'Be Seen: an arts-led participatory approach to understanding 'big data' in young people's mental health and use of images by young people

“被看到”：一种以艺术为主导的参与式方法，用于理解年轻人心理健康的“大数据”以及年轻人对图像的使用

• 批准号: MR/T046597/1
• 负责人: Ann John
• 金额: $ 10.04万
• 依托单位: Swansea University
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2020
• 资助国家: 英国
• 起止时间: 2020 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MR%2FT046597%2F1
• 关键词: Seen; arts; led; participatory; approach

'Big data' is a buzzword in many areas of our lives. The rapid linkage of information from a wide range of sources - health, social media- has resulted in hope for a new era of research into young people's mental health. The Adolescent Mental Health Data Platform (ADP) aims to harness this step-change bringing together multiple sources of 'big data' anonymously and securely in one place, protecting young people's privacy. The data is made 'research ready'-it doesn't need tidying or cleaning-so approved researchers can deliver results in a timely way. This is all great but working with young people from diverse backgrounds, who can be hard to reach, needs to be a central part of this new era- so they can express their feelings about their data, often created as they go about their daily lives, being used for research and influence the questions being asked. We have made a start on this working with paid student interns (A level and University), MQ's Young People's Advisory Group and creating ADP Ambassadors. As part of the ADP platform we also developed the 'Be Heard' initiative. This brings together the voices of young people affected by mental health issues and directs the type of content we create for the page- such as a video about how we anonymise data made by young people for young people, who asked for it to be made. We were surprised they wanted to know those details but that's the point!This engagement work has also highlighted the quickly changing nature of the way young people communicate, particularly online. Image-based platforms have replaced the once popular forums. Young people are keen to share their stories and now do this predominantly through imagery (both photography and moving images/ videos). This project will bring young people together with professionals from arts, data science and medicine to develop the 'Be Heard' initiative into 'Be Seen.' A series of workshops will be held with young people aged 16-24. These workshops will equip young people with the creative thinking skills in terms of how they want to be seen and include discussions around the use of their data. We will use our real 'big data' projects as examples. Workshop participants will include those who have experienced mental health problems or who have self-harmed. One workshop will be held with young people from the Gypsy and Traveller community and include discussion of a current 'big data' project in their community. Another with Refugee and Asylum Seeker young people. The workshops will enable young people to be more analytical about their own creative stories. Issues such as ownership of these images and the tension between the intent behind a post and it's interpretation by those viewing it will be talked about. These workshops will also explore alternatives to photography including filmmaking and creative spaces in virtual reality. Young people's perspectives will steer the direction of the project. Following these workshops researchers will work one-to-one with young people should they wish. This will include young people who have experienced self-harm and mental health issues to create pieces of artwork. Through this one-on-one work, alternatives to photography will be explored and young people will be equipped with the tools to manage any tension between intent and interpretation and to create imagery as catharsis without increasing risk to themselves or others. Stringent safety criteria will be employed. No graphic imagery will be used and instead abstract alternatives such as virtual or augmented reality spaces will be explored. The artwork created by these young people will be showcased in an online exhibition and film. The exhibition will be open to the public and will highlight the critical thinking and skills covered in the creation of pieces. The exhibition will also aim to raise awareness of issues around the use of 'big data' and narratives through images, facilitate open talking and reduce stigma.

“大数据”是我们生活中许多领域的流行语。来自健康、社交媒体等广泛来源的信息的快速链接，为年轻人心理健康研究的新时代带来了希望。青少年心理健康数据平台（ADP）旨在利用这一步的变化，将多个来源的“大数据”匿名和安全地汇集在一个地方，保护年轻人的隐私。这些数据是“研究准备”的--它不需要整理或清理--所以经过批准的研究人员可以及时地提供结果。这一切都很棒，但与来自不同背景的年轻人合作，他们可能很难接触到，需要成为这个新时代的核心部分-这样他们就可以表达他们对数据的感受，这些数据通常是在他们日常生活中创建的，用于研究并影响被问到的问题。我们已经开始与带薪实习生（A级和大学），MQ的年轻人咨询小组和创建ADP大使合作。作为ADP平台的一部分，我们还制定了“被听到”倡议。这汇集了受心理健康问题影响的年轻人的声音，并指导我们为页面创建的内容类型-例如关于我们如何为年轻人制作匿名数据的视频，他们要求制作。我们很惊讶他们想知道这些细节，但这就是重点！这项参与工作还突出表明，年轻人的沟通方式，特别是在线沟通方式正在迅速变化。基于图像的平台已经取代了曾经流行的论坛。年轻人热衷于分享他们的故事，现在主要通过图像（摄影和移动图像/视频）来分享。该项目将把年轻人与艺术，数据科学和医学专业人士聚集在一起，将“被听到”倡议发展为“被看到”。“将为16至24岁的年轻人举办一系列讲习班。这些讲习班将使年轻人具备创造性思维技能，了解他们希望被如何看待，并包括围绕如何使用他们的数据进行讨论。我们将以我们真实的“大数据”项目为例。研讨会的参与者将包括那些经历过心理健康问题或自我伤害的人。将为吉普赛人和游民社区的年轻人举办一个讲习班，讨论他们社区目前的“大数据”项目。另一个是难民和寻求庇护的年轻人。这些讲习班将使年轻人能够更多地分析自己的创造性故事。诸如这些图像的所有权以及帖子背后的意图与观看者对其的解释之间的紧张关系等问题将被讨论。这些研讨会还将探索摄影的替代品，包括虚拟现实中的电影制作和创意空间。年轻人的观点将指导项目的方向。在这些讲习班之后，研究人员将与年轻人一对一地工作，如果他们愿意的话。这将包括那些经历过自我伤害和心理健康问题的年轻人来创作艺术品。通过这种一对一的工作，将探索摄影的替代方法，年轻人将掌握管理意图和解释之间的任何紧张关系的工具，并在不增加自己或他人风险的情况下创造图像作为宣泄。将采用严格的安全标准。没有图形图像将被使用，而是抽象的替代品，如虚拟或增强现实空间将被探索。这些年轻人创作的艺术品将在网上展览和电影中展出。展览将向公众开放，并将突出作品创作中所涵盖的批判性思维和技能。该展览还旨在提高人们对使用“大数据”和通过图像进行叙述的问题的认识，促进公开对话并减少污名化。

项目成果

Can routine data be used to estimate the mental health service use of children and young people living on Gypsy and Traveller sites in Wales? A feasibility study.

• DOI: 10.1371/journal.pone.0281504
• 发表时间: 2023
• 期刊: PloS one
• 影响因子: 3.7