Adapting and implementing the I-HoME intervention in caregivers of patients with ADRD

对 ADRD 患者的护理人员调整和实施 I-HoME 干预

• 批准号: 10713100
• 负责人: Veerawat Phongtankuel
• 金额: $ 18.41万
• 依托单位: WEILL MEDICAL COLL OF CORNELL UNIV
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-09-01 至 2024-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10713100
• 关键词: Address; Affect; African American; Alzheimer' s disease caregiver; Alzheimer' s disease patient; Alzheimer' s disease related dementia; Anxiety; Assessment tool; Award; Behavioral; Cancer Patient; Caregiver Burden; Caregiver support; Caregivers; Caring; Cause of Death; Clinic; Communication; Data; Data Collection; Dementia; Diagnosis; Distress; Education; Elderly; Evidence based practice; Exhibits; Family Caregiver; Funding; Future; Home; Hospice Care; Hospitals; Intervention; Intervention Studies; Interview; Latinx; Life Expectancy; Manuals; Measures; Medicare; Mental Depression; Modeling; Nurse Practitioners; Outcome; Outpatients; Palliative Care; Patient Recruitments; Patients; Personal Satisfaction; Population; Protocols documentation; Provider; Public Health; Qualifying; Reporting; Research; Research Infrastructure; Resources; Services; Staging; Symptoms; Technology; Terminal Disease; Time; Training; United States National Institutes of Health; Visit; Work; acceptability and feasibility; advanced disease; care delivery; care outcomes; care providers; care systems; caregiver interventions; efficacy testing; end of life; end of life care; evidence base; family support; hospice environment; improved; information gathering; instrument; medical complication; non-demented; palliative; parent grant; physical conditioning; pilot test; prognostication; programs; psychosocial; satisfaction; symptom management; systematic review; testing services; tool; user centered design; video visit

PROJECT SUMMARY Overview: The proposal aims to adapt and pilot test the Improving Home hospice Management of End-of-life issues through technology (I-HoME) intervention for caregivers of ADRD patients with advanced illness. I-HoME is a caregiver-directed intervention that supplements existing care with video visits and education provided by a palliative trained nurse practitioner. Background: The number of patients with Alzheimer's Disease and Related Dementias (ADRD) who need and/or receive palliative care has increased steadily over the past few decades. Yet, research focused on developing and testing services and models to best meet the palliative care needs of ADRD patients and their caregivers remains modest. As a result, multiple organizations have called for research to improve palliative care in affected patients and their caregivers. Research plan: Aim 1 of the proposal is to adapt the I-HoME intervention for caregivers of ADRD patients with advanced illness by leveraging stakeholder input through interviews with providers (n=15) and caregivers (n=15) of ADRD patients. Using an iterative user-centered design approach, the data collected will inform adaption of the I-HoME manual, protocol, and data collection instruments to address the care needs of patients with ADRD and their caregivers. Aim 2 of the proposal is to pilot test the adapted I-HoME intervention with family caregivers (n=15) of ADRD patients with advanced illness. Data will be collected regarding intervention feasibility and acceptability. Secondary measures will consist of ADRD symptom assessment tools, caregiver burden, caregiver anxiety and depression scores, and caregiver satisfaction. The proposal has the potential to lead to advances in introducing new models of palliative care delivery to support caregivers of ADRD patients with advanced illness around symptom management and care issues.

项目摘要 概述：该提案旨在适应和试点测试改善临终关怀家庭管理 通过技术问题（I-HoME）干预晚期ADRD患者的护理人员。I-home 是一种针对儿童的干预措施，通过视频访问和教育补充现有的护理， 受过姑息治疗训练的执业护士 背景：阿尔茨海默病和相关痴呆（ADRD）患者需要和/或 接受姑息治疗的人数在过去几十年中稳步增加。然而，研究集中在开发 测试服务和模式，以最好地满足ADRD患者及其护理人员的姑息治疗需求 保持谦虚。因此，多个组织呼吁进行研究，以改善受影响的姑息治疗。 患者及其护理人员。 研究计划：该提案的目的1是使I-HoME干预适应ADRD患者的护理人员， 通过与提供者（n=15）和护理人员（n=15）的访谈，利用利益相关者的意见， ADRD患者。使用迭代的以用户为中心的设计方法，收集的数据将为适应提供信息， I-HoME手册、方案和数据收集工具，以满足ADRD患者的护理需求 和他们的照顾者。该提案的目标2是对家庭照顾者进行适应性I-HoME干预的试点测试 （n=15）晚期ADRD患者。将收集有关干预可行性的数据， 可接受性次要指标将包括ADRD症状评估工具、照顾者负担、照顾者 焦虑和抑郁评分以及照顾者满意度。 该提案有可能在引入姑息治疗提供新模式以支持方面取得进展 ADRD患者的照顾者与晚期疾病的症状管理和护理问题。