MLTC-M Community of Practice in ECR training on best practice patient and public involvement with diverse populations

MLTC-M ECR 实践社区培训关于患者和公众参与不同人群的最佳实践

• 批准号: MR/X004341/1
• 负责人: Stephanie Hanley
• 金额: $ 5.04万
• 依托单位: University of Birmingham
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2022
• 资助国家: 英国
• 起止时间: 2022 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MR%2FX004341%2F1
• 关键词: MLTC; Community; Practice; ECR; training

Recruiting and supporting patients and the public to get involved in health research can be challenging for junior researchers, especially when the people they want to speak to have two or more long term health conditions. We want to set up a 'Community of Practice' to help junior researchers, patients and members of the public learn from one another about health research and all the different ways people can get involved. Our community will include researchers, patient representatives and public involvement organisers from several research projects studying people affected by two or more long term health conditions. We will meet, both face to face and online, to share our experiences and the various approaches we have taken to reaching and involving people from as many different backgrounds as possible. This will include everything from setting up a research project to sharing the results at the end. We will also train junior researchers in how to assess how well an approach is working, in different settings and health conditions, and help them set up a support network.We will share the lessons we have learned with other researchers and patient groups. We hope that this will result in patient and public involvement in research into long term conditions that is respectful and represents a wide cross section of the UK population. This in turn will lead to findings that reflect the concerns of patients and the public, and health care and treatments that fit with the reality of people's lives.

招募和支持患者和公众参与健康研究对初级研究人员来说可能是一项挑战，特别是当他们想要发言的人有两种或两种以上的长期健康状况时。我们希望建立一个“实践社区”，以帮助初级研究人员，患者和公众成员相互学习有关健康研究和人们可以参与的所有不同方式。我们的社区将包括研究人员，患者代表和公众参与组织者，他们来自几个研究项目，研究受两种或两种以上长期健康状况影响的人。我们将举行会议，无论是面对面还是在线，分享我们的经验和我们采取的各种方法，以接触和参与来自尽可能多的不同背景的人。这将包括从建立一个研究项目到最后分享结果的一切。我们还将培训初级研究人员如何评估一种方法在不同环境和健康状况下的效果，并帮助他们建立支持网络。我们将与其他研究人员和患者团体分享我们学到的经验教训。我们希望这将导致患者和公众参与研究长期的条件是尊重和代表广泛的英国人口的横截面。这反过来将导致反映患者和公众关注的调查结果，以及符合人们生活现实的医疗保健和治疗。