The Potential for Music to Improve Quality of Life in Dementia Caregiving Relationships

音乐改善痴呆症护理关系生活质量的潜力

• 批准号: 10450677
• 负责人: THERESA ANNE ALLISON
• 金额: $ 17.97万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-08-01 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10450677
• 关键词: Address; Anthropology; Anxiety; Award; Behavior; Behavioral; Behavioral Symptoms; California; Caregiver Burden; Caregiver support; Caregivers; Caring; Cessation of life; Clinic; Clinical; Clinical Trials; Cognition; Communication; Communities; Computer software; Controlled Clinical Trials; Data; Dementia; Dementia caregivers; Development; Elderly; Emotional Bonds; Ensure; Evaluation; Event; Family member; Focus Groups; Funding; Goals; Group Interviews; Health Status; Home; Home visitation; Hospitalization; Institutionalization; Intervention; Interview; Knowledge; Leadership; Learning; Life; Measurement; Medical; Mental Depression; Methodology; Methods; Music; Neurologist; Nursing Homes; Participant; Patient Recruitments; Persons; Pharmaceutical Preparations; Pharmacology; Pilot Projects; Population Heterogeneity; Primary Health Care; Provider; Publishing; Qualitative Research; Quality of life; Reporting; Research; Research Design; Research Personnel; Resources; Risk; Role; Rural; San Francisco; Social Workers; Standardization; Structure; Support Groups; Testing; Time; Training; United States; Waiting Lists; Work; base; caregiver strain; caregiving; clinically significant; cost; dementia caregiving; design; effective intervention; experience; follow-up; health science research; implementation science; improved; interest; long term memory; novel; positive emotional state; preservation; programs; recruit; rural area; shared memory; side effect; skills; social attachment; socioeconomics; stressor; symposium; tool; urban area

Project Summary/Abstract 5.4 million people in the United States live with dementia and, for those who live at home, 15 million family members and other caregivers provide unpaid care. Dementia caregiving is complicated by the increasing inability of people with dementia to communicate or even recognize those who care for them. Effective interventions are needed to support caregivers in order improve quality of life and to keep people with dementia out of institutional settings like nursing homes. Medications for dementia have been largely ineffective, and the medications used to treat behavioral issues in dementia have serious side effects. Behavioral approaches have become the first-line treatments and, among them, music appears particularly promising because musical activities draw on the shared memories and emotional bonds that hold dementia caregiving relationships together. Studies to date, however, are limited by size and poor study design. Nearly all have been conducted in institutional or clinical settings. Most are not intended to support caregivers. To our knowledge, only one small pilot study has been published that was designed to support caregivers in the home, and it did not include music. No studies have been published that closely examine the daily lives of in- home dementia caregiving. In order to address this gap, we propose to: (1) to develop an in-depth understanding of dementia caregiving relationships; (2) to develop an in-depth understanding of the role of music in the daily lives of dementia caregiving dyads; and (3) use the knowledge gained to design a music- based intervention to support people with dementia and their caregivers. In order to meet these aims, we will go to the homes of people with dementia and their caregivers, complete assessments and interview them about their experiences with caregiving and with music. We will spend time in the home observing and participating in normal caregiving activities, with and without music, in order to identify core features of music that can be used to design an effective, music-based intervention to improve quality of life for people with dementia and their caregivers in their homes. The candidate will recruit a socioeconomically diverse population in Northern California by recruiting participants from 2 medical house calls programs, one of which serves both urban and rural locations. The candidate has expertise in the medical care of people with dementia and with music anthropology research. The candidate does not have formal training in health sciences research and implementation science. Through a mixture of coursework, structured tutorials, and conferences, over the course of the award period the candidate will: (1) develop expertise in implementation science and dementia research; and (2) acquire skills and experience in the design and leadership of clinical trials involving diverse populations, in order to become a leading researcher in dementia and caregiver quality of life.

项目摘要/摘要 美国有540万人患有痴呆症，对于那些住在家里的人来说，有1500万家庭 会员和其他照顾者提供无偿护理。痴呆症护理因越来越多的 痴呆症患者无法与照顾他们的人交流，甚至无法识别他们。有效 需要干预措施来支持照顾者，以提高生活质量，并使人们保持 痴呆症被排除在养老院等机构之外。治疗痴呆症的药物主要是 无效，用于治疗痴呆症行为问题的药物有严重的副作用。 行为疗法已经成为一线治疗方法，其中，音乐显得尤为突出 有希望是因为音乐活动利用了共同的记忆和情感纽带，而这些记忆和情感纽带导致了痴呆症 一起照顾他人的关系。然而，到目前为止，研究受到规模和糟糕研究设计的限制。差一点 所有这些都是在机构或临床环境中进行的。大多数都不是为了支持照顾者。致我们的 知识，只发表了一项旨在支持照顾者的小型试点研究 家，而且它不包括音乐。目前还没有发表过密切研究印度人日常生活的研究报告。 居家痴呆症护理。为了解决这一差距，我们建议：(1)开发深入的 了解痴呆症护理关系；(2)深入了解 音乐在痴呆症照顾二人组的日常生活中的应用；以及(3)利用所学知识设计一种音乐-- 以干预为基础，支持痴呆症患者及其照顾者。为了实现这些目标，我们将 走访痴呆症患者和他们的照顾者，完成评估并与他们面谈 关于他们在照顾和音乐方面的经历。我们将花时间在家里观察和 参加正常的照看活动，无论有没有音乐，以确定音乐的核心特征 这可以用来设计一种有效的、基于音乐的干预措施，以改善患有癌症的人的生活质量 痴呆症患者和他们家中的照顾者。候选人将招募不同社会经济背景的人 在北加州，通过招募2个医疗出诊项目的参与者，其中一个项目同时服务于 城市和农村地区。候选人在痴呆症患者的医疗护理方面拥有专业知识 音乐人类学研究。应聘者没有接受过健康科学研究的正式培训 实施科学。通过混合课程作业、结构化教程和会议， 在获奖期间，候选人将：(1)发展实施科学和痴呆症方面的专业知识 研究；以及(2)在设计和领导涉及不同领域的临床试验方面获得技能和经验 为了成为痴呆症和照顾者生活质量方面的领先研究人员。