Improving the Health of Women with Physical Disabilities

这项申请的目的是制作一份书本那么长的文件，介绍残疾妇女健康的当前知识状况，并为研究、教育和实践提出建议。这份文件将是一个广泛项目的最终成果，该项目正在从研究人员、临床医生和残疾妇女那里征求信息和建议。该项目的目标是：1)a)生殖健康、b)心理健康、c)健康促进/次级条件、以及d)残疾妇女获得医疗保健等专题领域的专家将编写白皮书，介绍研究、临床和社区干预以及专业和消费者教育方面的科学状况，并就资助的研究优先事项提出建议。2)白皮书将广泛分发给研究人员、残疾妇女、卫生保健专业人员、教育工作者和公共卫生管理人员，以征求意见。3)残疾妇女健康研究人员、联邦和私营资助机构以及残疾妇女本身的代表将召开会议，讨论并制定关于这些领域的研究、专业和消费者教育以及临床实践的建议。4)将编写一份文件，概述每个领域的知识状况，以及研究、专业和消费者教育以及临床实践方面的建议优先事项，并分发给研究人员、消费者、医疗保健提供者、公共卫生政策制定者以及联邦和私人资助机构。残疾妇女研究中心全面参与了自1992年以来开展的一系列活动，以促进对这一被忽视领域的研究。通过利用这个由研究人员、医疗保健专业人员和消费者组成的网络，他们将召集并促进四个指定主题领域中的每个领域的工作组编制白皮书。这些团体将通过互联网和电话会议通信进行会面。贝勒医学院公共事务办公室将通过媒体宣布，这些论文将在互联网上张贴征求意见，并以硬拷贝形式分发给表示有兴趣参与这一进程的个人和组织。在由疾病控制和预防中心资助的研讨会上 预防和埃塞尔·路易丝·阿姆斯特朗基金会将于2002年春季在休斯顿举行，受邀的与会者将讨论这些论文和来自该领域的评论。然后，工作组成员将把白皮书扩展为每个子主题领域的书籍章节。这些章节将批判性地回顾文献；评论文化素养和贫困的影响；将信息与2010年健康人的目标联系起来；讨论对公共卫生保健政策的影响；介绍研讨会的讨论；并为研究、教育和临床实践提供建议。最终文件将由一家享有全国声誉的出版商出版，并向国内外的研究人员、教育工作者、临床医生和消费者发布其上市公告。

The aim of this application is to produce a book-length document that will present the current state of knowledge on the health of women with disabilities and recommendations for research, education, and practice. The document will be the final product of an extensive project that is being undertaken to solicit information and recommendations from researchers, clinicians, and women with disabilities. The objectives of this project are: 1) Experts in the topic areas of a) reproductive health, b) psychosocial health, c) health promotion/secondary conditions, and d) access to health care for women with disabilities, will produce white papers presenting the state of the science in research, clinical and community interventions, and professional and consumer education, with recommendations for funded research priorities. 2) White papers will be disseminated widely to researchers, women with disabilities, health care professionals, educators, and public health administrators for comment. 3) Representatives of researchers in the health of women with disabilities, federal and private funding agencies, and women with disabilities themselves, will convene to discuss and develop recommendations for research, professional and consumer education, and clinical practice in these areas. 4) A document summarizing the state of knowledge in each of these areas and recommended priorities for research, professional and consumer education, and clinical practice will be produced and distributed to researchers, consumers, health care providers, public health policy makers, and federal and private funding agencies. The Center for Research on Women with Disabilities has been integrally involved with a series of activities that have taken place since 1992 to stimulate research in this neglected area. By tapping into this network of researchers, health care professionals, and consumers, they will convene and facilitate work groups in each of the four designated topic areas to produce white papers. The groups will meet via internet and teleconference communication. The Baylor College of Medicine Office of Public Affairs will send announcements through the media that these papers will be posted for comment on the internet and disseminated in hard copy to individuals and organizations expressing an interest in participating in this process. At a symposium funded by the Centers for Disease Control and Prevention and the Ethel Louise Armstrong Foundation that will take place in Houston in Spring, 2002, invited participants will discuss these papers and comments from the field. Members of the work groups will then expand the white papers into book chapters for each sub-topic area. These chapters will critically review the literature; comment on the effect of culture literacy, and poverty; relate the information to the objectives of Healthy People 2010; discuss implications for public health care policy; present discussions from the symposium; and offer recommendations for research, education, and clinical practice. The final document will be published by a publisher of national reputation, with announcements of its availability disseminated to researchers, educators, clinicians, and consumers nationally and internationally.