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Autistic adults online: Understanding and enabling autistic sociality in digital networking environments

在线自闭症成人：在数字网络环境中理解和实现自闭症社交

基本信息

批准号：
ES/T016507/1
负责人：
Nelya Koteyko
金额：
$ 43.2万
依托单位：
Queen Mary University of London
依托单位国家：
英国
项目类别：
Research Grant
财政年份：
2020
资助国家：
英国
起止时间：
2020 至无数据
项目状态：
已结题

来源：
https://gtr.ukri.org/projects?ref=ES%2FT016507%2F1
关键词：
Autistic adults online Understanding enabling

项目摘要

The proposed study will provide a systematic linguistic and ethnographic analysis of how social networking sites/SNS are used by autistic adults for social interaction. The last few decades have witnessed a dramatic increase in the recorded prevalence of autism, with an estimated 1% of the adult population in the UK having an autism spectrum disorder. Most autism research, technology design, and service provision has focused on children and adults who cannot live independently, with little attention to how adults can be supported to succeed in work and social participation. The recognised importance of online networking in initiating and maintaining social connections has led to an increased focus on SNS as spaces of social engagement and social support provision. Our overall aim is to examine how the SNS-based opportunities for interaction and relationship building but also digital surveillance are shaping autistic user experiences, and how the understanding of communicative practices in their social and technological contexts can help design autism-friendly social networking environments.Specifically, the project will pursue the following objectives via four work packages: (1) observe online behaviour of a demographically diverse group of autistic Facebook and Twitter users; (2) conduct semi-structured interviews with these adults to examine both individual motives and social norms shaping their SNS interactions; (3) analyse the extent and the ways autistic SNS users align in online conversation threads; (4) in collaboration with autistic adults, synthesize findings from these analyses, identify the enabling and inhibiting factors emerging from SNS use, and examine the opportunities for software co-design. By drawing on advances in linguistic ethnography, disability studies, and human-computer interaction design we will be able examine the multi-dimensional and dynamic nature of autistic sociality in SNS. The results will inform a broader set of debates about the uses of SNS by socially isolated groups as well as provide empirical understanding of the contextual parameters that shape SNS interaction of autistic users. Such understanding is crucial for moving autism support beyond individualized, behaviour-based interventions and towards community and network-centred approaches.

拟议的研究将提供一个系统的语言学和人种学分析社交网站/SNS是如何使用的自闭症成年人的社会互动。在过去的几十年里，自闭症的患病率急剧增加，据估计，英国1%的成年人患有自闭症谱系障碍。大多数自闭症研究、技术设计和服务提供都集中在无法独立生活的儿童和成人身上，很少关注如何支持成人在工作和社会参与中取得成功。人们认识到在线网络在发起和维持社会联系方面的重要性，这导致人们越来越关注SNS作为社会参与和社会支持提供的空间。我们的总体目标是研究基于SNS的互动和关系建立机会以及数字监控如何塑造自闭症用户体验，以及如何理解社交和技术背景下的沟通实践可以帮助设计自闭症友好的社交网络环境。具体来说，该项目将通过四个工作包实现以下目标：（1）观察一组不同人口统计学特征的自闭症Facebook和Twitter用户的在线行为;（2）对这些成年人进行半结构化访谈，以检查塑造他们SNS互动的个人动机和社会规范;（3）分析自闭症SNS用户在线对话线程的程度和方式;（4）与自闭症成年人合作，综合这些分析的结果，确定SNS使用中出现的有利因素和抑制因素，并研究软件协同设计的机会。通过借鉴语言民族志，残疾研究和人机交互设计的进展，我们将能够研究SNS中自闭症社交的多维和动态性质。结果将通知一组更广泛的辩论使用SNS的社会孤立的群体，以及提供经验的理解的上下文参数，形状SNS互动的自闭症用户。这种理解对于将自闭症支助从基于行为的个性化干预转向以社区和网络为中心的方法至关重要。