Engaging Users in Smell Self-Care at Home

让用户在家进行气味自我护理

• 批准号: EP/W031574/1
• 负责人: Marianna Obrist
• 金额: $ 51.36万
• 依托单位: University College London
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=EP%2FW031574%2F1
• 关键词: Engaging; Users; Smell; Self; Care

Smell disorders have long been neglected, despite known links to Parkinson's, dementia and to shorter life expectancy. Recent public and patient engagement work by the charity Fifth Sense (FS) has shown a failure to provide a good service for such patients in the UK. It also showed the need for better treatment and support.This lack of support has been made worse in the COVID-pandemic, leaving patients and doctors struggling to advise those affected by smell disorders. This adds to the mental health problems that are linked to the loss of smell. To date, based on UK infection rates, nearly 500,000 people have lasting symptoms of smell loss or change (>4 weeks). These may be linked to other Long-COVID symptoms such as fatigue, memory problems and brain fog.Smell training, a type of smell care, now has several studies showing it can help recover smell function. This is very true in older people, where people suffer a natural decline of the sense of smell. However, current smell training methods are limited to pens soaked in smells or jars of essential oils. A digital solution can overcome these drawbacks and enable digital smell training. This may be delivered in multiple settings including medical, care homes and private homes. The latter sits at the heart of this project's ambition, namely, to enable smell self-care (I-smell) at home. A key question this project will try to answer is how and why people will take on and accept I-smell, and keep using it in regular, daily exercises? We all know that it is hard work to set up a routine and keeping it, is even harder. Whilst more people are aware of the importance of smell care in the wider public due to the pandemic, it is easily forgotten and lost when the sense of smell works or seems to work 'well' again. We will study how I-smell is taken into daily routines and any barriers to that. This will be measured by looking at the impact on people's quality of life and wellbeing. We will gain first-hand early-stage user feedback from chosen households that will take part in a 6-month feasibility study using a novel digital technology in their homes. We aim to establish a clear understanding of peoples' underlying reasons, opinions and motivations to engage with I-smell over time. This feasibility study will inform the design of future health and care technology solutions, as well as informing the design of future clinical and population trials. It will also allow us to explore designs for tomorrow's home that go beyond the current focus on control of environmental conditions such as energy, lighting, temperature and humidity. We will consider how this type of technology will work with existing smart home devices such as Google Home or Alexa.Our long-term vision is to add self-monitoring records for our sense of smell (akin to hearing and sight tests) into electronic health records (EHR). This would provide a great opportunity to make treatments personal for individuals and allow timely actions by GPs. For example, data could be analysed by artificial intelligence that could lead to earlier diagnosis of diseases like Parkinson's by a decade. Introducing digital solutions for smell self-care can help maintain and extend independent living at home and improve the quality of life.

嗅觉障碍长期以来一直被忽视，尽管已知与帕金森氏症、痴呆症和较短的预期寿命有关。慈善机构Five Sense(FS)最近开展的公共和患者参与工作表明，在英国，未能为这类患者提供良好的服务。这也表明了需要更好的治疗和支持。这种支持的缺乏在COVID大流行中变得更加严重，使得患者和医生难以为那些受到气味障碍影响的人提供建议。这增加了与嗅觉丧失有关的心理健康问题。到目前为止，根据英国的感染率，近50万人有持久的气味丧失或改变的症状(&gt；4周)。这些可能与其他长期的COVID症状有关，如疲劳、记忆问题和脑雾。嗅觉训练是一种嗅觉护理，现在有几项研究表明，它可以帮助恢复嗅觉功能。这在老年人中是非常真实的，因为他们的嗅觉会自然下降。然而，目前的气味训练方法仅限于浸泡在气味中的钢笔或罐子中的精油。数字解决方案可以克服这些缺点，并实现数字气味培训。这可以在包括医疗、护理之家和私人之家在内的多个环境中提供。后者是该项目雄心壮志的核心，即在家中实现嗅觉自我护理(I-Sell)。这个项目试图回答的一个关键问题是，人们将如何以及为什么会接受和接受i-Smell，并在日常锻炼中继续使用它？我们都知道，建立一个常规是一项艰巨的工作，而保持它，更是难上加难。虽然由于这场大流行，越来越多的人意识到了气味护理在更广泛的公众中的重要性，但当嗅觉工作或似乎再次发挥作用时，人们很容易忘记和失去这一点。我们将研究I-Sell是如何融入日常生活的，以及它所面临的障碍。这将通过观察对人们生活质量和福祉的影响来衡量。我们将从选定的家庭那里获得第一手的早期用户反馈，这些家庭将参与一项为期6个月的可行性研究，在他们的家中使用一种新的数字技术。我们的目标是随着时间的推移，对人们参与i-Sell的潜在原因、观点和动机建立一个清晰的理解。这项可行性研究将为未来健康和护理技术解决方案的设计提供信息，并为未来临床和人群试验的设计提供信息。它还将使我们能够探索未来住宅的设计，超越目前对能源、照明、温度和湿度等环境条件的控制。我们将考虑这类技术将如何与现有的智能家居设备如Google Home或Alex.合作。我们的长期愿景是将我们的嗅觉自我监测记录(类似于听力和视力测试)添加到电子健康记录(EHR)中。这将提供一个很好的机会，让个人接受治疗，并允许全科医生及时采取行动。例如，人工智能可以分析数据，这可能会使帕金森氏症等疾病的诊断提前十年。引入气味自我护理的数字解决方案，可以帮助维持和延长在家独立生活，提高生活质量。

项目成果

Third Wave or Winter? The Past and Future of Smell in HCI

第三波还是冬天？

• DOI: 10.1145/3544549.3583749
• 发表时间: 2023
• 作者: Brooks J

Nose Gym: An Interactive Smell Training Solution

Nose Gym：交互式嗅觉训练解决方案

• DOI: 10.1145/3544549.3583906
• 发表时间: 2023
• 作者: Besevli C