Development and Evaluation of a Clinical Assessment Tool of TBI-Related Social Communication

TBI相关社交沟通临床评估工具的开发和评估

• 批准号: 10429175
• 负责人: Lindsey Jacquelyn Byom
• 金额: $ 13.33万
• 依托单位: UNIV OF NORTH CAROLINA CHAPEL HILL
• 依托单位国家: 美国
• 财政年份: 2022
• 资助国家: 美国
• 起止时间: 2022-02-10 至 2026-01-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10429175
• 关键词: Address; Adopted; Adult; Aphasia; Assessment tool; Caregivers; Clinical; Clinical Assessment Tool; Communication; Communication Tools; Communication impairment; Communities; Data; Data Reporting; Development; Diagnosis; Emergency department visit; Ensure; Evaluation; Facial Expression; Factor Analysis; Family; Family member; Goals; Health; Impairment; Individual; Injury; Inpatients; Interview; K-Series Research Career Programs; Knowledge; Language; Length; Life; Linguistics; Literature; Measurement; Measures; Mediating; Methods; Motivation; National Institute on Deafness and Other Communication Disorders; Outcome; Outcome Measure; Participant; Pathologist; Patient Outcomes Assessments; Patients; Protocols documentation; Psychometrics; Qualitative Research; Quality of life; Questionnaire Designs; Questionnaires; Rehabilitation Centers; Rehabilitation therapy; Reporting; Research; Research Methodology; Risk; Role; Sampling; Science; Social isolation; Speech; Structure; TBI Patients; Testing; Time; Training; Translating; Traumatic Brain Injury; Treatment outcome; Unemployment; United States National Institutes of Health; Validity and Reliability; Work; career development; clinical decision-making; clinical implementation; cognitive interview; cohesion; communication theory; community living; cost; design; diagnostic tool; experience; feasibility testing; implementation science; improved; negative affect; person centered; prospective; recruit; research and development; research clinical testing; response; skills; social communication; social communication impairment; stakeholder perspectives; theories; tool; tool development; treatment center; treatment effect; treatment planning

TITLE: Development and Evaluation of a Clinical Assessment Tool of TBI-Related Social Communication Adults with traumatic brain injury (TBI) are at risk for communication impairments that negatively affect return to work, family, and community roles. TBI-related social communication impairments (TBI-SCI) are characterized by ineffective, disorganized, and inappropriate verbal communication and reduced capacity to understand others’ non-literal and non-verbal messages. Despite the importance of social communication to daily life, TBI-SCI are under-diagnosed and under-treated because speech-language pathologists (SLPs) lack clinical assessment tools that are quick, reliable, valid, and inform person-centered treatment planning. The objective of the proposed K23 career development award is to address this gap by developing, refining, and evaluating patient- and caregiver-reported TBI-SCI assessment tools that meet the needs of SLPs and adults with TBI. Patient-reported outcome measures facilitate personalized rehabilitation and rigorously assess health-related outcomes and treatment effects. Guided by person-centered rehabilitation theory and existing assessment tools, we will conduct a prospective qualitative study to identify social communication skills and mediating factors that stakeholders (adults with TBI, family members, and SLPs) perceive as important to TBI- SCI rehabilitation. Findings will inform the content and structure of parallel patient- and caregiver-reported clinical assessment tools. We will refine the tools using iterative cognitive interviewing to ensure the tools capture the most important factors to TBI-SCI rehabilitation (i.e., are content valid) and are easy to comprehend. Preliminary psychometric testing will be conducted on tool responses from a diverse sample of 100 adults with TBI and 150 caregivers to evaluate tool validity and reliability. This work supports NIDCD’s strategic priority to develop and test improved diagnostic tools that will provide communication treatment targets and will inform a subsequent R01 application to conduct large-scale psychometric testing and to test the feasibility of clinical implementation. Completion of the proposed research and career development activities will equip Dr. Byom with in-depth knowledge and comprehensive training in clinical assessment tool development, including qualitative research methodology, quantitative tool evaluation, and principles of implementation science. With this training, Dr. Byom will be uniquely poised to translate her training in social communication theory, TBI-SCI, and clinical TBI communication rehabilitation to development and evaluation of clinically feasible SLP practices to support adults with TBI.

标题：TBI相关社会沟通临床评估工具的开发和评价 患有创伤性脑损伤（TBI）的成年人有可能出现对返回产生负面影响的沟通障碍 工作、家庭和社区角色。TBI相关的社会沟通障碍（TBI-SCI） 以无效的、无组织的、不适当的口头交流和降低的能力为特征的 理解他人的非文字和非语言信息。尽管社会沟通对 日常生活中，TBI-SCI的诊断和治疗不足，因为语言病理学家（SLP）缺乏 快速、可靠、有效的临床评估工具，并为以人为本的治疗计划提供信息。的 拟议的K23职业发展奖的目标是通过开发、完善和 评估患者和非患者报告的TBI-SCI评估工具，以满足SLP和成人的需求 关于TBI患者报告的结局指标促进个性化康复，并严格评估 与健康相关的结果和治疗效果。以人为本的康复理论为指导， 评估工具，我们将进行前瞻性的定性研究，以确定社会沟通技能， 利益相关者（TBI成人、家庭成员和SLP）认为对TBI重要的中介因素- SCI康复调查结果将告知平行患者和患者报告的内容和结构 临床评估工具。我们将使用迭代认知访谈来完善这些工具， 捕获TBI-SCI康复的最重要因素（即，内容是有效的），并且很容易 理解。初步的心理测试将进行工具的反应，从不同的样本， 100名TBI成人和150名护理人员评估工具的有效性和可靠性。这项工作支持NIDCD的 开发和测试改进的诊断工具的战略优先事项，这些工具将提供沟通治疗 目标，并将通知随后的R 01应用程序进行大规模的心理测试，并测试 临床实施的可行性。完成拟议的研究和职业发展 活动将使Byom博士在临床评估工具方面获得深入的知识和全面的培训 发展，包括定性研究方法，定量工具评估，以及 执行科学。通过这次培训，Byom博士将独一无二地将她的培训转化为社会 沟通理论，TBI-SCI，临床TBI沟通康复的发展和评价 临床上可行的SLP实践，以支持TBI成人。