The Potential for Music to Improve Quality of Life in Dementia Caregiving Relationships

音乐改善痴呆症护理关系生活质量的潜力

• 批准号: 9982161
• 负责人: THERESA ANNE ALLISON
• 金额: $ 19.91万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-08-01 至 2024-05-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/9982161
• 关键词: Address; Anthropology; Anxiety; Award; Behavior; Behavioral; Behavioral Symptoms; California; Caregiver Burden; Caregiver support; Caregivers; Caring; Cessation of life; Clinic; Clinical; Clinical Trials; Cognition; Communication; Communities; Computer software; Controlled Clinical Trials; Data; Dementia; Dementia caregivers; Development; Elderly; Emotional Bonds; Ensure; Evaluation; Event; Family member; Focus Groups; Funding; Goals; Group Interviews; Health Status; Home environment; Home visitation; Hospitalization; Institutionalization; Intervention; Interview; Knowledge; Leadership; Learning; Life; Location; Measurement; Medical; Mental Depression; Methodology; Methods; Music; Neurologist; Nursing Homes; Participant; Patient Recruitments; Pharmaceutical Preparations; Pharmacology; Pilot Projects; Population Heterogeneity; Primary Health Care; Provider; Publishing; Qualitative Research; Quality of life; Reporting; Research; Research Design; Research Personnel; Resources; Risk; Role; Rural; San Francisco; Social Workers; Standardization; Structure; Support Groups; Testing; Time; Training; United States; Waiting Lists; Work; base; caregiver strain; caregiving; clinically significant; cost; dementia caregiving; design; effective intervention; experience; follow-up; health science research; implementation science; improved; interest; long term memory; novel; positive emotional state; preservation; programs; recruit; shared memory; side effect; skills; social attachment; socioeconomics; stressor; symposium; tool

Project Summary/Abstract 5.4 million people in the United States live with dementia and, for those who live at home, 15 million family members and other caregivers provide unpaid care. Dementia caregiving is complicated by the increasing inability of people with dementia to communicate or even recognize those who care for them. Effective interventions are needed to support caregivers in order improve quality of life and to keep people with dementia out of institutional settings like nursing homes. Medications for dementia have been largely ineffective, and the medications used to treat behavioral issues in dementia have serious side effects. Behavioral approaches have become the first-line treatments and, among them, music appears particularly promising because musical activities draw on the shared memories and emotional bonds that hold dementia caregiving relationships together. Studies to date, however, are limited by size and poor study design. Nearly all have been conducted in institutional or clinical settings. Most are not intended to support caregivers. To our knowledge, only one small pilot study has been published that was designed to support caregivers in the home, and it did not include music. No studies have been published that closely examine the daily lives of in- home dementia caregiving. In order to address this gap, we propose to: (1) to develop an in-depth understanding of dementia caregiving relationships; (2) to develop an in-depth understanding of the role of music in the daily lives of dementia caregiving dyads; and (3) use the knowledge gained to design a music- based intervention to support people with dementia and their caregivers. In order to meet these aims, we will go to the homes of people with dementia and their caregivers, complete assessments and interview them about their experiences with caregiving and with music. We will spend time in the home observing and participating in normal caregiving activities, with and without music, in order to identify core features of music that can be used to design an effective, music-based intervention to improve quality of life for people with dementia and their caregivers in their homes. The candidate will recruit a socioeconomically diverse population in Northern California by recruiting participants from 2 medical house calls programs, one of which serves both urban and rural locations. The candidate has expertise in the medical care of people with dementia and with music anthropology research. The candidate does not have formal training in health sciences research and implementation science. Through a mixture of coursework, structured tutorials, and conferences, over the course of the award period the candidate will: (1) develop expertise in implementation science and dementia research; and (2) acquire skills and experience in the design and leadership of clinical trials involving diverse populations, in order to become a leading researcher in dementia and caregiver quality of life.

项目总结/摘要 5.4在美国，有1000万人患有痴呆症，对于那些住在家里的人，有1500万家庭患有痴呆症。 家庭成员和其他照顾者提供无报酬的照顾。老年痴呆症的复杂性在于 痴呆症患者无法与照顾他们的人交流，甚至无法认出他们。有效 需要采取干预措施来支持照顾者，以提高生活质量， 老年痴呆症的治疗。治疗痴呆症的药物主要是 无效，用于治疗痴呆症行为问题的药物有严重的副作用。 行为学方法已成为一线治疗方法，其中，音乐表现得尤为突出 很有希望，因为音乐活动利用了导致痴呆症的共同记忆和情感纽带 把关系放在一起。然而，迄今为止的研究受到规模和不良研究设计的限制。近 所有这些都是在机构或临床环境中进行的。大多数都不是为了支持照顾者。对我们 知识，只有一个小的试点研究已经出版，旨在支持照顾者在 家，不包括音乐。没有研究已经出版，仔细检查日常生活中- 居家痴呆症患者为了弥补这一差距，我们建议：（1）制定一项深入的 了解痴呆症护理关系;（2）深入了解 音乐在痴呆症患者日常生活中的应用;（3）利用所获得的知识设计音乐- 基于干预，以支持痴呆症患者及其护理人员。为了实现这些目标，我们将 去痴呆症患者和他们的照顾者的家里，完成评估并采访他们， 关于他们对音乐的体验。我们会花时间在家里观察， 参与正常的学习活动，有音乐和没有音乐，以确定音乐的核心特征 可以用来设计一个有效的，基于音乐的干预，以提高人们的生活质量， 老年痴呆症患者和他们的照顾者。候选人将招募社会经济多样化的人口 在北方加州，通过招募参与者从2个医疗上门服务计划，其中一个服务于 城市和农村地区。候选人在痴呆症患者的医疗护理方面具有专业知识， 音乐人类学研究候选人没有接受过健康科学研究方面的正式培训， 执行科学。通过课程、结构化教程和会议的混合， 在奖励期间，候选人将：（1）发展实施科学和痴呆症方面的专业知识 研究;（2）获得设计和领导临床试验的技能和经验，涉及多种 人口，以成为痴呆症和照顾者生活质量的领先研究者。