The Role of Good Governance and the Rule of Law in Building Public Trust in Data-Driven Responses to Public Health Emergencies

这项研究将法律、伦理、公民审议、公共卫生和数据科学结合在一起，旨在建立一个独特的以艺术、人文和价值观为基础的框架，以帮助理解和应对以数据为导向的公共卫生突发事件应对措施带来的挑战，以及建立公众信任的必要性。在他们的新冠肺炎回应中，各州依靠以数据为导向的方法来证明影响深远的措施的合理性，这些措施包括关闭整个商业部门和旅行类别，限制个人自由，并要求遵守新的接触者追踪和社会距离技术。为了有效，这些措施必须在国际上协调一致，在全国范围内采用，并得到很高比例的公众的遵守。信任是国家采纳和公众遵守的基础：对国际机构、措施及其科学基础的信任。本项目将审查这种信任的两个关键推动因素：善政和法治。它旨在就国际和国家机构如何在其设计和实施以数据为导向的突发公共卫生事件应对措施的过程中建立公众信任提供实际指导。这项研究由四个相互关联的工作包组成，它们审查(1)突发公共卫生事件的国际治理框架(2)以价值观为基础的原则，以指导包括政府、议会、法院和警察在内的国家机构以数据为导向的应对措施(3)鉴于所需的个人数据共享的规模，可能需要对(国家和国际)数据治理进行改革(4)由公民陪审团审议以数据为导向的措施的可信度以及可能需要哪些额外的保障措施。

This research, at the intersection of law, ethics, citizen deliberation, public health and data science, aims to develop a distinct arts and humanities, values-based framework to help understand and address the challenges posed by data-driven responses to public health emergencies and the need to build public trust.In their COVID-19 responses, states have relied on data-driven approaches to justify far-reaching measures including closing entire business sectors and categories of travel, curtailing personal liberties and requiring compliance with new technologies for contact tracing and social distancing.To be effective, such measures must be internationally co-ordinated, nationally adopted and adhered to by a high proportion of the public. Trust underpins both national adoption and public adherence: trust in international institutions, in the measures, and their scientific foundations.This project will examine two critical enablers of that trust: good governance and the rule of law. It aims to provide practical guidance on how international and national institutions can build public trust in the processes by which they design and implement data-driven responses to public health emergencies. The research consists of four interconnected work packages which examine(1) International governance frameworks for public health emergencies(2) Values-based principles to guide data-driven responses by national institutions including governments, parliaments, courts and police(3) Reforms that may be needed to data governance (national and international) given the scale of personal data sharing that is required(4) A citizen jury deliberation on the trustworthiness of data-driven measures and what additional safeguards may be needed.