COVID-19 administrative supplement to K23 "The potential for music to improve quality of life for dementia caregiving dyads"

项目摘要/摘要 2020年3月，旧金山湾区在美国实施了第一个避难所就地命令 冠状病毒病2019年(新冠肺炎)大流行。与联邦政府推荐的社交距离相结合 要求(即保持六英尺的距离，避免拥挤的空间和集体聚会)、原地避难所 对阿尔茨海默病和相关痴呆症患者以及他们的 照顾者(痴呆症看护二人组)。社交距离增加了家庭内部的压力源，并关闭了 长期服务和支持(LTSS)对于让痴呆症患者安全地呆在家里至关重要。这个 研究议程的首要目标是通过改善痴呆症护理夫妇的生活质量。 家庭社会干预，包括音乐和其他有意义的活动。这项提议的目标是 双重：了解新冠肺炎社交距离要求对社交媒体的影响和创造性应对 痴呆症护理二人组；并让LTSS专业人员参与确定干预目标 改善阿尔茨海默病和相关痴呆症患者的社会隔离和福祉 他们的照顾者。使用社区参与的研究方法，这项研究涉及痴呆症的照顾二人组 在半结构化访谈中，痴呆症严重程度的标准化评估和有效测量 照顾者负担，以确定未得到满足的需求和对社会疏远的创造性反应，包括 音乐和有意义的活动。利用并行主题分析，我们将确定可能的目标 干预。这些将被带到新冠肺炎社交距离内的LTSS专业人员那里进行检查- 服务和服务提供方面的相关变化。从这项研究中获得的知识将被用于识别 制定家庭多层次社会干预措施的目标，以减少社会孤立和改善 痴呆症护理二人组的幸福感，可以通过R21探索性或R61/R22分阶段测试 创新。目标将分发给痴呆症护理二人组，用于创造性的护理活动 以及LTSS组织，向正在进行的服务创新提供信息。

Project Summary/Abstract In March, 2020, the San Francisco Bay area imposed the first shelter-in-place orders in the U.S. during the Coronavirus Disease 2019 (COVID-19) pandemic. Combined with federally recommended social distancing requirements (i.e. remaining six feet apart, avoiding crowded spaces and group gatherings), shelter-in-place had profound, isolating impacts on people living with Alzheimer’s Disease and Related Dementias and their caregivers (dementia caregiving dyads). Social distancing increased stressors within the home and shuttered Long-Term Services and Supports (LTSS) critical to keeping people with dementia safely in their homes. The overarching goal of the research agenda is to improve quality of life for dementia caregiving dyads through in- home social interventions, including music and other meaningful activities. The objectives of this proposal are twofold: to understand the impact of COVID-19 social distancing requirements upon and creative responses of dementia caregiving dyads; and to engage LTSS professionals in identifying targets for interventions to improve social isolation and well-being for people living with Alzheimer’s Disease and Related Dementias and their caregivers. Using community-engaged research methods, this study engages dementia caregiving dyads in semi-structured interviews, standardized assessments and validated measures of dementia severity and caregiver burden in order to identify both unmet needs and creative responses to social distancing, including music and meaningful activities. Using concurrent thematic analysis, we will identify possible targets for intervention. These will be brought to LTSS professionals for examination within COVID-19 social distancing- related changes in services and service delivery. The knowledge gained from this study will be used to identify targets for the development of in-home multilevel social interventions to reduce social isolation and improve well-being for dementia caregiving dyads, that can be tested through R21 exploratory or R61/R22 phased innovation. Targets will be disseminated to dementia caregiving dyads for use in creative caregiving activities and to LTSS organizations to inform ongoing service innovations.