Improving Minority Health in Rheumatic Disease (IMHeaRD)

项目摘要-管理核心 改善少数民族健康的临床研究核心中心(CCCR)的行政核心 南卡罗来纳医科大学的风湿病(IMHeaRD)提供领导和 该中心的管理和完全由机构承诺提供资金的试点项目计划。 本CCCR的使命是促进对Black的临床护理和健康结果的了解 患有或有可能发展为系统性红斑狼疮、硬皮病和其他疾病的患者 使人衰弱的风湿病。行政核心的总体目标是：(A)确保质量， CCCR核心的工具、服务、样本、数据和其他输出的有效性、可及性和适用性， (B)促进南加州大学及以后的基础、翻译和临床科学家之间的互动，以有效地专注 关于风湿病的预防、诊断和治疗，(C)促进适当传播研究 成果和资源，以及(D)与其他CCCR/CORT建立/继续合作，以分享最佳 实践、方法论和独特技能。为实现这些目标，我们将追求以下具体目标：1. 领导CCCR；2.协调和管理CCCR的组织、运营和财务 职能和评价活动；3.利用体制基础设施资源；4.开展多年期 评价计划；5.加强和扩大强有力的沟通、传播和外联活动， 促进卫生专业人员、科学家和当地社区之间的互惠互动；以及6. 提供具有竞争力的试点项目计划。这一核心将由医学博士吉姆·奥茨指导，并由 两名副董事，医学博士加里·吉尔克森和医学博士黛安·卡门，执行委员会成员包括CORE 领导者和研究界代表，一个内部咨询委员会，包括机构 利益相关者和患者权益倡导者，以及一个外部咨询委员会，该委员会包括该领域的专家 有领导其他NIAMS中心的经验。行政核心工作人员为 中心，管理和监测财务，协调会议和行动项目，并与 NIAMS工作人员和机构人员。行政核心还支持教育和传播 开展活动，提高中心在南加州大学和当地社区内的知名度和影响力，并提供 沟通和交流研究想法的论坛。行政核心培育了一个充满活力、互动的 临床和转化性研究计划，以促进我们的知识和资源，以改善 风湿病，特别是系统性红斑狼疮的预防、诊断、治疗和健康结果 红斑症和系统性硬化症，在黑人中发生得更频繁，也更严重 患者比美国其他种族和民族的患者更多。

Project Summary – Administrative Core The Administrative Core of the Core Center for Clinical Research (CCCR) for Improving Minority Health in Rheumatic Diseases (IMHeaRD) at the Medical University of South Carolina provides leadership and management for the center and a pilot projects program that is funded entirely with institutional commitments. The mission of this CCCR is to advance knowledge with respect to the clinical care and health outcomes of Black patients who have, or who are at risk of developing, systemic lupus erythematosus, scleroderma and other debilitating rheumatic diseases. The overarching goals of the Administrative Core are to: (a) ensure the quality, validity, accessibility and applicability of the tools, services, samples, data and other output of the CCCR cores, (b) foster interactions among basic, translational and clinical scientists at MUSC and beyond to focus effectively on prevention, diagnosis and treatment of rheumatic diseases, (c) facilitate appropriate dissemination of research results and resources, and (d) establish/continue collaborations with other CCCRs/CORTS to share best practices, methodology and unique skills. To achieve these goals, we will pursue the following specific aims: 1. Provide leadership for the CCCR; 2. Coordinate and manage CCCR organizational, operational and financial functions and evaluative activities; 3. Leverage institutional infrastructure resources; 4. Conduct a multi-year Evaluation Plan; 5. Strengthen and expand robust communication, dissemination and outreach activities, fostering mutually productive interactions among health professionals, scientists and local communities; and 6. Provide a competitive Pilot Projects Program. This core will be directed by Jim Oates, MD, with assistance from two Associate Directors, Gary Gilkeson, MD, and Diane Kamen, MD, an Executive Committee that includes core leaders and Research Community representatives, an Internal Advisory Committee that includes institutional stakeholders and patient advocates, and an External Advisory Committee that includes experts in the field with experience leading other NIAMS centers. The Administrative Core staff provides administrative support for the center, administering and monitoring the finances, coordinating meetings and action items, and interfacing with NIAMS staff and institutional personnel. The Administrative Core also supports educational and dissemination activities to enhance the visibility and impact of the center within MUSC and the local community and provide a forum for communicating and exchanging research ideas. The Administrative Core nurtures a vibrant, interactive program of clinical and translational research to advance our knowledge and resources for improving the prevention, diagnosis, treatment and health outcomes for rheumatic diseases, notably systemic lupus erythematosus and systemic sclerosis, which occur significantly more often and with greater severity in Black patients than in other racial and ethnic groups in the United States.