Playing A/Part: investigating the experiences of autistic girls through drama, interactive media and participatory arts.

扮演A/Part：通过戏剧、互动媒体和参与性艺术调查自闭症女孩的经历。

• 批准号: AH/S001158/1
• 负责人: Nicola Shaughnessy
• 金额: $ 86.41万
• 依托单位: University of Kent
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2018
• 资助国家: 英国
• 起止时间: 2018 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=AH%2FS001158%2F1
• 关键词: Playing; Part; investigating; experiences; autistic

Playing A/Part is an interdisciplinary collaboration (drama, media arts, psychology) working with autistic girls (aged 11-18) and women to investigate the female face of autism through innovative, creative and participatory approaches pioneered by members of the research team. Improvisatory performance and interactive media are used as creative tools for articulating the lived experience of the female autistic community. The project responds to calls for more research and novel methods to document the distinctive experiences and characteristics of this under-represented group. As Sarah Wild states, headteacher at Limpsfield Grange (the only UK specialist school for autistic girls and a project partner):'We're trying to get politicians to understand that this is a group who are massively under-diagnosed, but also that there are not the right services out there for them or the awareness, including GPs who don't understand what female autism looks like.'Autistic women describe experiences of invisibility, masking their identities and "faking it" to be socially compliant. This results in high levels of anxiety, which impact on mental well-being, self-confidence and self-worth, leading to increased rates of depression, self-harm and eating disorders. There is, therefore, a need to support self-development and well-being in autistic females, especially during adolescence; a crucial time for identity formation during which autistic difficulties and differences can become more pronounced in the face of increasing socio-emotional pressures. Through its interdisciplinary and participatory approach, the project will produce new knowledge about the female autistic experience that will be of value to the autism community, the creative industries, education, health and social care. This has the potential to inform the development of more female-sensitive diagnostic measures and services, highlighting the creative contribution of this community and challenging existing stereotypes. The project aims to fully engage the female autistic community in the research about them and to transform public understanding and awareness. To achieve this we will: 1. Co-create a programme of participatory arts workshops and creative toolkit, enabling autistic female adolescents to articulate their lived experiences and identities; 2. Conduct a specially designed survey amongst a) autistic women and b) autism experts to achieve consensus on commonly shared features of female autism.3. Deliver and trial a programme of participatory arts workshops in different educational settings; 4. Evaluate the efficacy of participatory arts workshops to enhance self-perception, mental well-being and self-esteem using new and established measures; 5. Co-produce and test the feasibility of a participatory arts peer mentoring model in educational and community settings, involving autistic girls and women in collaborative and creative activities; 6. Engage the female autistic community in participatory research and dissemination; 7. Create an international interdisciplinary participatory research network 8.Disseminate research findings to stakeholders and the wider public through a programme of impact and public engagement. The project builds on the team's previous work exploring autistic identities, perception and creativity, and on methods successfully trialled in a pilot programme of participatory arts workshops using drama and interactive media to explore how female autistic students perceived and engaged with their environments and each other. A public engagement programme includes symposia, roundtables, films, educational resources, a media installation, performances and interactive website. Through this collaboration across disciplinary boundaries, using established and novel methods, we will produce outcomes that are more than the sum of their parts, transforming the face of autism research through female autistic voices.

Playing A/Part是一项跨学科合作（戏剧，媒体艺术，心理学），与自闭症女孩（11-18岁）和女性合作，通过研究团队成员开创的创新，创造性和参与性方法调查自闭症的女性面孔。即兴表演和互动媒体被用作表达女性自闭症社区生活经验的创造性工具。该项目响应了更多研究和新方法的呼吁，以记录这一代表性不足的群体的独特经历和特点。正如Limpsfield Grange（英国唯一一所自闭症女孩专科学校和项目合作伙伴）的校长Sarah Wild所说：“我们正试图让政治家们了解这是一个严重诊断不足的群体，但也没有为他们提供正确的服务或意识，包括不了解女性自闭症的全科医生。“自闭症女性描述了隐形的经历，掩盖了她们的身份，并“假装”符合社会要求。这导致高度焦虑，影响心理健康，自信和自我价值，导致抑郁，自我伤害和饮食失调的比例增加。因此，有必要支持自闭症女性的自我发展和福祉，特别是在青春期;这是形成身份的关键时期，在此期间，自闭症的困难和差异在面对日益增加的社会情感压力时可能变得更加明显。通过其跨学科和参与性方法，该项目将产生关于女性自闭症经验的新知识，这将对自闭症社区、创意产业、教育、卫生和社会护理具有价值。这有可能为制定对女性更敏感的诊断措施和服务提供信息，突出这一群体的创造性贡献，并挑战现有的陈规定型观念。该项目旨在让女性自闭症患者群体充分参与关于她们的研究，并改变公众的理解和认识。为了实现这一目标，我们将：1。共同创建一个参与性艺术工作坊和创意工具包的计划，使自闭症女性青少年能够表达她们的生活经历和身份; 2.在a）孤独症女性和B）孤独症专家中进行一项特别设计的调查，以就女性孤独症的共同特征达成共识。在不同的教育环境中提供和试验参与性艺术工作坊计划; 4.评估参与式艺术工作坊的成效，以新的和既定的措施提高自我认知，精神健康和自尊; 5.在教育和社区环境中共同制作和测试参与式艺术同伴指导模式的可行性，让自闭症女孩和妇女参与协作和创造性活动; 6.让女性自闭症患者群体参与参与研究和传播; 7.创建一个国际跨学科参与性研究网络8.通过影响和公众参与方案，向利益攸关方和更广泛的公众传播研究成果。该项目建立在团队以前探索自闭症身份，感知和创造力的工作基础上，并在参与式艺术工作坊的试点计划中成功试用了方法，使用戏剧和互动媒体来探索女性自闭症学生如何感知和参与他们的环境和彼此。公众参与方案包括专题讨论会、圆桌会议、电影、教育资源、媒体装置、表演和互动网站。通过这种跨学科的合作，使用成熟和新颖的方法，我们将产生超过其部分总和的结果，通过女性自闭症患者的声音改变自闭症研究的面貌。

项目成果

Ethical issues in participatory arts methods for young people with adverse childhood experiences.

• DOI: 10.1111/hex.13314
• 发表时间: 2021-10
• 期刊: Health expectations : an international journal of public participation in health care and health policy
• 作者: Pavarini G;Smith LM;Shaughnessy N;Mankee-Williams A;Thirumalai JK;Russell N;Bhui K
• 通讯作者: Bhui K

Autistic phenomenology: past, present, and potential future.

• DOI: 10.3389/fpsyg.2023.1287209
• 发表时间: 2023
• 期刊: Frontiers in psychology
• 影响因子: 3.8
• 作者: Green J;Shaughnessy N
• 通讯作者: Shaughnessy N

Learning with Labyrinths: Neurodivergent journeying towards new concepts of care and creative pedagogy through participatory community autism research

迷宫学习：通过参与性社区自闭症研究，神经发散之旅走向护理和创造性教育学的新概念

• 发表时间: 2022
• 期刊: Critical Studies in Teaching and Learning
• 作者: Shaughnessy, NK

Autism from the inside-out

由内而外的自闭症

• 发表时间: 2024
• 期刊: Psychologist
• 影响因子: 0.6
• 作者: Williams E.

Ethical Issues in Participatory Arts Methods for Young People with Adverse Childhood Experiences (Preprint)

针对有不良童年经历的年轻人的参与性艺术方法中的伦理问题（预印本）

• DOI: 10.2196/preprints.27954
• 发表时间: 2021
• 作者: Pavarini G