Pennington/Louisiana NORC - Supplement NOT-OD-21-089

彭宁顿/路易斯安那州 NORC - 补充 NOT-OD-21-089

• 批准号: 10408519
• 负责人: Eric Ravussin
• 金额: $ 22.1万
• 依托单位: LSU PENNINGTON BIOMEDICAL RESEARCH CTR
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-07-01 至 2022-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10408519
• 关键词: Administrative Supplement; American; American Heart Association; Applications Grants; Biomedical Research; Certification; Clinical Research; Clinical Trials; Collection; Communities; Country; Data; Data Collection; Department of Defense; Diabetes Mellitus; Doctor of Philosophy; Ensure; FAIR principles; Funding; Goals; Government; Grant; Infrastructure; Learning; Louisiana; Metadata; Methods; Nonprofit Organizations; Obesity; Participant; Policies; Process; Protocols documentation; Publications; Records; Research; Research Personnel; Resources; TRUST principles; Technology; Testing; United States Department of Agriculture; United States National Institutes of Health; Woman; biobank; dashboard; data de-identification; data dictionary; data management; data repository; data sharing; digital repositories; human subject; improved; interest; interoperability; nutrition; operation; programs; ranpirnase; repository; response; synergism; usability; web portal

PROJECT SUMMARY In 2018 the Pennington/Louisiana NORC (P30 DK072476-16) established a repository of human subjects' data and biospecimens of nutrition and obesity research. The repository includes data and biospecimens from 213 studies and 13,787 unique participants (68% women and 38% with obesity) funded by the National Institutes of Health, Department of Defense, United States Department of Agriculture, American Heart Association, American Diabetes Association and other government and non-profit organizations. In September 2020, an online portal was opened to allow people to independently search the cadre of available data. As we transition to increase usage, it is imperative that we align with the FAIR and TRUST principles and to ensure we can appropriately track usage, utility, and impact. We have developed a comprehensive but conservative one-year project in response to NOT-OD-21-089, to achieve these goals. The overarching objective of this administrative supplement is to improve upon the “FAIR”-ness and “TRUST”-worthiness of the Pennington/Louisiana NORC Biorepository and its online portal. In aim 1, we will improve “FAIR”-ness by adding existing data and increasing metadata and establishing metrics for tracking and usage. In aim 2, we will improve “TRUST”-worthiness by promoting and demonstrating the methods used for data collection. Finally, aim 3, will explore the possibility for certification. This unique repository provides unique data on nutrition and obesity which seeks to benefit researchers across the country for years to come.

项目总结 2018年，彭宁顿/路易斯安那州NORC(P30 DK072476-16)建立了一个人类受试者知识库。 营养与肥胖研究的数据和生物样本。该存储库包括来自 由国家统计局资助的213项研究和13,787名独特参与者(68%是女性，38%是肥胖症患者) 卫生研究所、国防部、美国农业部、美国心脏 美国糖尿病协会和其他政府和非营利组织。在9月份 2020年，开通了在线门户网站，让人们可以独立搜索可用的数据干部。因为我们 为了增加使用率，我们必须遵循公平和信任的原则，并确保 我们可以适当地跟踪使用情况、实用程序和影响。我们开发了一种全面但保守的 响应NOT-OD-21-089的一年项目，以实现这些目标。这样做的首要目标是 行政副刊是为了提高行政副刊的“公正性”和“可信度” 彭宁顿/路易斯安那州NORC生物库及其在线门户网站。在目标1中，我们将通过以下方式改善“公平” 添加现有数据和增加元数据，并建立用于跟踪和使用的指标。在目标2中，我们将 通过推广和示范用于数据收集的方法来提高“可信度”。最后， 目标3，将探索认证的可能性。这一独特的存储库提供了关于营养和 肥胖，寻求在未来几年造福于全国各地的研究人员。