Developing and pilot testing culturally based educational videos for Puerto Rican and African American home hospice caregivers
为波多黎各和非裔美国家庭临终关怀人员开发和试点测试基于文化的教育视频
基本信息
- 批准号:10406070
- 负责人:
- 金额:$ 18.49万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2019
- 资助国家:美国
- 起止时间:2019-09-01 至 2024-04-30
- 项目状态:已结题
- 来源:
- 关键词:AddressAfrican AmericanAnxietyAwardBehaviorBeliefCaregiver supportCaregiversCaringCommunitiesEducationEmotionalEnvironmentEthnic groupFamily CaregiverFocus GroupsGrantHealthcare SystemsHispanicsHomeHospice CareHospitalizationHourInterventionInterviewKnowledgeLanguageLatinoLeadLife Support CareLiteratureMedicalMedicareMental DepressionMethodologyMindNew YorkNurse PractitionersNursesNursing HomesNursing ServicesOutcomePalliative CareParticipantPatient CarePatient Care PlanningPatient-Focused OutcomesPatientsPersonal SatisfactionPharmaceutical PreparationsPhysiciansPlayPopulationProductionProviderPublic HealthPuerto RicanRaceReadinessResearchResearch InfrastructureResourcesRoleSavingsSelf EfficacyServicesSocial WorkSocial WorkersSpiritualityStressSymptomsTestingTimeVisitVisiting NurseWorkaggressive therapybasebeneficiarycare recipientscaregiver educationcaregivingcaregiving outcomeseducation resourcesend of lifeend of life careevidence baseexperiencefamily supporthospice environmentimprovedinsightpain symptomparent grantpatient home carephysical conditioningpost interventionpreferencerecruitskillssymptom managementtailored messagingtelehealthtool
项目摘要
PROJECT SUMMARY
Overview: The proposal aims to develop and pilot test culturally based educational videos for Puerto Rican and
African American home hospice caregivers (CGs).
Background: Formal information and education around symptom
of
forefront
related issues is lacking for many family CGs
home hospice patients. However, discussions around understanding and managing symptoms is often at the
of the minds of hospice providers and CGs.In one study of hospice CGs, 48 out of 52 CGs (92%)
expressed concerns about patient care issues (e.g., patient pain, symptoms). In another study analyzing audio
recordings of home hospice visits, the average number of medications discussed was 4, and 67% of
interactions with CGs focused on symptom knowledge skills.
Through interviews with home hospice CGs, Dr. Phongtankuel has identified gapsin knowledge on caring
for
dying
patients.
In addition, Dr. Phongtankuel has found that lack of CG knowledge and/or support often
leads to unwanted patient outcomes, including patient hospitalization.
Despite the focus hospices place on managing symptoms to maintain patient comfort, CG still have
concerns and lack of knowledge around symptom related issues. Therefore, additional interventions are
needed to address this problem.
Research plan: The aims of the proposal are, (1) to gather input, through interviews and focus groups, from
Puerto Rican and African American family CGs to understand culturally based views and knowledge gaps
around symptom related issues in home hospice care, (2) to develop 12 video scripts, using experience based
codesign, with input from stakeholder groups (scripts will be used to produce educational videos on symptom
related issues for Puerto Rican and African American CGs) and (3) To pilot CG educational videos with Puerto
Rican (n=10) and African American (n=10) family CGs receiving home hospice care.
Environment: The study team is a preeminent group with expertise in hospice and palliative care, social work
and video production. By combining the resources and expertise from multiple groups, the proposal has the
potential to lead to advances in improving CG knowledge and education around symptom related issues at the
end of life and support the care CGs provide to the care recipient.
项目总结
概述:该提案旨在为波多黎各人和
非洲裔美国人家庭临终关怀者(CGs)。
背景:关于症状的正式信息和教育
的
最前线
许多家庭CG缺乏相关问题
家庭临终关怀病人。然而,围绕理解和管理症状的讨论通常是在
在一项关于临终关怀CG的研究中,52个CG中有48个(92%)
对患者护理问题(例如,患者疼痛、症状)表示担忧。在另一项分析音频的研究中
在家庭临终关怀访问的录音中,讨论的药物的平均数量为4种,67%的
与CGs的互动侧重于症状知识技能。
通过与家庭临终关怀CGs的访谈,Phongtankuel博士发现了护理方面的差距
为
垂死
病人。
此外,Phongtankuel博士还发现,缺乏CG知识和/或支持通常
导致不想要的病人结果,包括病人住院。
尽管临终关怀机构将重点放在管理症状以保持患者舒适度上,但CG仍然有
对症状相关问题的担忧和缺乏知识。因此,其他干预措施包括
需要解决这个问题。
研究计划:该提案的目的是:(1)通过访谈和重点小组收集意见,从
波多黎各人和非裔美国人家庭CGs了解基于文化的观点和知识差距
围绕家庭临终关怀中的症状相关问题,(2)利用经验开发12个视频脚本
联合设计,利益相关者团体的意见(脚本将用于制作关于症状的教育视频
波多黎各人和非裔美国人的相关问题)和(3)与波多黎各一起试播CG教育视频
Rican(n=10)和非裔美国人(n=10)家庭CGs接受家庭临终关怀。
环境:研究团队是一个卓越的团队,拥有临终关怀、姑息治疗和社会工作方面的专业知识
和视频制作。通过结合来自多个小组的资源和专业知识,该提案具有
有潜力在改善关于症状相关问题的CG知识和教育方面取得进展
生命的终结和CGs向护理接受者提供的护理支持。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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Veerawat Phongtankuel其他文献
Veerawat Phongtankuel的其他文献
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{{ truncateString('Veerawat Phongtankuel', 18)}}的其他基金
Developing and piloting a multi-component technology-based care intervention to address patient symptoms and caregiver burden in home hospice
开发和试点基于多组件技术的护理干预措施,以解决家庭临终关怀中的患者症状和护理人员负担
- 批准号:
10221571 - 财政年份:2019
- 资助金额:
$ 18.49万 - 项目类别:
Developing and piloting a multi-component technology-based care intervention to address patient symptoms and caregiver burden in home hospice
开发和试点基于多组件技术的护理干预措施,以解决家庭临终关怀中的患者症状和护理人员负担
- 批准号:
10001416 - 财政年份:2019
- 资助金额:
$ 18.49万 - 项目类别:
Developing and piloting a multi-component technology-based care intervention to address patient symptoms and caregiver burden in home hospice
开发和试点基于多组件技术的护理干预措施,以解决家庭临终关怀中的患者症状和护理人员负担
- 批准号:
10649446 - 财政年份:2019
- 资助金额:
$ 18.49万 - 项目类别:
Adapting and implementing the I-HoME intervention in caregivers of patients with ADRD
对 ADRD 患者的护理人员调整和实施 I-HoME 干预
- 批准号:
10713100 - 财政年份:2019
- 资助金额:
$ 18.49万 - 项目类别:
Developing and piloting a multi-component technology-based care intervention to address patient symptoms and caregiver burden in home hospice
开发和试点基于多组件技术的护理干预措施,以解决家庭临终关怀中的患者症状和护理人员负担
- 批准号:
10405004 - 财政年份:2019
- 资助金额:
$ 18.49万 - 项目类别:
"Developing and piloting a multi-component technology-based care intervention to address patient symptoms and caregiver burden in home hospice"
“开发和试点基于多组件技术的护理干预措施,以解决家庭临终关怀中的患者症状和护理人员负担”
- 批准号:
10763715 - 财政年份:2019
- 资助金额:
$ 18.49万 - 项目类别:
Developing and piloting a multi-component technology-based care intervention to address patient symptoms and caregiver burden in home hospice
开发和试点基于多组件技术的护理干预措施,以解决家庭临终关怀中的患者症状和护理人员负担
- 批准号:
9812505 - 财政年份:2019
- 资助金额:
$ 18.49万 - 项目类别:
Identifying Correlates of Symptom Burden Experienced by Home Hospice Patients and its Association with Patient and Caregiver Outcomes
确定家庭临终关怀患者所经历的症状负担的相关性及其与患者和护理人员结果的关系
- 批准号:
9326117 - 财政年份:2016
- 资助金额:
$ 18.49万 - 项目类别:
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