Community Outreach, Diversity, and Inclusion Core

社区外展、多元化和包容性核心

• 批准号: 10247593
• 负责人: Olivio J Clay
• 金额: $ 16.11万
• 依托单位: UNIVERSITY OF ALABAMA AT BIRMINGHAM
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-01 至 2023-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10247593
• 关键词: African American; Aging; Alabama; Alzheimer' s Disease; Area; Awareness; Barbering; Biological Specimen Banks; Biology; Catchment Area; Cerebrospinal Fluid; Church; Clinical; Cognitive; Cohort Studies; Collaborations; Communities; Community Health; Community Health Education; Community Outreach; Complement; Consent; County; Deep South; Dementia; Disease; Economics; Enrollment; Ensure; Family; Fellowship Program; Focus Groups; Fostering; Friends; Geographic Locations; Goals; Health Services Accessibility; Health system; Heart; Hospitals; Incidence; Inequality; Informatics; Infrastructure; Knowledge; Medical; Methods; Minority; Minority Graduate Student; Mission; Modality; Modeling; Monitor; Needs Assessment; Observational Study; Participant; Patient Recruitments; Patients; Persons; Population Research; Population Study; Positron-Emission Tomography; Poverty; Procedures; Publishing; Reasons for Geographic And Racial Differences in Stroke; Recording of previous events; Recruitment Activity; Religion and Spirituality; Research; Research Activity; Research Infrastructure; Research Personnel; Resources; Sampling; Services; Site; Subgroup; Testing; Training; Underrepresented Populations; Universities; Woman; Work; base; brain tissue; clinical center; clinical research site; cohort; community partnership; diversity and inclusion; experience; health data; innovation; member; men; outreach; recruit; service organization; service utilization; social; study population; university student

PROJECT SUMMARY/ABSTRACT The Community Outreach, Diversity and Inclusion (CODI) Core will coordinate with the other Cores to foster research on Alzheimer’s disease and related disorders (ADRD) and ensure the proper representation of Black/African American (B/AA) participants. In the heart of the Deep South, Alabama residents have experienced a history of unique social and economic inequalities and high rates of co-occurring medical conditions. These factors may contribute to the elevated incidence of dementia in this region. Major goals of the CODI Core are to increase ADRD awareness, properly inform potential participants of the procedures and tests necessary to effectively conduct ADRD research, and enhance the ADRD research infrastructure in the Deep South. Our community partnership approach will be guided by our established relationships with the Deep South RCMAR, professional women’s and men’s service organizations including Alpha Kappa Alpha sorority and Nasiha Roho Adinasi fraternity, and area aging and dementia agencies. We will use multiple modalities to extend our reach throughout the Deep South including a needs assessment in the area surrounding our new second site at UAB Medical West Hospital in Bessemer, AL (predominately B/AA), training a cohort of Community Health Alzheimer’s Advisors (CHAAs), and focus groups to get residents views on ADRD-related research. We will oversample B/AA residents for participation in ADRC activities and research by utilizing i2b2 informatics to identify patients utilizing services offered by the UAB Health System (UABHS) and continuing our fruitful collaboration with the national Reasons for Geographic and Racial Differences in Stroke (REGARDS) study. Birmingham area REGARDS participants will be given the opportunity enroll in the ADRC. This collaboration may serve as a model for expanding to other geographic regions with ADRCs and large concentrations of participants in existing population-based research. We propose to rigorously evaluate and publish the results of our outreach, engagement, recruitment, and retention methods, and we will collate and disseminate best practices to ADRCs and other ADRD networks.

项目总结/摘要 社区外展，多样性和包容性（CODI）核心将与其他核心协调， 促进对阿尔茨海默病和相关疾病（ADRD）的研究，并确保适当的代表性 黑人/非裔美国人（B/AA）参与者。在南方腹地的中心地带，亚拉巴马的居民 经历了独特的社会和经济不平等的历史，以及同时发生的医疗事故的高发生率。 条件这些因素可能导致该地区痴呆症的发病率升高。大目标 CODI核心是提高ADRD意识，适当告知潜在参与者程序， 有效进行ADRD研究所需的测试，并加强ADRD研究基础设施， 南方腹地。我们的社区伙伴关系方针将以我们与 深南RCMAR，专业的妇女和男子的服务组织，包括阿尔法卡帕阿尔法 妇女联谊会和Nasiha Roho Adinasi兄弟会以及地区老龄化和痴呆症机构。我们将使用多个 将我们的影响力扩展到整个南方腹地的方式，包括对该地区的需求进行评估 我们在位于阿拉巴马州贝塞默的UAB Medical West医院（主要是B/AA）的新的第二个站点周围， 培训一批社区健康阿尔茨海默氏症顾问（CHAA）和焦点小组，以获得居民的意见 ADRD相关的研究。我们会对B/AA居民进行过度抽样，以参与ADRC活动， 利用i2 b2信息学进行研究，以确定使用UAB卫生系统提供的服务的患者 （UABHS）并继续与国家地理和种族原因进行富有成效的合作 卒中差异（REGARDS）研究。伯明翰地区的关注参与者将获得 有机会加入ADRC。这种合作可以作为一种模式，扩展到其他地理区域， 在现有的基于人群的研究中，有ADRC和大量集中的参与者的地区。我们 我建议严格评估和公布我们的外联、参与、招聘和保留的结果 我们将整理和传播最佳做法，以ADRC和其他ADRD网络。