SkillTalk: Communication Training around Sexual Health Topics for Parents of Youth with Autism Spectrum Disorder

SkillTalk：为患有自闭症谱系障碍的青少年父母提供围绕性健康主题的沟通培训

• 批准号: 10490874
• 负责人: REGINA FIRPO-TRIPLETT
• 金额: $ 80.56万
• 依托单位: DFUSION, INC.
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-20 至 2024-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10490874
• 关键词: Address; Adolescent; Age; Attitude; Awareness; Behavior; Behavioral; Benchmarking; Child; Clip; Communication; Companions; Complex; Development; Diagnosis; Education; Educational process of instructing; Effectiveness; Evaluation Studies; Face; Frequencies; Fright; Health Knowledge Attitudes Practice; Health education; Impairment; Instruction; Internet; Knowledge; Learning; Libraries; Link; Methods; Modeling; Nonverbal Communication; Online Systems; Outcome; Parents; Persons; Phase; Pilot Projects; Production; Psychological reinforcement; Public Health; Randomized Controlled Trials; Reporting; Research; Resources; Retrieval; Safety; Schools; Sex Behavior; Sexual Development; Sexual Health; Sexual abuse; Sexuality; Site; Small Business Innovation Research Grant; Social Interaction; Specific qualifier value; Stereotyped Behavior; Theory of Change; Time; Training; Uncertainty; Unwanted pregnancy; Visual; Youth; adolescent with autism spectrum disorder; autism spectrum disorder; autistic children; behavior change; communication behavior; design; education resources; evidence base; health communication; improved; individuals with autism spectrum disorder; innovation; interest; learning community; mobile application; nervous system disorder; online community; peer; prevent; randomized controlled study; repetitive behavior; sex; sexual relationship; sexual risk behavior; skills; skills training; social; social communication; social situation; sound; technology development; unintended pregnancy; web site

ABSTRACT SkillTalk: Communication Training around Sexual Health Topics for Parents of Youth with Autism Spectrum Disorder Adolescents with Autism Spectrum Disorder (ASD) face a range of impairments in social interaction and communication settings, including those involved with sexual communication and behavior. Like their neurotypical peers, adolescents with ASD need comprehensive sexual education to learn and practice healthy sexual development and relationships, and to prevent negative sexual outcomes such as unwanted pregnancy, STIs, sexual abuse, and inappropriate sexual behaviors. Unfortunately, many adolescents with ASD are engaging in sexual activities and behaviors with little or no sexual education until a crisis occurs. Targeted, evidence-based sexual education resources for youth with ASD are limited and not routinely offered in schools. While experts recommend that all parents serve as the primary sex educators for their children, parents of adolescents with ASD face additional, complex challenges. These include uncertainties about how and when to communicate about sex, fears of inciting inappropriate behavior, and worries about their child’s psychosexual functioning, such as limited awareness of public and personal boundaries. In addition, parents are providing less sexual health education, with limited topics, and at a later age than is provided to neurotypical youth. To address these issues and provide support to parents, this Phase II SBIR project will complete development of and evaluate a highly focused Microskills video library titled SkillTalk ASD. The resource will build and support the skills that parents of ASD youth need to offer sexual education to their children. This mobile friendly site and accompanying mobile apps will provide video modeling of critical parent Microskills for teaching sexual education to youth with ASD in a way that is engaging, instructionally sound, and encourages repeat and continued use. When complete, the site will include approximately 350 video clips, grouped into skill sets that visually demonstrate a Microskill in 30–120 seconds. In addition, the resource includes companion Making Connections youth videos offering visual modeling of social/sexual communication scenarios to help facilitate parent discussion, and to offer youth with ASD the ability to watch multiple times for re-enforcement of appropriate behavioral approaches in these complicated social situations. With ongoing input and guidance from a team of ASD expert advisors, including parents of and youth with ASD, the project will 1) develop the content for and produce approximately 350 Microskills within 25 skill sets and 60+ Making Connection videos; 2) complete development of the SkillTalk ASD platform with forums and search/retrieval; 3) develop mobile apps for parents and youth to access SkillTalk content privately and facilitate communication; and 4) conduct a randomized controlled trial with parent/child dyads to assess improvements in parent skills, knowledge, comfort and confidence and youth knowledge, attitudes, and behaviors.

抽象的 SkillTalk：为患有自闭症谱系障碍的青少年父母提供围绕性健康主题的沟通培训 患有自闭症谱系障碍 (ASD) 的青少年在社交互动和社交方面面临一系列障碍。 沟通环境，包括涉及性沟通和性行为的环境。喜欢他们的 患有自闭症谱系障碍的神经质同龄人需要全面的性教育来学习和实践健康 性发育和性关系，并防止不良性后果，例如意外怀孕， 性传播感染、性虐待和不当性行为。不幸的是，许多患有 ASD 的青少年 在危机发生之前，很少或根本没有进行性教育而进行性活动和行为。有针对性， 针对自闭症谱系障碍青少年的循证性教育资源有限，学校也没有定期提供。 虽然专家建议所有父母都是孩子的主要性教育者，但 患有自闭症谱系障碍的青少年面临着额外的、复杂的挑战。其中包括如何以及何时进行的不确定性 沟通有关性、对煽动不当行为的恐惧以及对孩子的担忧 性心理功能，例如对公共和个人界限的认识有限。另外，家长们 提供的性健康教育较少，主题有限，而且年龄较晚 神经质青年。为了解决这些问题并为家长提供支持，第二阶段 SBIR 项目将 完成开发并评估高度集中的 Microskills 视频库，名为 SkillTalk ASD。这 资源将培养和支持自闭症青少年的父母向他们的孩子提供性教育所需的技能 孩子们。这个适合移动设备的网站和随附的移动应用程序将提供关键父母的视频建模 以引人入胜、教学合理的方式向患有自闭症谱系障碍 (ASD) 的青少年教授性教育的微观技能 并鼓励重复和持续使用。完成后，该网站将包含大约 350 个视频剪辑， 分为技能组，在 30-120 秒内直观地展示微技能。此外，资源 包括同伴建立联系青少年视频，提供社交/性沟通的视觉模型 帮助促进家长讨论的场景，并为患有自闭症谱系障碍的青少年提供多次观看的能力 在这些复杂的社会情境中强化适当的行为方法。随着持续的 由 ASD 专家顾问团队（包括 ASD 患者的父母和青少年）提供的意见和指导，该项目 将 1) 为 25 个技能组和 60 多个制作中的大约 350 个微技能开发内容并产生 连接视频； 2) 完成SkillTalk ASD平台的开发，包括论坛和搜索/检索； 3） 开发移动应用程序，供家长和青少年私下访问 SkillTalk 内容并促进沟通； 4）对父母/孩子进行随机对照试验，以评估父母技能的改进， 知识、舒适度和信心以及青少年的知识、态度和行为。