Consumer information materials and a communication aid for diagnostic tests for breast disease

乳腺疾病诊断测试的消费者信息材料和交流辅助工具

• 批准号: nhmrc : 153807
• 负责人: Prof Alexandra Barratt
• 金额: $ 7.06万
• 依托单位国家: 澳大利亚
• 项目类别: NHMRC Project Grants
• 财政年份: 2001
• 资助国家: 澳大利亚
• 起止时间: 2001-01-01 至 2002-12-31
• 项目状态: 已结题
• 来源: https://researchdata.edu.au/consumer-information-materials-breast-disease/76982
• 关键词: Consumer; information; materials; communication; aid

Many studies have now shown that the majority of patients want to participate in clinical decisions about medical treatments they might receive. As a result, information materials are being developed to help consumers and doctors work together to reach satisfying treatment decisions which are based on the best available evidence and also reflect the individual patient's needs and preferences about the treatment options. Very little is known, however, about whether consumers also want to participate in decisions about whether to have a medical test. Tests can be trivial, such as a blood or urine test, or quite major and invasive, such as a biopsy or a colonoscopy. People considering a medical test might want to know the answers to the following questions: What is my chance of having the disease being tested for? If the test result is positive what is the chance I have the disease? If the test result is negative what is the chance I have the disease anyway? How will the test result influence treatment of my condition? What are possible side-effects of the test? Generally information materials about medical tests only describe the test itself, and do not contain the information people need to answer these questions. Even doctors may not have to hand the data needed to answer these questions. Yet without this information, consumers cannot make truly informed and rational choices about whether to have the test. This project aims to find out whether consumers want to participate in decisions about medical tests, what information they would want to do this, and to develop and trial information materials and a communication aid for a small number of breast cancer tests. We will use tests for diagnosing breast cancer as our model but we anticipate the work will be applicable across a wide range of medical tests.

许多研究现在表明，大多数患者希望参与有关他们可能接受的医疗治疗的临床决策。因此，正在开发信息材料，以帮助消费者和医生共同努力，根据现有的最佳证据做出令人满意的治疗决定，并反映个别患者对治疗方案的需求和偏好。然而，关于消费者是否也想参与是否进行体检的决定，人们知之甚少。检查可以是微不足道的，比如血液或尿液检查，也可以是非常重要的侵入性检查，比如活检或结肠镜检查。考虑进行医学测试的人可能想知道以下问题的答案：我接受疾病测试的机会有多大？如果检测结果是阳性的，我得这种病的几率有多大？如果检测结果是阴性的，我得这种病的可能性有多大？检测结果将如何影响我病情的治疗？这项测试可能会有什么副作用？一般来说，关于医学测试的信息材料只描述了测试本身，并不包含人们回答这些问题所需的信息。即使是医生也可能不必提供回答这些问题所需的数据。然而，如果没有这些信息，消费者就无法就是否进行测试做出真正知情和理性的选择。这个项目旨在找出消费者是否想要参与关于医学测试的决策，他们想要这样做的信息是什么，并为少量的乳腺癌测试开发和试用信息材料和沟通辅助工具。我们将使用诊断乳腺癌的测试作为我们的模型，但我们预计这项工作将适用于广泛的医学测试。