COPING WITH CRITICALLY ILL CHILDREN--AN INTERVENTION

描述（改编自研究者摘要）：危重病 儿童有短期和长期负面行为的风险， 和情感上的结果。 最近也有报道说， 文学，儿童谁经历危及生命的疾病和他们的 父母是创伤后应激障碍的高危人群 disorder. 许多研究表明， 包括父母在心理上准备他们的孩子 有计划的小手术和程序 然而，目前尚不清楚是否 类似的方法对于经历严重疾病的儿童是有价值的。 疾病与父母 由于这个原因， 缺乏对重症儿童的实验研究， 家长、临床医生和研究人员强调， 制定和评估干预措施，以加强应对这一问题的成果。 人口 本研究的主要目的是改善应对 结果，心理和功能，在重症青年 儿童及其母亲在住院期间和之后。 一 理论驱动，家长为中心，护理干预计划， 将使用集成信息和行为组件。 的 本研究的主要目的是评估短期和长期的影响， 实验性干预计划（COPE：创造机会， 父母赋权）对母婴应对过程和结果的影响 病情危重 第二个目的是检验一个建议的模型 开发来解释COPE干预计划对 通过使用儿童保健服务应对的过程和结果 自我调节理论、控制理论与情绪传染 假说. 184位2 - 6岁的母亲， 危重患儿将被随机分配到对照组或 在两个研究地点的每个实验组。 各种有效的和 可靠的测量，包括自我报告和无偏见的观察评级， 将评估干预计划的效果，并在1，3， 住院后6个月。

DESCRIPTION (Adapted from the Investigator's Abstract): Critically ill children are at risk for short- and long-term negative behavioral, academic and emotional outcomes. There also have been recent reports in the literature that children who experience life-threatening illnesses and their parents are at high risk for the development of post-traumatic stress disorder. Numerous studies have demonstrated the positive effects of including parents in the psychological preparation of their children for planned, minor surgeries and procedures. However, it is not known whether similar approaches would be valuable for children experiencing serious illnesses and their parents. For this reason and the fact that there is a paucity of experimental studies with critically ill children and their parents, clinicians and researchers have emphasized the urgent need to develop and evaluate interventions to enhance coping outcomes in this population. The major objective of this research is to improve coping outcomes, both psychological and functional, in critically ill young children and their mothers during and following hospitalization. A theoretically driven, parent-focused, nursing intervention program that integrates informational and behavioral components will be utilized. The primary aim of this study is to evaluate the short- and long-term effects of an experimental intervention program (COPE: Creating Opportunities for Parent Empowerment) on the process and outcomes of maternal and child coping with critical illness. The secondary aim is to examine a proposed model developed to explain the effects of the COPE intervention program on the process and outcomes of maternal and child coping through use of self-regulation theory, control theory and the emotional contagion hypothesis. One hundred eighty-four mothers with two- to six-year old, critically ill children will be randomly assigned to a control or experimental group at each of two study sites. A variety of valid and reliable measures, including self-report and non-biased observation ratings, will assess the effects of the intervention program during and at 1, 3, and 6 months following hospitalization.