Crowdsourcing for adolescent health: development and evaluation of a tool to collect data on the state and determinants of adolescent physical health

青少年健康众包：开发和评估收集青少年身体健康状况和决定因素数据的工具

• 批准号: MR/X029050/1
• 负责人: Andrew James Williams
• 金额: $ 14.89万
• 依托单位: University of St Andrews
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=MR%2FX029050%2F1
• 关键词: Crowdsourcing; adolescent; health; development; evaluation

While growing up through adolescence and going on to get work we develop behaviours, like how much we exercise or eat, that impact on the rest of our lives. Research is needed to help us understand what behaviours change our health for better or worse, and what influences those behaviours. Some behaviours are easier to measure, and we even have technology in our phones that can count how many steps we do each day. However, other behaviours are more difficult to measure, they might be embarrassing or harder for people to explain because they relate to feelings. We think it's important that people can record things at the time they happen (rather trying to recall them later). Health researchers need to be able to collect several types of data from people as they go about their lives, and it has been recommended that smartphone apps might be a way to do this.Apps have been used in research to help us understand different diseases like COVID but in apps like these, people have a reason to pick up the phone and use it - they get a very clear benefit from it. So, we need to explore the reasons a teenager would use a health app. We have already heard from young people taking part in our own research or other studies that they use apps to track physical activity, diet, and periods, for example. Parents have also told us that tracking health is a good use of a phone for teenagers. We want to know if people would be motivated to use the app to report when something makes their health better or worse, or changes their behaviour. Our idea is that by sharing information with other young people about places or situations that improve or reduce their health, young people will become citizen scientists. The information collected becoming evidence to share with people who make decisions like head teachers or politicians, so that the places or situations improve, and everyone can be healthier.We will also make sure that the app is easy and quick to use, only asking appropriate questions. The app will need to keep the information private and safely share the data with researchers. During the project we will develop these different features of the app with young people and parents to make sure it fits with what people want and would use, being fun where appropriate but also serious and reassuring where required - we understand that health data is important to people and we want people to feel comfortable using this app. We will start by working with small groups of young people from different places and backgrounds to make sure the app works for lots of people. Eventually we will run big tests of the app with schools and communities. Events will be organised for lots of young people to share their thoughts and ideas, called hack-a-thons and design jams, helping to design the app. Young people will also decide on a name for the app. The app will then be used in research studies to help us learn how to help improve health. The young people themselves will also be scientists able to review and use their own data to improve their health and wellbeing, and make where they live, study and work healthier places.

在青春期成长并继续工作的同时，我们发展行为，例如我们的运动或饮食，这会影响我们余生。需要研究以帮助我们了解哪些行为会使我们的健康改变更好或更糟，什么会影响这些行为。某些行为更容易衡量，我们甚至在手机中拥有技术，可以计算我们每天要做的几个步骤。但是，其他行为更难衡量，人们可能会尴尬或更难解释，因为它们与感觉有关。我们认为，重要的是，人们在发生时可以记录事物（而不是稍后再回忆起）。健康研究人员需要能够从人生的生活中收集几种类型的数据，并且建议智能手机应用程序可能是一种做到这一点的方式。应用程序已用于研究中，以帮助我们了解诸如covid之类的不同疾病，但是在这样的应用程序中，人们有理由拿起手机并使用它 - 他们从中获得了非常明显的收益。因此，我们需要探讨青少年使用健康应用程序的原因。例如，我们已经从参加我们自己的研究或其他研究的年轻人那里听说，他们使用应用程序跟踪体育锻炼，饮食和时期。父母还告诉我们，跟踪健康是对青少年的充分利用。我们想知道，当人们的健康状况更好或更糟或改变其行为时，人们是否有动力使用该应用程序报告。我们的想法是，通过与其他年轻人分享信息有关改善或降低健康状况的地方或情况的信息，年轻人将成为公民科学家。收集到的信息成为与做出校长或政客这样决定的人分享的证据，以便在地点或情况改善，每个人都可以更健康。我们还将确保该应用程序易于迅速使用，只提出适当的问题。该应用将需要保持信息私密，并与研究人员安全地共享数据。在项目期间，我们将与年轻人和父母一起开发这些应用程序的这些不同功能，以确保它与人们想要和会使用的东西相吻合，在适当的地方变得有趣，但在需要时也很认真和令人放心 - 我们知道健康数据对人们很重要，我们希望人们使用此应用程序感到舒适。我们将首先与来自不同地方和背景的小组年轻人合作​​，以确保该应用程序适合许多人。最终，我们将与学校和社区一起对该应用程序进行大量测试。活动将被组织为许多年轻人分享他们的想法和想法，称为hack-a-thons and Design Jams，有助于设计该应用程序。年轻人还将决定该应用程序的名称。然后，该应用将用于研究研究，以帮助我们学习如何帮助改善健康。年轻人本身还将是能够审查和使用自己的数据来改善健康和福祉的科学家，并使他们的住所，学习和工作更健康。