Improving Minority Health in Rheumatic Disease (IMHeaRD)

改善少数民族风湿病健康 (IMHeaRD)

• 批准号: 10488452
• 负责人: JAMES C OATES
• 金额: $ 16.55万
• 依托单位: MEDICAL UNIVERSITY OF SOUTH CAROLINA
• 依托单位国家: 美国
• 财政年份: 2017
• 资助国家: 美国
• 起止时间: 2017-09-25 至 2027-08-31
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10488452
• 关键词: Administrative Supplement; Advisory Committees; Advocacy; Advocate; Appointment; Area; Avena sativa; Awareness; Black race; Businesses; Clinical; Clinical Research; Collaborations; Collection; Communication; Communities; Conflict of Interest; Data; Diagnosis; Effectiveness; Ensure; Ethnic group; Evaluation; Faculty; Fostering; Foundations; Funding; Goals; Grant; Health; Health Professional; Human Resources; Individual; Infrastructure; Investigation; Knowledge; Lead; Leadership; Lupus; Measures; Medical; Mentors; Methodology; Mission; Monitor; Morbidity - disease rate; National Institute of Arthritis and Musculoskeletal and Skin Diseases; Outcome; Output; Patients; Performance; Pilot Projects; Prevention; Prevention strategy; Problem Solving; Productivity; Race; Reporting; Research; Research Activity; Research Institute; Research Personnel; Resource Sharing; Resources; Rheumatism; Risk; Sampling; Scientist; Scleroderma; Services; Severities; South Carolina; Systemic Lupus Erythematosus; Systemic Scleroderma; Time; Translational Research; Travel; United States; Universities; Update; black patient; clinical care; clinical center; design; experience; follow-up; health care availability; health disparity; improve minority health; improved; innovation; meetings; minority investigator; mortality; operation; outreach; programs; racial disparity; shared database; skills; tool; web site; women faculty

Project Summary – Administrative Core The Administrative Core of the Core Center for Clinical Research (CCCR) for Improving Minority Health in Rheumatic Diseases (IMHeaRD) at the Medical University of South Carolina provides leadership and management for the center and a pilot projects program that is funded entirely with institutional commitments. The mission of this CCCR is to advance knowledge with respect to the clinical care and health outcomes of Black patients who have, or who are at risk of developing, systemic lupus erythematosus, scleroderma and other debilitating rheumatic diseases. The overarching goals of the Administrative Core are to: (a) ensure the quality, validity, accessibility and applicability of the tools, services, samples, data and other output of the CCCR cores, (b) foster interactions among basic, translational and clinical scientists at MUSC and beyond to focus effectively on prevention, diagnosis and treatment of rheumatic diseases, (c) facilitate appropriate dissemination of research results and resources, and (d) establish/continue collaborations with other CCCRs/CORTS to share best practices, methodology and unique skills. To achieve these goals, we will pursue the following specific aims: 1. Provide leadership for the CCCR; 2. Coordinate and manage CCCR organizational, operational and financial functions and evaluative activities; 3. Leverage institutional infrastructure resources; 4. Conduct a multi-year Evaluation Plan; 5. Strengthen and expand robust communication, dissemination and outreach activities, fostering mutually productive interactions among health professionals, scientists and local communities; and 6. Provide a competitive Pilot Projects Program. This core will be directed by Jim Oates, MD, with assistance from two Associate Directors, Gary Gilkeson, MD, and Diane Kamen, MD, an Executive Committee that includes core leaders and Research Community representatives, an Internal Advisory Committee that includes institutional stakeholders and patient advocates, and an External Advisory Committee that includes experts in the field with experience leading other NIAMS centers. The Administrative Core staff provides administrative support for the center, administering and monitoring the finances, coordinating meetings and action items, and interfacing with NIAMS staff and institutional personnel. The Administrative Core also supports educational and dissemination activities to enhance the visibility and impact of the center within MUSC and the local community and provide a forum for communicating and exchanging research ideas. The Administrative Core nurtures a vibrant, interactive program of clinical and translational research to advance our knowledge and resources for improving the prevention, diagnosis, treatment and health outcomes for rheumatic diseases, notably systemic lupus erythematosus and systemic sclerosis, which occur significantly more often and with greater severity in Black patients than in other racial and ethnic groups in the United States.

项目摘要 - 行政核心 临床研究核心中心（CCCR）的行政核心，用于改善少数民族健康 南卡罗来纳州医科大学的风湿病（Imheard）提供领导才能 该中心的管理和一个完全由机构承诺资助的试点项目计划。 该CCCR的任务是提高有关黑色临床护理和健康成果的知识 患者有或有发育风险的系统性红斑狼疮，硬皮病和其他患者 衰弱的风湿病。行政核心的总体目标是：（a）确保质量， CCCR内核的工具，服务，样品，数据和其他输出的有效性，可访问性和适用性， （b）MUSC及以后的基本，翻译和临床科学家之间的促进相互作用，以有效地关注 关于风湿性疾病的预防，诊断和治疗，（c）促进适当分发研究 结果和资源，以及（d）建立/继续与其他CCCR/CORTS合作以分享最佳 实践，方法和独特的技能。为了实现这些目标，我们将追求以下特定目标：1。 为CCCR提供领导； 2。协调和管理CCCR组织，运营和财务 功能和评估活动； 3。利用机构基础设施资源； 4。进行多年 评估计划； 5。加强和扩大强大的沟通，传播和外展活动， 促进卫生专业人员，科学家和当地社区之间相互生产的互动；和6。 提供竞争性的试点项目计划。该核心将由医学博士吉姆·奥茨（Jim Oates）指导 两名副董事，马里兰州加里·吉尔克森（Gary Gilkeson）和包括核心委员会的执行委员会 领导者和研究社区代表，内部咨询委员会，包括机构 利益相关者和患者倡导者以及一个外部咨询委员会，其中包括该领域的专家 经验带领其他Niams中心。行政核心人员为 中心，管理和监视财务，协调会议和行动项目，并与 NIAMS的工作人员和机构人员。行政核心还支持教育和传播 活动以增强中心在MUSC和当地社区内的可见性和影响，并提供 交流和交换研究思想的论坛。行政核心护士是一个充满活力的互动 临床和转化研究计划，以促进我们的知识和资源来改善 风湿性疾病的预防，诊断，治疗和健康结果，特别是全身性狼疮 红斑和全身性硬化症，发生的频率更高，黑色的严重程度更高 患者比美国其他种族和族裔群体。