SkillTalk: Communication Training around Sexual Health Topics for Parents of Youth with Autism Spectrum Disorder

SkillTalk：为患有自闭症谱系障碍的青少年父母提供围绕性健康主题的沟通培训

• 批准号: 10693234
• 负责人: REGINA FIRPO-TRIPLETT
• 金额: $ 26.54万
• 依托单位: DFUSION, INC.
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-20 至 2025-03-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10693234
• 关键词: Address; Adolescent; Age; Attitude; Awareness; Behavior; Behavioral; Benchmarking; Child; Clip; Communication; Companions; Complex; Development; Diagnosis; Education; Educational process of instructing; Effectiveness; Evaluation Studies; Face; Frequencies; Friends; Fright; Health Knowledge Attitudes Practice; Health education; Impairment; Instruction; Internet; Knowledge; Learning; Libraries; Link; Methods; Modeling; Nonverbal Communication; Online Systems; Outcome; Parents; Persons; Phase; Pilot Projects; Privatization; Production; Psychological reinforcement; Public Health; Randomized, Controlled Trials; Recommendation; Reporting; Research; Resources; Retrieval; Safety; Schools; Sex Behavior; Sexual Development; Sexual Health; Sexual abuse; Sexuality; Site; Small Business Innovation Research Grant; Social Interaction; Specific qualifier value; Stereotyped Behavior; Theory of Change; Time; Training; Uncertainty; Unwanted pregnancy; Video Recording; Visual; Youth; adolescent with autism spectrum disorder; autism spectrum disorder; autistic children; behavior change; design; education resources; evidence base; health communication; improved; individuals with autism spectrum disorder; innovation; interest; learning community; mobile application; nervous system disorder; online community; peer; prevent; randomized, controlled study; repetitive behavior; sex; sexual relationship; sexual risk behavior; skills; skills training; social; social communication; social situation; sound; technology development; unintended pregnancy; verbal; web site

ABSTRACT SkillTalk: Communication Training around Sexual Health Topics for Parents of Youth with Autism Spectrum Disorder Adolescents with Autism Spectrum Disorder (ASD) face a range of impairments in social interaction and communication settings, including those involved with sexual communication and behavior. Like their neurotypical peers, adolescents with ASD need comprehensive sexual education to learn and practice healthy sexual development and relationships, and to prevent negative sexual outcomes such as unwanted pregnancy, STIs, sexual abuse, and inappropriate sexual behaviors. Unfortunately, many adolescents with ASD are engaging in sexual activities and behaviors with little or no sexual education until a crisis occurs. Targeted, evidence-based sexual education resources for youth with ASD are limited and not routinely offered in schools. While experts recommend that all parents serve as the primary sex educators for their children, parents of adolescents with ASD face additional, complex challenges. These include uncertainties about how and when to communicate about sex, fears of inciting inappropriate behavior, and worries about their child’s psychosexual functioning, such as limited awareness of public and personal boundaries. In addition, parents are providing less sexual health education, with limited topics, and at a later age than is provided to neurotypical youth. To address these issues and provide support to parents, this Phase II SBIR project will complete development of and evaluate a highly focused Microskills video library titled SkillTalk ASD. The resource will build and support the skills that parents of ASD youth need to offer sexual education to their children. This mobile friendly site and accompanying mobile apps will provide video modeling of critical parent Microskills for teaching sexual education to youth with ASD in a way that is engaging, instructionally sound, and encourages repeat and continued use. When complete, the site will include approximately 350 video clips, grouped into skill sets that visually demonstrate a Microskill in 30–120 seconds. In addition, the resource includes companion Making Connections youth videos offering visual modeling of social/sexual communication scenarios to help facilitate parent discussion, and to offer youth with ASD the ability to watch multiple times for re-enforcement of appropriate behavioral approaches in these complicated social situations. With ongoing input and guidance from a team of ASD expert advisors, including parents of and youth with ASD, the project will 1) develop the content for and produce approximately 350 Microskills within 25 skill sets and 60+ Making Connection videos; 2) complete development of the SkillTalk ASD platform with forums and search/retrieval; 3) develop mobile apps for parents and youth to access SkillTalk content privately and facilitate communication; and 4) conduct a randomized controlled trial with parent/child dyads to assess improvements in parent skills, knowledge, comfort and confidence and youth knowledge, attitudes, and behaviors.

摘要 SkillTalk：针对自闭症谱系障碍青少年父母的性健康主题沟通培训 患有自闭症谱系障碍（ASD）的青少年在社会交往中面临一系列障碍， 交流环境，包括涉及性交流和性行为的环境。喜欢他们的 神经典型的同龄人，ASD青少年需要全面的性教育，以学习和实践健康的 性发展和性关系，并防止不良的性结果，如意外怀孕， 性传播感染、性虐待和不适当的性行为。不幸的是，许多患有ASD的青少年 在危机发生之前，很少或根本没有性教育的性活动和行为。目标明确， 针对ASD青少年的循证性教育资源有限，学校也没有定期提供。 虽然专家建议所有的父母都应该作为孩子的主要性教育者， 患有ASD的青少年面临着额外的复杂挑战。这些问题包括如何以及何时 沟通性，害怕煽动不适当的行为，担心他们的孩子的 性心理功能，如对公共和个人界限的认识有限。此外，家长 提供的性健康教育较少，主题有限，年龄比提供给 神经质的年轻人为了解决这些问题，并为家长提供支持，这个第二阶段SBIR项目将 完成开发并评估一个名为SkillTalk ASD的高度集中的Microskills视频库。的 资源将建立和支持ASD青少年的父母为他们的孩子提供性教育所需的技能。 孩子这个移动的友好网站和附带的移动的应用程序将提供关键父视频建模 以一种吸引人的，合理的， 并鼓励重复和继续使用。完成后，该网站将包括大约350个视频剪辑， 这些技能组合可以在30-120秒内直观地演示一个微技能。此外，资源 包括同伴Making Connections青少年视频，提供社交/性交流的视觉建模 场景，以帮助促进家长讨论，并提供与ASD青少年观看多次的能力， 在这些复杂的社会情境中重新实施适当的行为方法。与正在进行的 来自ASD专家顾问团队的投入和指导，包括ASD的父母和青少年，该项目 将1）在25个技能组合和60+制作中开发内容并制作约350个微技能 连接视频; 2）完成SkillTalk ASD平台的开发，包括论坛和搜索/检索; 3） 为家长和青少年开发移动的应用程序，以私下访问SkillTalk内容并促进沟通; 和4）对父母/子女进行随机对照试验，以评估父母技能的改善， 知识、舒适和信心以及青年的知识、态度和行为。