Rare Disease Clinical Research Training Program
罕见病临床研究培训计划
基本信息
- 批准号:10489961
- 负责人:
- 金额:$ 16.15万
- 依托单位:
- 依托单位国家:美国
- 项目类别:
- 财政年份:2022
- 资助国家:美国
- 起止时间:2022-09-01 至 2027-08-31
- 项目状态:未结题
- 来源:
- 关键词:AddressAdultClinicalClinical ResearchCollaborationsCommunitiesCreativenessDisciplineEducation ProjectsEducational CurriculumEducational process of instructingEnvironmentFamilyFutureGeneticGoalsIndividualInstitutional RacismMedicineMentorsMentorshipMinority GroupsModelingParticipantPatientsPersonal SatisfactionPersonsPopulationRare DiseasesResearchResearch PersonnelScienceTherapeuticTrainingTraining ProgramsTranslational ResearchUnderrepresented Populationsbasecare deliverycareereducation researchexperienceflexibilityhealth equityhealth equity promotionimprovedlecturesmultidisciplinarynext generationnon-geneticprogramsrecruitskillstheoriesvirtual
项目摘要
Abstract
The goal of the R25 Rare Disease Research (RDR) curriculum is to prepare a multidisciplinary and diverse group
of 50 Scholars per year to perform clinical and translational research in both genetic and non-genetic rare
disorders. This will be accomplished using a one-year 80 hr. blended teaching model. An objective of this
program is to create online modules, pod cast-style lectures, recorded didactic-style lectures and in person
experiences that enable learners from different disciplines and diverse backgrounds to actively participate in this
RDR curriculum. The field of RDR and care delivery recognizes that collaborative research and team science are
critical to improving therapeutic opportunities and wellbeing of the rare disease community. This concept serves
as the unifying theme of the curriculum. Furthermore, in addressing the issue of health equity and systemic
racism there is the need for training RDR leaders and practitioners from populations underrepresented in
medicine (UIM). As part of this objective, we will also prioritize the recruitment of Scholars from these
populations with the goal of having at least 20% of Scholars coming from populations UIM. Recruitment will
include the launching of a more expansive list of disciplines from which we will recruit scholars and creation of
an alumni participation program. We also will highlight how researchers and Scholars will “bring the table to the
participants” in RDR. By changing how the next generation of clinical researchers view recruitment and
engagement in the diverse family and patient rare disease communities, we expect to advance health equity.
摘要
R25罕见病研究(RDR)课程的目标是准备一个多学科和多样化的群体
每年50名学者进行罕见遗传和非遗传的临床和翻译研究
精神错乱。这将使用一年的80小时来完成。混合式教学模式。这样做的一个目标是
方案是创建在线模块、播客播音式讲座、录音授课式讲座和面对面授课
使来自不同学科和不同背景的学习者能够积极参与此活动的体验
RDR课程。RDR和护理交付领域认识到,协作研究和团队科学是
对改善罕见病社区的治疗机会和福祉至关重要。这一概念服务于
作为课程的统一主题。此外,在解决卫生公平和系统性问题时,
种族主义有必要培训民主联盟领导人和从业者,这些领导人和从业者来自在
医学(UIM)。作为这项目标的一部分,我们还将优先从这些机构中招聘学者
目标是至少有20%的学者来自UIM人口。招聘将
包括推出一个更广泛的学科清单,我们将从这些学科中招聘学者,并创建
校友参与计划。我们还将重点介绍研究人员和学者将如何“将谈判桌
参与者“在RDR中。通过改变下一代临床研究人员看待招聘和
通过参与不同的家庭和患者罕见疾病社区,我们希望促进卫生公平。
项目成果
期刊论文数量(0)
专著数量(0)
科研奖励数量(0)
会议论文数量(0)
专利数量(0)
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{{ truncateString('MARK L. BATSHAW', 18)}}的其他基金
Biomarkers of Neurological Injury and Recovery in Urea Cycle Disorders
尿素循环障碍中神经损伤和恢复的生物标志物
- 批准号:
8858723 - 财政年份:2014
- 资助金额:
$ 16.15万 - 项目类别:
Overall Adminstration of Rare Diseases Clinical Research Consortia (RDCRC)
罕见病临床研究联盟(RDCRC)的总体管理
- 批准号:
8858731 - 财政年份:2014
- 资助金额:
$ 16.15万 - 项目类别:
Nitric Oxide Supplementation as a Therapeutic Intervention in Argininosuccinate Lyase Deficiency
补充一氧化氮作为精氨基琥珀酸裂解酶缺乏症的治疗干预措施
- 批准号:
8858725 - 财政年份:2014
- 资助金额:
$ 16.15万 - 项目类别:
Pilot/Demonstration Clinical Research Projects Program
试点/示范临床研究项目计划
- 批准号:
8858726 - 财政年份:2014
- 资助金额:
$ 16.15万 - 项目类别:
Rare Diseases Clinical Research Consorita (RDCRC) for the RDCR Network
RDCR 网络的罕见疾病临床研究联盟 (RDCRC)
- 批准号:
8536435 - 财政年份:2012
- 资助金额:
$ 16.15万 - 项目类别:
Investigation of Brain Nitrogen Metabolism in Partial Ornithine Trascarbamylase
部分鸟氨酸转氨甲酰酶脑氮代谢的研究
- 批准号:
8325108 - 财政年份:2011
- 资助金额:
$ 16.15万 - 项目类别:
Rare Diseases Clinical Research Consortia (RDCRC) for the RDCR Network
罕见疾病临床研究联盟 (RDCRC) 的 RDCR 网络
- 批准号:
7932561 - 财政年份:2009
- 资助金额:
$ 16.15万 - 项目类别:
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