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CARERS IN THE 21ST CENTURY: DEVELOPING THE EVIDENCE BASE

21 世纪的护理人员：发展证据基础

基本信息

批准号：
ES/J021229/1
负责人：
Mary Larkin
金额：
$ 1.96万
依托单位：
De Montfort University
依托单位国家：
英国
项目类别：
Research Grant
财政年份：
2012
资助国家：
英国
起止时间：
2012 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=ES%2FJ021229%2F1
关键词：
CARERS 21ST CENTURY DEVELOPING EVIDENCE

项目摘要

This innovative and original seminar series will contribute to improved quality of life and health and wellbeing for those in our society who give so much to those who need care and without whom, the delivery of health and social care might not be sustained. This group of people are CARERS. The body of research about carers and caring issues that has burgeoned since the emergence of the concept of the 'carer' in the 1980s has played a key role in the growing awareness of carers' needs and contributed to policy initiatives developed to improve their quality of life and health and wellbeing and that of those they support. However, carers face new challenges in the 21st century which have yet to be addressed. Examples of these are changes in carers' profiles, changing demographics and changing family structures resulting in multiple/inter-generational caring as well as the increasing timescale of caring because of medical advances. In addition, policy initiatives such as personalisation and those which mean carers have responsibility for managing a greater range of health conditions at home will impact significantly on the experience of caring. Such changes and policies will reshape the nature of the 'care' that carers will have to deliver.In order to ensure that the improvements to carers quality of life and health and wellbeing continue at this point in time there is a need for a better understanding of these challenges for carers and a coherent evidence base about policy, services and interventions within health and social care that can improve carers quality of life and those they support. The proposed seminar series has been developed by a team of multi institutional researchers and research participants engaged in carers research through a process of extensive consultation with key stakeholders. These stakeholders include service users, carers, leading academic researchers, and representatives from the third sector, local authorities, the Department of Health and the Standing Commission on Carers. It aims to provide a forum for around 30 participants in which the gaps in existing knowledge can be rigorously evaluated, and both the future agenda for carers research and the modus operandi required for its success and lasting impact can be established. Although the focus will mainly be on the UK, the seminars will include international contributors in order to maximise the opportunity provided by the seminar series to gain new perspectives and understandings about carers and caring issues within this country.There will be four seminars in key locations with the following themes: Carers and policy in the 21st Century, Policy in practice, Recognising different needs and Effective support for carers. Presenters have been secured, session titles agreed and a draft programme has been put together. Those who have agreed to contribute are drawn from a wide range of backgrounds and disciplines; they include leading academic researchers, early career researchers, carers, service users, voluntary organisations, representatives from government departments such as the Department of Health and Department for Work and Pensions, and postgraduate students. Contributors will also co-present with carers and PhD students who have participated in their research. The creative approach embodied in this proposal to securing positive outcomes for those who will have to deal with the demands of caring in the 21st century has been widely endorsed. The establishment of a 'carers research network' in particular has been commended as timely in progressing the carers research agenda. Furthermore, this seminar series is aligned with current and future policy trends such as the Quality, Innovation, Productivity and Prevention agenda (QIPP), the Carers Strategy (Department of Health, 2010), the Dilnot Commission Report (Commission on Funding of Care and Support, 2011) and NICE (2011) guidelines on patient & public involvement.

这一创新和原创的系列研讨会将有助于改善我们社会中那些为需要照顾的人付出如此多的人的生活质量、健康和福祉，没有他们，健康和社会照顾的提供可能无法持续。这群人是护理人员。自20世纪80年代出现“照顾者”概念以来，关于照顾者和照顾问题的研究迅速兴起，在提高对照顾者需求的认识方面发挥了关键作用，并促进了为改善照顾者及其所支持的人的生活质量、健康和福祉而制定的政策举措。然而，护理人员在21世纪面临着新的挑战，这些挑战尚未得到解决。这方面的例子有：照料者概况的变化、人口结构的变化和家庭结构的变化，这些变化导致多代/代际照料，以及医疗进步导致照料时间的延长。此外，诸如个性化和那些意味着护理人员有责任管理更广泛的家庭健康状况的政策举措将对护理经验产生重大影响。这些变化和政策将重塑护理人员必须提供的“护理”的性质。为了确保护理人员的生活质量以及健康和福祉在目前继续得到改善，需要更好地了解护理人员面临的这些挑战，并需要有一个连贯的证据基础，说明保健和社会护理领域的政策、服务和干预措施可以改善护理人员及其所支持的人的生活质量。拟议的系列研讨会是由一个由多机构研究人员和研究参与者组成的团队在与主要利益相关者广泛协商的过程中制定的。这些利益攸关方包括服务使用者、护理人员、主要学术研究人员以及来自第三部门、地方当局、卫生部和护理人员常设委员会的代表。它旨在为大约30名参与者提供一个论坛，在这个论坛上，可以严格评估现有知识方面的差距，并确定护理研究的未来议程及其成功和持久影响所需的运作方式。虽然重点将主要集中在英国，但研讨会将包括国际贡献者，以便最大限度地利用研讨会系列提供的机会，获得有关英国护理人员和护理问题的新观点和理解。四场研讨会将在主要地点举行，主题分别为：二十一世纪的照顾者与政策、实践中的政策、认识不同需要及有效支援照顾者。发言者已确定，会议名称已商定，计划草案也已拟定。同意投稿的人来自广泛的背景和学科；他们包括领先的学术研究人员、早期职业研究人员、护理人员、服务使用者、志愿组织、卫生部、工作和养老金部等政府部门的代表以及研究生。投稿人还将与参与他们研究的护理人员和博士生共同展示。这项提案所体现的创造性方法，为那些将不得不应对21世纪关怀需求的人确保积极的结果，已得到广泛认可。特别是“照顾者研究网络”的建立，被称赞为及时推进照顾者研究议程。此外，该系列研讨会符合当前和未来的政策趋势，如质量、创新、生产力和预防议程（QIPP）、护理人员战略（卫生部，2010年）、迪尔洛特委员会报告（护理和支助资金委员会，2011年）和NICE（2011年）关于患者和公众参与的指导方针。