 10308577
• 负责人: Clement Adebayo Adebamowo
• 金额: $ 40万
• 依托单位: CENTER FOR BIOETHICS AND RESEARCH, NIGERIA
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-09-20 至 2026-07-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10308577
• 关键词: Address; Africa; Africa South of the Sahara; African; Artificial Intelligence; Bioethics; Bioethics Consultants; Cellular Phone; Committee Members; Computers; Conflict of Interest; Country; Data; Data Science; Data Scientist; Developed Countries; Development; Environment; Ethicists; Ethics; Ethics Committees; Guidelines; Health; Health Care Research; Health Knowledge, Attitudes, Practice; Health Sciences; Healthcare; Human; Human Activities; Informed Consent; Infrastructure; Institution; Intervention; Interview; Knowledge; Lawyers; Lead; Legal; Machine Learning; Maryland; Mentors; Methods; Modeling; Modernization; Nigeria; Nigerian; Outcome; Participant; Play; Policies; Policy Maker; Public Health; Research; Research Ethics; Research Ethics Committees; Research Methodology; Research Personnel; Research Project Grants; Resources; Review Committee; Role; Site; Speed; Surveys; Talents; Technology; Training; Training Programs; United States National Institutes of Health; Universities; Washington; Work; clinical care; computerized tools; data framework; design; ethical legal social implication; health science research; improved; innovation; instrument; low and middle-income countries; medical schools; member; novel; novel strategies; participant safety; programs; prospective; rapid growth; responsible research conduct; scale up; technology development; tool; training project

Bridging Gaps in the ELSI of Data Science Health Research in Nigeria (BridgELSI) Project Summary Data science is poised to impact scientific research, innovation, discovery and healthcare in sub-Saharan Africa (SSA) because of the rapid growth of infrastructure such as cell phones and computers, and the availability of technologies like Artificial Intelligence. These methods and resources present huge opportunities to leapfrog current research, public health and clinical care in Africa by utilizing data science to address the huge burden of communicable and non-communicable diseases in SSA. Despite these promises however, there are substantial concerns about the ethical, legal and social implications (ELSI) of data science research in SSA. These concerns arise from the use of conventional and unconventional data; the methods for generating, manipulating, storing, sharing and utilizing data in data science; the limitations of current informed consent models in these scenarios and opportunities for novel strategies for legal oversight of the ELSI of data science research in Nigeria. In this collaborative project between the Center for Bioethics and Research (CBR), Nigeria, George Washington University, DC and University of Maryland School of Medicine (UMSOM), we will evaluate current legal instruments, guidelines and frameworks, and their implementation, and use these to develop new and innovative governance frameworks to support data science health research in Nigeria. We will also implement mixed research methods to prospectively evaluate the knowledge, attitude and practices (KAP) of data scientists and ethics committees to current and emerging ELSI of data science research in Nigeria. Given the novelty of data science in Nigeria, we will implement general and specific, short and medium-term training in ethics of data science research in Nigeria for data science researchers and an introduction to data science for members of ethics committees reviewing data science research projects.

尼日利亚数据科学健康研究ELSI中的桥接差距（Bridgelsi） 项目摘要 数据科学有望影响撒哈拉以南非洲的科学研究，创新，发现和医疗保健 （SSA）由于基础设施（例如手机和计算机）的迅速增长以及可用性 像人工智能这样的技术。这些方法和资源提供了巨大的跨越机会 非洲目前的研究，公共卫生和临床护理，利用数据科学来解决 SSA中的传染性和非传染性疾病。 尽管有这些承诺，但人们对道德，法律和社会含义仍存在实质性关注 SSA数据科学研究的（ELSI）。这些担忧是由于常规和非常规的使用而引起的 数据;在数据科学中生成，操纵，存储，共享和使用数据的方法；限制 在这些情况下，当前知情同意模型以及新的策略的机会进行法律监督 尼日利亚数据科学研究的ELSI。 在尼日利亚生物伦理学与研究中心（CBR）之间的合作项目中，乔治·华盛顿 大学，华盛顿大学和马里兰大学医学院（UMSOM），我们将评估当前法律 工具，准则和框架及其实施，并使用这些工具，创新 支持尼日利亚数据科学健康研究的治理框架。我们还将实施混合 研究方法，以评估数据科学家的知识，态度和实践（KAP） 尼日利亚数据科学研究的当前和新兴ELSI的伦理委员会。鉴于数据的新颖性 尼日利亚的科学，我们将在数据伦理方面实施一般和特定的短期和中期培训 尼日利亚的数据科学研究人员的科学研究，以及针对成员的数据科学简介 伦理委员会审查数据科学研究项目。