Crowdsourcing for adolescent health: development and evaluation of a tool to collect data on the state and determinants of adolescent physical health

青少年健康众包：开发和评估收集青少年身体健康状况和决定因素数据的工具

• 批准号: MR/X029050/2
• 负责人: Andrew James Williams
• 金额: $ 13.94万
• 依托单位: University of Edinburgh
• 依托单位国家: 英国
• 项目类别: Research Grant
• 财政年份: 2023
• 资助国家: 英国
• 起止时间: 2023 至 无数据
• 项目状态: 未结题
• 来源: https://gtr.ukri.org/projects?ref=MR%2FX029050%2F2
• 关键词: Crowdsourcing; adolescent; health; development; evaluation

While growing up through adolescence and going on to get work we develop behaviours, like how much we exercise or eat, that impact on the rest of our lives. Research is needed to help us understand what behaviours change our health for better or worse, and what influences those behaviours. Some behaviours are easier to measure, and we even have technology in our phones that can count how many steps we do each day. However, other behaviours are more difficult to measure, they might be embarrassing or harder for people to explain because they relate to feelings. We think it's important that people can record things at the time they happen (rather trying to recall them later). Health researchers need to be able to collect several types of data from people as they go about their lives, and it has been recommended that smartphone apps might be a way to do this.Apps have been used in research to help us understand different diseases like COVID but in apps like these, people have a reason to pick up the phone and use it - they get a very clear benefit from it. So, we need to explore the reasons a teenager would use a health app. We have already heard from young people taking part in our own research or other studies that they use apps to track physical activity, diet, and periods, for example. Parents have also told us that tracking health is a good use of a phone for teenagers. We want to know if people would be motivated to use the app to report when something makes their health better or worse, or changes their behaviour. Our idea is that by sharing information with other young people about places or situations that improve or reduce their health, young people will become citizen scientists. The information collected becoming evidence to share with people who make decisions like head teachers or politicians, so that the places or situations improve, and everyone can be healthier.We will also make sure that the app is easy and quick to use, only asking appropriate questions. The app will need to keep the information private and safely share the data with researchers. During the project we will develop these different features of the app with young people and parents to make sure it fits with what people want and would use, being fun where appropriate but also serious and reassuring where required - we understand that health data is important to people and we want people to feel comfortable using this app. We will start by working with small groups of young people from different places and backgrounds to make sure the app works for lots of people. Eventually we will run big tests of the app with schools and communities. Events will be organised for lots of young people to share their thoughts and ideas, called hack-a-thons and design jams, helping to design the app. Young people will also decide on a name for the app. The app will then be used in research studies to help us learn how to help improve health. The young people themselves will also be scientists able to review and use their own data to improve their health and wellbeing, and make where they live, study and work healthier places.

在青春期长大并继续工作的过程中，我们会发展出影响我们余生的行为，比如我们锻炼或饮食的多少。需要研究来帮助我们了解哪些行为会使我们的健康变得更好或更坏，以及是什么影响了这些行为。有些行为更容易测量，我们的手机甚至可以计算我们每天走了多少步。然而，其他行为更难衡量，它们可能会让人尴尬或更难解释，因为它们与情感有关。我们认为人们能够在事情发生时记录它们（而不是试图稍后回忆它们）很重要。健康研究人员需要能够从人们的生活中收集几种类型的数据，有人建议智能手机应用程序可能是一种方法。应用程序已被用于研究，以帮助我们了解不同的疾病，如COVID，但在像这样的应用程序中，人们有理由拿起手机并使用它-他们从中获得了非常明显的好处。所以，我们需要探索青少年使用健康应用程序的原因。我们已经从参与我们自己的研究或其他研究的年轻人那里听说，他们使用应用程序来跟踪身体活动，饮食和月经。家长们还告诉我们，跟踪健康状况是青少年使用手机的一个很好的方法。我们想知道人们是否会有动力使用该应用程序来报告什么事情使他们的健康状况变好或变坏，或者改变他们的行为。我们的想法是，通过与其他年轻人分享有关改善或降低其健康的地方或情况的信息，年轻人将成为公民科学家。收集的信息成为证据，与校长或政治家等决策者分享，以便地方或情况得到改善，每个人都能更健康。我们还将确保该应用程序易于快速使用，只提出适当的问题。该应用程序需要保持信息的私密性，并与研究人员安全地共享数据。在项目期间，我们将与年轻人和家长一起开发应用程序的这些不同功能，以确保它符合人们的需求和使用，在适当的时候开玩笑，但在需要的时候也要严肃和令人放心-我们理解健康数据对人们很重要，我们希望人们在使用这个应用程序时感到舒适。我们将首先与来自不同地方的年轻人小组合作，背景，以确保该应用程序适合很多人。最终，我们将与学校和社区一起对应用程序进行大规模测试。我们将组织各种活动，让很多年轻人分享他们的想法和想法，这些活动被称为黑客马拉松和设计果酱，以帮助设计应用程序。年轻人还将为应用程序决定一个名字。然后，该应用程序将用于研究，以帮助我们学习如何帮助改善健康。年轻人自己也将成为科学家，能够审查和使用自己的数据来改善他们的健康和福祉，使他们生活，学习和工作的地方更健康。