SkillTalk: Communication Training around Sexual Health Topics for Parents of Youth with Autism Spectrum Disorder

摘要 Skill Talk：针对患有自闭症谱系障碍的青少年父母的性健康话题的沟通培训 患有自闭症谱系障碍(ASD)的青少年在社交和社交方面面临一系列障碍 交流环境，包括与性交流和行为有关的环境。就像他们的 神经典型同龄人，患有自闭症的青少年需要全面的性教育来学习和实践健康 性发展和性关系，并防止不良的性后果，如意外怀孕， 性传播感染、性虐待和不适当的性行为。不幸的是，许多患有自闭症的青少年 在危机发生之前，在很少或根本没有性教育的情况下从事性行为。有针对性的， 为患有自闭症的青少年提供的循证性教育资源有限，并且不在学校常规提供。 虽然专家建议所有的父母都是孩子的主要性教育者，但 患有自闭症的青少年面临着额外的、复杂的挑战。这些问题包括有关方式和时间的不确定性。 交流关于性的问题，担心引发不当行为，担心孩子的 性心理功能障碍，例如对公共和个人界限的认识有限。此外，家长 提供的性健康教育较少，主题有限，而且提供的年龄较晚 神经衰弱的年轻人。为了解决这些问题并为家长提供支持，这一第二阶段SBIR项目将 完成高度聚焦的微技能视频库的开发和评估，该视频库名为Skill Talk ASD。这个 资源将建立和支持ASD青少年的父母为他们的性教育提供所需的技能 孩子们。这个移动友好的网站和附带的移动应用程序将提供关键家长的视频建模 为患有自闭症的青少年讲授性教育的微技能，以一种引人入胜、教学合理、 并鼓励重复使用和继续使用。建成后，该网站将包括大约350个视频剪辑， 组合成技能集，在30-120秒内直观演示一项微技能。此外，资源 包括为社交/性交流提供视觉模型的青少年伙伴视频 帮助促进家长讨论的场景，并为患有自闭症的青少年提供多次观看 在这些复杂的社会情况下，重新执行适当的行为方法。正在进行中 来自ASD专家顾问团队的意见和指导，包括ASD的父母和患有ASD的青年，该项目 将1)开发内容并在25个技能集和60个制作中产生约350个微技能 连线视频；2)完整开发带有论坛和搜索/检索的Skill Talk ASD平台；3) 为家长和青少年开发移动应用程序，以私下访问Skill Talk内容，促进沟通； 以及4)对父母/孩子进行随机对照试验，以评估父母技能的改善， 知识、舒适和自信以及青少年的知识、态度和行为。

ABSTRACT SkillTalk: Communication Training around Sexual Health Topics for Parents of Youth with Autism Spectrum Disorder Adolescents with Autism Spectrum Disorder (ASD) face a range of impairments in social interaction and communication settings, including those involved with sexual communication and behavior. Like their neurotypical peers, adolescents with ASD need comprehensive sexual education to learn and practice healthy sexual development and relationships, and to prevent negative sexual outcomes such as unwanted pregnancy, STIs, sexual abuse, and inappropriate sexual behaviors. Unfortunately, many adolescents with ASD are engaging in sexual activities and behaviors with little or no sexual education until a crisis occurs. Targeted, evidence-based sexual education resources for youth with ASD are limited and not routinely offered in schools. While experts recommend that all parents serve as the primary sex educators for their children, parents of adolescents with ASD face additional, complex challenges. These include uncertainties about how and when to communicate about sex, fears of inciting inappropriate behavior, and worries about their child’s psychosexual functioning, such as limited awareness of public and personal boundaries. In addition, parents are providing less sexual health education, with limited topics, and at a later age than is provided to neurotypical youth. To address these issues and provide support to parents, this Phase II SBIR project will complete development of and evaluate a highly focused Microskills video library titled SkillTalk ASD. The resource will build and support the skills that parents of ASD youth need to offer sexual education to their children. This mobile friendly site and accompanying mobile apps will provide video modeling of critical parent Microskills for teaching sexual education to youth with ASD in a way that is engaging, instructionally sound, and encourages repeat and continued use. When complete, the site will include approximately 350 video clips, grouped into skill sets that visually demonstrate a Microskill in 30–120 seconds. In addition, the resource includes companion Making Connections youth videos offering visual modeling of social/sexual communication scenarios to help facilitate parent discussion, and to offer youth with ASD the ability to watch multiple times for re-enforcement of appropriate behavioral approaches in these complicated social situations. With ongoing input and guidance from a team of ASD expert advisors, including parents of and youth with ASD, the project will 1) develop the content for and produce approximately 350 Microskills within 25 skill sets and 60+ Making Connection videos; 2) complete development of the SkillTalk ASD platform with forums and search/retrieval; 3) develop mobile apps for parents and youth to access SkillTalk content privately and facilitate communication; and 4) conduct a randomized controlled trial with parent/child dyads to assess improvements in parent skills, knowledge, comfort and confidence and youth knowledge, attitudes, and behaviors.