The Role of Good Governance and the Rule of Law in Building Public Trust in Data-Driven Responses to Public Health Emergencies

这项研究在法律、伦理、公民审议、公共卫生和数据科学的交叉点上，旨在建立一个独特的艺术和人文、基于价值观的框架，以帮助理解和解决数据驱动的公共卫生突发事件应对所带来的挑战，以及建立公众信任的必要性。在他们的COVID-19应对中，各国依靠数据驱动的方法来证明采取影响深远的措施是合理的，包括关闭整个商业部门和旅行类别，限制个人自由，并要求使用追踪接触者和保持社交距离的新技术。要想有效，这些措施必须得到国际协调，在全国范围内被大部分公众采用和遵守。信任是国家采用和公众遵守的基础：对国际机构、措施及其科学基础的信任。本项目将审查这种信任的两个关键推动因素：善政和法治。它旨在就国际和国家机构如何在设计和实施数据驱动的公共卫生紧急情况应对措施的过程中建立公众信任提供实用指导。该研究由四个相互关联的工作包组成，这些工作包审查了（1）公共卫生紧急情况的国际治理框架（2）基于价值观的原则，以指导包括政府，议会，法院和警察（3）数据治理可能需要的改革（国内和国际）鉴于所需的个人数据共享规模（4）公民陪审团审议数据驱动措施的可信度以及可能需要的额外保障措施。

This research, at the intersection of law, ethics, citizen deliberation, public health and data science, aims to develop a distinct arts and humanities, values-based framework to help understand and address the challenges posed by data-driven responses to public health emergencies and the need to build public trust.In their COVID-19 responses, states have relied on data-driven approaches to justify far-reaching measures including closing entire business sectors and categories of travel, curtailing personal liberties and requiring compliance with new technologies for contact tracing and social distancing.To be effective, such measures must be internationally co-ordinated, nationally adopted and adhered to by a high proportion of the public. Trust underpins both national adoption and public adherence: trust in international institutions, in the measures, and their scientific foundations.This project will examine two critical enablers of that trust: good governance and the rule of law. It aims to provide practical guidance on how international and national institutions can build public trust in the processes by which they design and implement data-driven responses to public health emergencies. The research consists of four interconnected work packages which examine(1) International governance frameworks for public health emergencies(2) Values-based principles to guide data-driven responses by national institutions including governments, parliaments, courts and police(3) Reforms that may be needed to data governance (national and international) given the scale of personal data sharing that is required(4) A citizen jury deliberation on the trustworthiness of data-driven measures and what additional safeguards may be needed.