Everyday Life with Irritable Bowel Syndrome (IBS): Accessibility, Mobilities and Belonging

肠易激综合症 (IBS) 的日常生活：可及性、活动性和归属感

• 批准号: ES/V009397/1
• 负责人: Lauren White
• 金额: $ 11.09万
• 依托单位: University of Sheffield
• 依托单位国家: 英国
• 项目类别: Fellowship
• 财政年份: 2020
• 资助国家: 英国
• 起止时间: 2020 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=ES%2FV009397%2F1
• 关键词: Everyday; Life; Irritable; Bowel; Syndrome

Irritable Bowel Syndrome (IBS) is a common health condition involving symptoms of diarrhoea, constipation, pain, wind and an urgency to use the toilet (The IBS Network, 2020). It affects up to one-third of the UK population and is one of the most commonly reported conditions seen in general practice (Guts UK, 2020). Despite the fact that IBS often has symptoms that have a profound impact on the everyday lives of those who experience it, it is often underestimated and overlooked in both public life and research agendas. Little research has advanced understandings of the social implications of living with an incredibly common, but hidden condition. For example, it has explored what it means to experience symptoms that require urgent access to a toilet in public life. My research has increased knowledge of living with IBS, how its navigated in everyday practice, and what social and political issues a focus are brought to the fore through the lens of IBS. Specifically, the research offered a contribution by demonstrating the impact that IBS can have on the places people can or cannot go, the routines and reorganisations of their working day, and the social interactions and things that come to matter when living with a common, but often dismissed, health condition. The findings include issues of toilet accessibility whether that be a visit to a friends house or a trip to the toilet on a train journey, the role of 'Can't-Wait Cards' and 'Radar Keys' that can prioritise access to toilets in public life, together with the reassurances gained from having tissues and spare change kept in a person's back pocket and within the zip of a handbag. The research also highlighted the role of daily routines - from the pressures of getting up in the morning and getting to work on time, to the time allowed in the toilet at work and the comfort and privacy afforded in using such a space. My work has shown that these matters are not only important for those living with IBS, but are relatable features for everyone, and are thus important for an inclusive society as a whole. This fellowship enables me to communicate these social messages to multiple publics, including academic, the general public and policy audiences.The core activities of this fellowship are directed towards disseminating key findings, bringing to attention the important accounts of living with a common condition that often falls under the public and academic radar. Communicatingsuchfindingswillbeachievedthroughthecarefulinterplayoftellingpersonalaccounts of lived experiences whilst also highlighting the social and political implications of these narratives in broader public life - from being given time at work to go to the toilet, to being granted disabled toilet access in spite of IBS being an 'invisible' health condition. These findings will come to life in the form of written pieces for academic audiences including journal articles, blog posts and presenting at UK and international conferences. This fellowship will also include the production of a short video detailing everyday accounts of living with IBS. This will be showcased at a stakeholder engagement workshop, aimed at those living with IBS and those who also provide support including charities, local councils, occupational health groups and healthcare professionals. Finally, the latter period of this fellowship will involve developing a new research agenda andpilot research that covers life (and work) on the move and the implications of public toilet access. This builds not only on my research to date, but the growing social pertinence of toilet access and working life coming to the fore in political and social agendas. This fellowship will be hosted in the Department of Sociological Studies at the University of Sheffield. The work of this fellowship compliments the sociological research agendas in the department and across the university that include health, inequalities and everyday life.

肠易激综合征（IBS）是一种常见的健康状况，涉及腹泻，便秘，疼痛，风和紧急使用厕所的症状（IBS网络，2020）。它影响多达三分之一的英国人口，是全科实践中最常报告的疾病之一（Guts UK，2020）。尽管IBS的症状对患者的日常生活产生了深远的影响，但在公共生活和研究议程中，它往往被低估和忽视。很少有研究能够进一步理解生活在一个令人难以置信的普遍但隐藏的条件下的社会影响。例如，它探讨了在公共生活中出现需要紧急上厕所的症状意味着什么。我的研究增加了生活与IBS的知识，它如何在日常实践中导航，以及什么社会和政治问题的焦点是通过IBS的透镜带到前面。具体来说，这项研究通过展示IBS对人们可以或不能去的地方的影响，他们工作日的常规和重组，以及社会互动和生活在共同但经常被忽视的健康状况中的重要事物，做出了贡献。调查结果包括厕所可达性问题，无论是去朋友家还是在火车旅行中去厕所，“等不及卡”和“雷达钥匙”的作用可以优先进入公共生活中的厕所，以及将纸巾和零钱放在一个人的后口袋和手提包的拉链内所获得的再确认。这项研究还强调了日常生活的作用-从早上起床和准时上班的压力，到工作中允许上厕所的时间，以及使用这种空间所提供的舒适和隐私。我的工作表明，这些问题不仅对IBS患者很重要，而且对每个人来说都是相关的特征，因此对整个包容性社会很重要。这个奖学金使我能够将这些社会信息传达给多个公众，包括学术界、普通公众和政策受众。这个奖学金的核心活动是传播关键发现，引起人们对一种常见状况的关注，这种状况往往福尔斯公众和学术界的雷达下。通过讲述个人生活经历的精心互动，同时也强调这些叙述在更广泛的公共生活中的社会和政治影响-从在工作中获得上厕所的时间，到尽管IBS是一种“看不见的”健康状况，但仍允许残疾人上厕所。这些研究结果将以书面形式呈现给学术观众，包括期刊文章，博客文章以及在英国和国际会议上发表。该奖学金还将包括制作一个简短的视频，详细介绍IBS患者的日常生活。这将在利益相关者参与研讨会上展示，针对那些患有IBS的人以及那些提供支持的人，包括慈善机构，地方议会，职业健康团体和医疗保健专业人员。最后，该奖学金的后期将涉及制定一个新的研究议程和试点研究，涵盖移动中的生活（和工作）以及公共厕所的影响。这不仅建立在我迄今为止的研究基础上，而且还建立在厕所使用和工作生活在政治和社会议程中日益突出的社会相关性上。该研究金将由谢菲尔德大学社会学研究系主办。该奖学金的工作是对该部门和整个大学的社会学研究议程的补充，包括健康，不平等和日常生活。

项目成果

'I have to know where I can go': mundane mobilities and everyday public toilet access for people living with irritable bowel syndrome (IBS)

“我必须知道我可以去哪里”：肠易激综合症 (IBS) 患者的日常出行和日常公共厕所使用

• DOI: 10.1080/14649365.2021.1975165
• 发表时间: 2021
• 期刊: Social & Cultural Geography
• 影响因子: 2.5
• 作者: White L

My dear diaries: Following, valuing and reflecting on moments with research materials

我亲爱的日记：用研究材料追随、珍惜和反思时刻

• DOI: 10.1177/14687941211039409
• 发表时间: 2021
• 期刊: Qualitative Research
• 影响因子: 3.6
• 作者: White L

Like clockwork? (Re)imagining rhythms and routines when living with irritable bowel syndrome (IBS)

有规律的？

• DOI: 10.1111/1467-9566.13504
• 发表时间: 2022
• 期刊: Sociology of Health & Illness
• 影响因子: 2.9
• 作者: White L

From the Home to the (Hand)bag: Negotiating Privacy in Personal Life when Living with Irritable Bowel Syndrome (IBS)

从家到（手）包：肠易激综合症 (IBS) 患者的个人生活隐私谈判

• DOI: 10.1177/00380385221122460
• 发表时间: 2022
• 期刊: Sociology
• 影响因子: 2.9
• 作者: White L

Solidarity Through Routine: Relations and rhythms of regular lockdown walks

日常团结：定期封锁步行的关系和节奏

• DOI: 10.51428/tsr.rqjv8242
• 发表时间: 2021
• 期刊: The Sociological Review Magazine
• 作者: White L