Engaging food hypersensitive communities in citizen science

当你有食物过敏（FH）时，吃在外面准备的食物会危及生活质量，并引起压力和焦虑，因为它与意外或不必要的过敏原摄入的可能性增加有关。这对FSA来说是一个重大挑战，因为他们的目标是保护英国消费者免受FH带来的健康风险。拥有FH的公民科学家非常适合积极参与解决这一问题，并提供详细的第一手观察和关于他们吃离家准备的食物的经历的反思。一种符合ECSA公民科学十项原则的公民科学方法，让那些根据定义有动机避免过敏原的人参与其中，可以提供有关在餐馆、咖啡馆、工作场所、学校、医院以及在家庭社交场合吃别人准备的食物的详细、相关和集中的信息。与致力于改善该领域政策和实践的专家和利益相关者组织合作是该试点研究项目的关键，他们作为合作者的投入是得出和实现项目目标的基础：(1)从食物过敏的公民那里收集关键信息，了解他们在食用在家外准备的食物时如何评估过敏原风险；(2)评估让FH作为公民科学家参与的未来可行性。这些目标将在三个工作包（WPs）工作包1 （M1-2）中得到解决。我们将与主要利益相关者和公民举行研讨会，共同设计公民科学家将被要求收集的数据。我们与合作者达成一致，一个由75-100人组成的公民科学团队将由(a) 16岁以上的FH患者和(b) 16岁以下患有FH的儿童的父母组成。我们将努力确保通过我们的合作者和现有联系人招募符合食物过敏性质和严重程度、地理位置和社会人口特征的参与者。工作包2 （M3-6）我们将邀请公民科学家在活动期间或活动结束后不久通过手机/平板电脑或PC在线提供有关他们外出就餐体验的信息。WP1中设计的信息将使用通常用于公民科学设置的软件收集（ESRI Survey123）。他们还可以上传照片，以配合他们记录的其他信息。我们将全程协调和支持公民科学参与者，并对他们的贡献给予鼓励和认可。将邀请10%的公民科学家通过简短访谈进行反思。工作包3 （M7）我们将举办一个在线研讨会，与公民科学家进行对话，以反映和反馈项目成果。与项目合作者和合作伙伴的第二次在线研讨会将讨论项目发现、公民科学家对这些发现的反思，以及对相关行业、政策和从业者利益相关者的影响。

Eating food prepared outside the home when you have a food hypersensitivity (FH) risks quality of life and causes stress and anxiety, because it is associated with an increased likelihood of accidental or unwanted consumption of allergens. This is a significant challenge to the FSA given that their aim is to protect the UK consumer from the health risks posed by FH. Citizen scientists with FH are ideally placed to actively engage with addressing this issue and contribute detailed first-hand observations and reflections around their experiences of eating food prepared away from the home. A citizen science approach that is compliant with the ECSA ten principles of citizen science, engaging those that by definition are motivated to avoid allergens, can provide detailed, relevant and focused information about eating outside the home encounters spanning restaurants, cafes, work places, schools, hospitals as well as at social occasions in homes eating food that is prepared by others. Engaging with experts and stakeholder organisations that are committed to improving policy and practise in this area is key to this pilot research project and their input as collaborators is foundational to deriving and addressing the aims of the project: to (1) collect key information from citizens with a food hypersensitivity about how they assess allergen risk when eating food prepared outside the home, and (2) assess the future feasibility of engaging those with FH as citizen scientists. These aims will be addressed in 3 work packages (WPs)Work Package 1 (M1-2) We will hold workshops with key stakeholders and citizens to codesign the data that the citizen scientists will be asked to collect. We have agreed with our collaborators that a citizen science team of between 75-100 people will consist of (a) people with a FH aged over 16 and (b) parents of children aged under 16 with a FH. We will seek to ensure a mix of participants in terms of nature and severity of food hypersensitivity, geographic location and socio-demographic characteristics who will be recruited through our collaborators and through existing contacts.Work Package 2 (M3-6) We will engage the citizen scientists by asking them to contribute information about their eating out experience online via their phones/tablets or PC at the time of, or soon after the event. The information designed in WP1 will be collected using software often used in citizen science settings (ESRI Survey123). They can also upload photos to accompany other information that they record. We will coordinate and support the citizen science participants throughout and offer encouragement and acknowledgement of their contributions. Reflection will be invited from 10% of the citizen scientists in short interviews. Work Package 3 (M7) We will hold an online workshop to have a dialogue with the citizen scientists to reflect and feedback on project findings. A second online workshop with project collaborators and partners will discuss the project findings, the reflections of citizen scientists on these, and what the implications are for relevant industry, policy and practitioner stakeholders.