Community Outreach, Diversity, and Inclusion Core

社区外展、多元化和包容性核心

• 批准号: 10035017
• 负责人: Olivio J Clay
• 金额: $ 22.49万
• 依托单位: UNIVERSITY OF ALABAMA AT BIRMINGHAM
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-09-01 至 2023-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10035017
• 关键词: African American; Aging; Alabama; Alzheimer' s Disease; Area; Awareness; Barbering; Biology; Catchment Area; Cerebrospinal Fluid; Church; Clinical; Cognitive; Cohort Studies; Collaborations; Communities; Community Health; Community Health Education; Community Outreach; Complement; Consent; County; Deep South; Dementia; Disease; Economics; Enrollment; Ensure; Family; Fellowship Program; Focus Groups; Fostering; Friends; Geographic Locations; Goals; Health Services Accessibility; Health system; Heart; Hospitals; Incidence; Inequality; Informatics; Infrastructure; Knowledge; Medical; Methods; Minority; Minority Graduate Student; Mission; Modality; Modeling; Monitor; Needs Assessment; Observational Study; Participant; Patient Recruitments; Patients; Persons; Population Research; Population Study; Positron-Emission Tomography; Poverty; Procedures; Publishing; Reasons for Geographic And Racial Differences in Stroke; Recording of previous events; Recruitment Activity; Religion and Spirituality; Research; Research Activity; Research Infrastructure; Research Personnel; Resources; Sampling; Services; Site; Subgroup; Testing; Training; Underrepresented Groups; Universities; Woman; Work; base; brain tissue; clinical center; clinical research site; cohort; community partnership; data warehouse; experience; health data; innovation; member; men; outreach; recruit; service organization; service utilization; social; study population; university student

PROJECT SUMMARY/ABSTRACT The Community Outreach, Diversity and Inclusion (CODI) Core will coordinate with the other Cores to foster research on Alzheimer’s disease and related disorders (ADRD) and ensure the proper representation of Black/African American (B/AA) participants. In the heart of the Deep South, Alabama residents have experienced a history of unique social and economic inequalities and high rates of co-occurring medical conditions. These factors may contribute to the elevated incidence of dementia in this region. Major goals of the CODI Core are to increase ADRD awareness, properly inform potential participants of the procedures and tests necessary to effectively conduct ADRD research, and enhance the ADRD research infrastructure in the Deep South. Our community partnership approach will be guided by our established relationships with the Deep South RCMAR, professional women’s and men’s service organizations including Alpha Kappa Alpha sorority and Nasiha Roho Adinasi fraternity, and area aging and dementia agencies. We will use multiple modalities to extend our reach throughout the Deep South including a needs assessment in the area surrounding our new second site at UAB Medical West Hospital in Bessemer, AL (predominately B/AA), training a cohort of Community Health Alzheimer’s Advisors (CHAAs), and focus groups to get residents views on ADRD-related research. We will oversample B/AA residents for participation in ADRC activities and research by utilizing i2b2 informatics to identify patients utilizing services offered by the UAB Health System (UABHS) and continuing our fruitful collaboration with the national Reasons for Geographic and Racial Differences in Stroke (REGARDS) study. Birmingham area REGARDS participants will be given the opportunity enroll in the ADRC. This collaboration may serve as a model for expanding to other geographic regions with ADRCs and large concentrations of participants in existing population-based research. We propose to rigorously evaluate and publish the results of our outreach, engagement, recruitment, and retention methods, and we will collate and disseminate best practices to ADRCs and other ADRD networks.

项目摘要/摘要 社区外联、多样性和包容性核心将与其他核心协调，以 促进对阿尔茨海默病和相关疾病(ADRD)的研究，并确保适当的 黑人/非裔美国人(B/AA)参与者。在南方腹地，阿拉巴马州的居民 经历了独特的社会和经济不平等和高共生率的医疗 条件。这些因素可能是该地区痴呆症发病率上升的原因之一。的主要目标 CODI的核心是提高对ADRD的认识，适当地向潜在参与者通报程序和 有效开展ADRD研究和加强ADRD研究基础设施所需的测试 南方腹地。我们的社区伙伴关系将以我们与 深南RCMAR，包括Alpha Kappa Alpha在内的专业女性和男性服务组织 女生联谊会和Nasiha Roho Adinasi兄弟会，以及地区老龄化和痴呆症机构。我们将使用多个 将我们的触角伸向整个南方腹地的方式，包括该地区的需求评估 围绕着我们位于亚利桑那州贝塞默(主要是B/AA)的UAB医疗西部医院的第二个新地点， 培训一批社区健康阿尔茨海默氏症顾问(CHAs)和焦点小组，以征求居民的意见 与ADRD相关的研究。我们将对B/AA居民进行抽样调查，以参加ADRC的活动和 通过利用i2b2信息学来识别利用UAB卫生系统提供的服务的患者的研究 (UABHS)并继续我们与国家地理和种族原因组织富有成效的合作 中风研究中的差异。伯明翰地区表示参赛者将获得 机会加入亚洲发展研究中心。这种协作可以作为扩展到其他地理位置的模式 在现有的以人口为基础的研究中，有ADRC和参与者大量集中的地区。我们 建议严格评估和公布我们的外展、接洽、招聘和保留的结果 我们将整理最佳做法，并将其传播给ADRC和其他ADRD网络。