Improving Minority Health in Rheumatic Disease (IMHeaRD)

项目摘要-行政核心 临床研究核心中心（CCCR）的行政核心，以改善少数民族健康， 南卡罗来纳州医科大学的风湿病（IMHeaRD）提供了领导和 中心的管理和一个完全由机构承诺供资的试点项目方案。 该CCCR的使命是促进对布莱克的临床护理和健康结局的了解。 患有系统性红斑狼疮、硬皮病和其他疾病或处于发展风险中的患者 使人衰弱的风湿病。行政核心的首要目标是：（a）确保质量， CCCR核心的工具、服务、样本、数据和其他输出的有效性、可访问性和适用性， (b)促进MUSC及其他基础，转化和临床科学家之间的互动，以有效地关注 （c）促进研究成果的适当传播， 成果和资源，以及（d）建立/继续与其他CCCR/CORTS合作， 实践、方法和独特技能。为实现这些目标，我们将努力实现以下具体目标：1. 为CCCR提供领导; 2。协调和管理CCCR的组织、运营和财务 职能和评价活动; 3.利用机构基础设施资源; 4.开展一项多年期 评估计划; 5.加强和扩大强有力的交流、传播和外联活动， 促进卫生专业人员、科学家和当地社区之间的互利互动; 6. 提供有竞争力的试点项目。该核心将由医学博士吉姆·奥茨（Jim Oates）指导， 两名副主任，加里Gilkeson，医学博士和黛安卡门，医学博士，执行委员会，包括核心 领导人和研究社区代表，内部咨询委员会，包括机构 利益相关者和患者倡导者，以及包括该领域专家在内的外部咨询委员会， 领导其他NIAMS中心的经验。行政核心工作人员为 中心，管理和监督财务，协调会议和行动项目，并与 NIAMS工作人员和机构人员。行政核心还支持教育和传播 活动，以提高在MUSC和当地社区的中心的知名度和影响力，并提供一个 论坛沟通和交流的研究思路。行政核心培养了一个充满活力，互动 临床和转化研究计划，以提高我们的知识和资源，以改善 预防、诊断、治疗风湿性疾病，特别是系统性狼疮， 红斑和系统性硬化症，在黑人中发生率更高，严重程度更高 患者比其他种族和民族在美国。

Project Summary – Administrative Core The Administrative Core of the Core Center for Clinical Research (CCCR) for Improving Minority Health in Rheumatic Diseases (IMHeaRD) at the Medical University of South Carolina provides leadership and management for the center and a pilot projects program that is funded entirely with institutional commitments. The mission of this CCCR is to advance knowledge with respect to the clinical care and health outcomes of Black patients who have, or who are at risk of developing, systemic lupus erythematosus, scleroderma and other debilitating rheumatic diseases. The overarching goals of the Administrative Core are to: (a) ensure the quality, validity, accessibility and applicability of the tools, services, samples, data and other output of the CCCR cores, (b) foster interactions among basic, translational and clinical scientists at MUSC and beyond to focus effectively on prevention, diagnosis and treatment of rheumatic diseases, (c) facilitate appropriate dissemination of research results and resources, and (d) establish/continue collaborations with other CCCRs/CORTS to share best practices, methodology and unique skills. To achieve these goals, we will pursue the following specific aims: 1. Provide leadership for the CCCR; 2. Coordinate and manage CCCR organizational, operational and financial functions and evaluative activities; 3. Leverage institutional infrastructure resources; 4. Conduct a multi-year Evaluation Plan; 5. Strengthen and expand robust communication, dissemination and outreach activities, fostering mutually productive interactions among health professionals, scientists and local communities; and 6. Provide a competitive Pilot Projects Program. This core will be directed by Jim Oates, MD, with assistance from two Associate Directors, Gary Gilkeson, MD, and Diane Kamen, MD, an Executive Committee that includes core leaders and Research Community representatives, an Internal Advisory Committee that includes institutional stakeholders and patient advocates, and an External Advisory Committee that includes experts in the field with experience leading other NIAMS centers. The Administrative Core staff provides administrative support for the center, administering and monitoring the finances, coordinating meetings and action items, and interfacing with NIAMS staff and institutional personnel. The Administrative Core also supports educational and dissemination activities to enhance the visibility and impact of the center within MUSC and the local community and provide a forum for communicating and exchanging research ideas. The Administrative Core nurtures a vibrant, interactive program of clinical and translational research to advance our knowledge and resources for improving the prevention, diagnosis, treatment and health outcomes for rheumatic diseases, notably systemic lupus erythematosus and systemic sclerosis, which occur significantly more often and with greater severity in Black patients than in other racial and ethnic groups in the United States.