Engaging Roma women in the co-design of an antenatal care information resource (ERicar)

在联合王国的移徙妇女在健康和福利方面，特别是在怀孕和分娩方面，经历了不平等。来自中欧和东欧的罗姆妇女在原籍国和整个欧洲都受到保健方面的障碍，导致她们缺乏对保健服务的参与。此外，像其他移民妇女一样，她们往往不习惯英国卫生服务的工作方式。语言和文化障碍、种族偏见和歧视也存在，导致产前保健使用率低。本研究旨在解决这一问题，通过了解这些妇女对现有产前保健信息的需求和偏好，创建一个共同设计的无障碍产前保健社区信息资源，为不断发展的产前保健信息资源原型的设计考虑提供信息。目的与一群罗姆妇女探讨，与他们合作，评估在资源审查后选择的一系列现有产前信息资源的可及性和可接受性，探索和讨论产前保健信息形式的选择，例如专门满足他们需求的数字资源，共同创建以社区为基础的产前保健信息资源的低分辨率纸质原型方法1-2个月：对罗姆妇女生育需求的范围审查；3-5个月：利用基于设计的参与式方法，为罗姆妇女举办一系列最多8个2小时的社区参与性讲习班，讨论参与保健和社会护理、家庭疗法、怀孕期间的饮食和锻炼、吸烟和酒精的影响以及与怀孕有关的健康问题，以确定她们的知识方面的问题和差距。通过音频和视频数据收集方法提供了证据途径的说明。6-8个月：定性分析和项目报告撰写，最终在利益相关者参与研讨会上结束，以确定项目咨询小组的可扩展性，并为其他被边缘化的新来的移民妇女群体提供潜在的可转移见解。结果：a)与共同设计的产前保健信息资源原型一起提出的设计考虑；b)最终设计将在更广泛的罗姆妇女社区中进行推广、试点和评估；c)可在其他边缘化移民社区中复制的包容性和参与性最佳实践方法；e)改善罗姆妇女的围产期和孕产妇结局。

Background Migrant women in the UK experience inequalities in health and wellbeing and in particular, their experiences of pregnancy and childbirth. Roma women from Central and Eastern Europe suffer barriers to healthcare in their original countries and across Europe contributing to a lack of engagement with health services. Further, like other migrant women, they are often unaccustomed to the way health services work in the UK. Language and cultural barriers, racial bias and discrimination also exist, leading to low uptake of antenatal care. This study aims to address this issue by creating a co-designed accessible antenatal care community information resource with a group of these women, through understanding their needs and preferences regarding existing antenatal care information, to inform design considerations for an evolving prototype of an antenatal care information resource. Objectives To explore with a group of Roma women, their experiences of healthcare services and cultural beliefs about pregnancy and childbirth To work with them to assess the accessibility and acceptability of a range of available antenatal information resources selected following a review of resources To explore and discuss options for forms of antenatal care information for example digital resources catering specifically to their needs To co-create a low-resolution paper prototype of a community-based antenatal care information resource that meets their needs Methods Months 1-2: Scoping review on Roma women's maternity needs, and?review of publicly accessible antenatal information resources to produce a selection for the women to consider Months 3-5: A series of up to eight 2-hour community participatory workshops using design-based participatory methods with Roma women will discuss engagement with health and social care, home remedies, diet and exercise during pregnancy, the effects of smoking and alcohol, and pregnancy-related health problems, to identify issues and gaps in their knowledge. An account of the evidence pathway is provided through audio and visual data collection methods. Months 6-8: Qualitative analysis and project report writing, culminating in a stakeholder engagement workshop, to determine scalability with project advisory group, with potential transferable insights to other marginalised newly arrived groups of migrant women. Outcomes: a) design considerations presented alongside the co-designed prototype for an antenatal care information resource, b) final design to be scaled up, piloted and evaluated with the wider Roma community of women, c) an inclusive and participatory approach for best practice that can be replicated with other marginalised groups of migrant communities, e) improved perinatal and maternal outcomes for Roma women.