Community Outreach, Diversity, and Inclusion Core

社区外展、多元化和包容性核心

• 批准号: 10458122
• 负责人: Olivio J Clay
• 金额: $ 32.81万
• 依托单位: UNIVERSITY OF ALABAMA AT BIRMINGHAM
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-01 至 2024-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10458122
• 关键词: African American; African American population; Aging; Alabama; Alzheimer' s Disease; Area; Awareness; Barbering; Biological Specimen Banks; Biology; Black race; Catchment Area; Cerebrospinal Fluid; Church; Clinical; Cognitive; Cohort Studies; Collaborations; Communities; Community Health; Community Health Education; Community Outreach; Complement; Consent; County; Deep South; Dementia; Disease; Economics; Enrollment; Ensure; Family; Fellowship Program; Focus Groups; Fostering; Friends; Geographic Locations; Goals; Health Services Accessibility; Health system; Heart; Hospitals; Incidence; Inequality; Informatics; Infrastructure; Knowledge; Medical; Methods; Minority; Minority Graduate Student; Mission; Modality; Modeling; Monitor; Needs Assessment; Observational Study; Participant; Patient Recruitments; Patients; Persons; Population Research; Population Study; Positron-Emission Tomography; Poverty; Procedures; Publishing; Reasons for Geographic And Racial Differences in Stroke; Recording of previous events; Recruitment Activity; Religion and Spirituality; Research; Research Activity; Research Infrastructure; Research Personnel; Resources; Sampling; Services; Site; Subgroup; Testing; Training; Underrepresented Populations; Universities; Woman; Work; base; brain tissue; clinical center; clinical research site; cohort; community partnership; diversity and inclusion; experience; health data; innovation; member; men; outreach; recruit; service organization; service utilization; social; study population; university student

PROJECT SUMMARY/ABSTRACT The Community Outreach, Diversity and Inclusion (CODI) Core will coordinate with the other Cores to foster research on Alzheimer’s disease and related disorders (ADRD) and ensure the proper representation of Black/African American (B/AA) participants. In the heart of the Deep South, Alabama residents have experienced a history of unique social and economic inequalities and high rates of co-occurring medical conditions. These factors may contribute to the elevated incidence of dementia in this region. Major goals of the CODI Core are to increase ADRD awareness, properly inform potential participants of the procedures and tests necessary to effectively conduct ADRD research, and enhance the ADRD research infrastructure in the Deep South. Our community partnership approach will be guided by our established relationships with the Deep South RCMAR, professional women’s and men’s service organizations including Alpha Kappa Alpha sorority and Nasiha Roho Adinasi fraternity, and area aging and dementia agencies. We will use multiple modalities to extend our reach throughout the Deep South including a needs assessment in the area surrounding our new second site at UAB Medical West Hospital in Bessemer, AL (predominately B/AA), training a cohort of Community Health Alzheimer’s Advisors (CHAAs), and focus groups to get residents views on ADRD-related research. We will oversample B/AA residents for participation in ADRC activities and research by utilizing i2b2 informatics to identify patients utilizing services offered by the UAB Health System (UABHS) and continuing our fruitful collaboration with the national Reasons for Geographic and Racial Differences in Stroke (REGARDS) study. Birmingham area REGARDS participants will be given the opportunity enroll in the ADRC. This collaboration may serve as a model for expanding to other geographic regions with ADRCs and large concentrations of participants in existing population-based research. We propose to rigorously evaluate and publish the results of our outreach, engagement, recruitment, and retention methods, and we will collate and disseminate best practices to ADRCs and other ADRD networks.

项目摘要/摘要 社区外展，多样性和包容（CODI）核心将与其他核心协调 促进对阿尔茨海默氏病和相关疾病（ADRD）的研究，并确保正确代表 黑人/非裔美国人（B/AA）参与者。在深南方的中心，阿拉巴马州的居民有 经历了独特的社会和经济不平等现象的历史以及同时发生的医疗率高 状况。这些因素可能导致该地区痴呆症的升高。主要目标 Codi核心是提高ADRD意识，适当地告知潜在参与者程序和 有效进行ADRD研究并增强ADRD研究基础设施所必需的测试 深南。我们的社区伙伴关系方法将以我们与 南rcmar，专业女性和男子服务组织，包括Alpha Kappa Alpha sorority和Nasiha Roho Adinasi兄弟会以及地区老化和痴呆症机构。我们将使用多个 将我们在整个深处扩大覆盖范围的方式，包括该地区的需求评估 围绕着阿拉巴马州贝塞默的UAB医疗西部医院的新第二个站点（主要是B/AA）， 培训一个社区卫生阿尔茨海默氏症顾问（CHAAS）和焦点小组以吸引居民意见 关于与ADRD相关的研究。我们将超出B/AA居民参加ADRC活动和 通过使用I2B2信息来研究使用UAB卫生系统提供的服务来识别患者的研究 （uabhs）并继续我们与国家理由的富有成果的合作 中风的差异（有关）研究。伯明翰地区的参与者将被授予 机会参加ADRC。这种合作可以作为扩展到其他地理的模型 现有基于人群的研究中的ADRC和大量参与者的地区。我们 要求严格评估和发布我们的外展，参与，招聘和保留结果的结果 方法，我们将对ADRC和其他ADRD网络进行整理和传播最佳实践。