Community Outreach, Diversity, and Inclusion Core

社区外展、多元化和包容性核心

• 批准号: 10458122
• 负责人: Olivio J Clay
• 金额: $ 32.81万
• 依托单位: UNIVERSITY OF ALABAMA AT BIRMINGHAM
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-01 至 2024-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10458122
• 关键词: African American; African American population; Aging; Alabama; Alzheimer' s Disease; Area; Awareness; Barbering; Biological Specimen Banks; Biology; Black race; Catchment Area; Cerebrospinal Fluid; Church; Clinical; Cognitive; Cohort Studies; Collaborations; Communities; Community Health; Community Health Education; Community Outreach; Complement; Consent; County; Deep South; Dementia; Disease; Economics; Enrollment; Ensure; Family; Fellowship Program; Focus Groups; Fostering; Friends; Geographic Locations; Goals; Health Services Accessibility; Health system; Heart; Hospitals; Incidence; Inequality; Informatics; Infrastructure; Knowledge; Medical; Methods; Minority; Minority Graduate Student; Mission; Modality; Modeling; Monitor; Needs Assessment; Observational Study; Participant; Patient Recruitments; Patients; Persons; Population Research; Population Study; Positron-Emission Tomography; Poverty; Procedures; Publishing; Reasons for Geographic And Racial Differences in Stroke; Recording of previous events; Recruitment Activity; Religion and Spirituality; Research; Research Activity; Research Infrastructure; Research Personnel; Resources; Sampling; Services; Site; Subgroup; Testing; Training; Underrepresented Populations; Universities; Woman; Work; base; brain tissue; clinical center; clinical research site; cohort; community partnership; diversity and inclusion; experience; health data; innovation; member; men; outreach; recruit; service organization; service utilization; social; study population; university student

PROJECT SUMMARY/ABSTRACT The Community Outreach, Diversity and Inclusion (CODI) Core will coordinate with the other Cores to foster research on Alzheimer’s disease and related disorders (ADRD) and ensure the proper representation of Black/African American (B/AA) participants. In the heart of the Deep South, Alabama residents have experienced a history of unique social and economic inequalities and high rates of co-occurring medical conditions. These factors may contribute to the elevated incidence of dementia in this region. Major goals of the CODI Core are to increase ADRD awareness, properly inform potential participants of the procedures and tests necessary to effectively conduct ADRD research, and enhance the ADRD research infrastructure in the Deep South. Our community partnership approach will be guided by our established relationships with the Deep South RCMAR, professional women’s and men’s service organizations including Alpha Kappa Alpha sorority and Nasiha Roho Adinasi fraternity, and area aging and dementia agencies. We will use multiple modalities to extend our reach throughout the Deep South including a needs assessment in the area surrounding our new second site at UAB Medical West Hospital in Bessemer, AL (predominately B/AA), training a cohort of Community Health Alzheimer’s Advisors (CHAAs), and focus groups to get residents views on ADRD-related research. We will oversample B/AA residents for participation in ADRC activities and research by utilizing i2b2 informatics to identify patients utilizing services offered by the UAB Health System (UABHS) and continuing our fruitful collaboration with the national Reasons for Geographic and Racial Differences in Stroke (REGARDS) study. Birmingham area REGARDS participants will be given the opportunity enroll in the ADRC. This collaboration may serve as a model for expanding to other geographic regions with ADRCs and large concentrations of participants in existing population-based research. We propose to rigorously evaluate and publish the results of our outreach, engagement, recruitment, and retention methods, and we will collate and disseminate best practices to ADRCs and other ADRD networks.

项目概要/摘要 社区外展、多元化和包容性 (CODI) 核心将与其他核心协调，以 促进阿尔茨海默病及相关疾病 (ADRD) 的研究，并确保正确代表 黑人/非裔美国人 (B/AA) 参与者。在南部腹地的中心地带，阿拉巴马州的居民 经历了独特的社会和经济不平等以及高并发医疗率的历史 状况。这些因素可能导致该地区痴呆症发病率升高。主要目标 CODI 核心旨在提高 ADRD 意识，正确告知潜在参与者相关程序和 有效开展 ADRD 研究所需的测试，并加强 ADRD 研究基础设施 深南。我们的社区伙伴关系方法将以我们与社区建立的关系为指导 Deep South RCMAR、专业女性和男性服务组织，包括 Alpha Kappa Alpha 联谊会和 Nasiha Roho Adinasi 兄弟会，以及地区老龄化和痴呆症机构。我们将使用多个 将我们的影响范围扩大到整个南方腹地的方式，包括对该地区的需求评估 围绕我们位于阿拉巴马州贝塞默的 UAB Medical West 医院（主要是 B/AA）的新第二个基地， 培训一批社区健康阿尔茨海默病顾问 (CHAA) 和焦点小组以获取居民的意见 ADRD 相关研究。我们将对参加 ADRC 活动的 B/AA 居民进行抽样抽样，并且 通过利用 i2b2 信息学来识别使用 UAB 卫生系统提供的服务的患者进行研究 （UABHS）并继续与国家地理和种族原因组织富有成效的合作 中风差异（REGARDS）研究。伯明翰地区 REGARDS 参与者将获得 有机会加入 ADRC。这种合作可以作为扩展到其他地区的模式 拥有 ADRC 且现有人群研究参与者集中的地区。我们 建议严格评估和发布我们的外展、参与、招聘和保留的结果 方法，我们将整理并向 ADRC 和其他 ADRD 网络传播最佳实践。