Identifying Correlates of Symptom Burden Experienced by Home Hospice Patients and its Association with Patient and Caregiver Outcomes
Identifying Correlates of Symptom Burden Experienced by Home Hospice Patients and its Association with Patient and Caregiver Outcomes
批准号:
9326117
负责人:
Veerawat Phongtankuel
金额:
$12.71万
依托单位国家:
美国
项目类别:
财政年份:
2016
资助国家:
美国
项目状态:
已结题
起止时间:
2016-08-15 至 2019-04-30
关键词:
AddressAdultAgeAgingCaregiversCaringCessation of lifeCollaborationsCommunitiesComorbidityConsensusCross-Sectional StudiesCultural DiversityDataDiagnosisDiscipline of NursingElderlyFrequenciesFutureGeriatricsGrantHome environmentHospice CareHospitalizationHourIndividualInterventionInterviewKnowledgeLifeLiteratureMeasurableMeasurementMeasuresNew YorkNew York CityNursesNursing ServicesOutcomePalliative CarePalliative MedicinePatient CarePatientsPhysiciansPlayPopulationProviderPublic HealthQualitative MethodsQuality of CareQuality of lifeResearchRiskRoleSymptomsTimeVisitVisiting NurseWorkadverse outcomeaging populationbasecaregivingconcept mappingdesignend of lifeend of life careexperiencehospice environmentimprovedinformal caregiverinsightpatient populationreduce symptomssatisfactiontheoriesurban setting
中文摘要
点击翻译按钮获取中文摘要
英文摘要
Project Summary
Hospice care plays an increasingly important role for many older adults at the End-of-Life (EoL), with 45% of
U.S. deaths being cared for under hospices (1). Symptom burden, a common issue in EoL care, is highly
prevalent, predicts poorer quality of life, and can escalate during the last days of a patient's life (2–9); however,
existing literature focused on symptom burden at the EoL has been largely descriptive (4,5,10,11). The specific
aims for this project are: (1) To identify correlates of symptom burden experienced by home hospice patients at
the EoL at the patient, caregiver, and hospice level, (2) To evaluate the relationship between symptom burden
experienced by home hospice patients at the EoL and three specific quality measures (i.e., hospitalization,
caregiver satisfaction, quality of EoL care), (3) To define “symptom crisis” in the home hospice population. The
aims of this project will be achieved through a strong academic-community agency partnership between Weill
Cornell Division of Geriatrics and Palliative Medicine and the Visiting Nurse Service of New York Hospice and
Palliative Care. A cross-sectional study will be conducted to measure symptom burden of patients receiving
home hospice care through interviews with their informal caregivers. Correlates of symptom burden will be
identified through analysis of patient, caregiver, and hospice level attributes. Associations between symptom
burden and hospitalization and quality of care outcomes will be measured. In addition, a definition of “symptom
crisis” will be achieved by employing a qualitative approach using grounded theory and concept mapping and
based on input from informal caregivers and a panel of home hospice providers. This project incorporates
information and insights from informal caregivers along with hospice and patient level data that will provide a
comprehensive understanding of symptom burden; this will set the stage for developing, implementing and
evaluating future interventions aimed at measurably reducing symptom burden and symptom crises
experienced by older adults at the EoL. This project will also be the first to use a multi-faceted approach that
incorporates perspectives from informal caregivers and hospice providers to create a definition of “symptom
crisis,” a term commonly used in home hospice care and with potential impact on quality of care. It will set a
new standard on how future research is conducted when studying “symptom crisis” in the field of hospice care.
The contribution will be significant because it is expected to propel the field of home hospice care forward by
providing a more comprehensive understanding of symptom burden and symptom crisis experienced by the
aging population on hospice at the EoL.
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批准号:9812505
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资助金额:$23.71万
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财政年份:2019
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负责人:Veerawat Phongtankuel
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依托单位:
海外基金