THE PARENT EXPERT: A POST-DIAGNOSIS INTERVENTION

家长专家：诊断后干预

• 批准号: 6402017
• 负责人: SUSAN SULLIVAN-BOLYAI
• 金额: $ 4.02万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2001
• 资助国家: 美国
• 起止时间: 2001-08-14 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/6402017
• 关键词: behavior therapy; behavioral /social science research tag; clinical research; clinical trials; emotional adjustment; human subject; human therapy evaluation; insulin dependent diabetes mellitus; maternal behavior; middle childhood (6-11); preschool child (1-5); role model; social support network

DESCRIPTION: (Adapted from the applicant's abstract) This study will examine the feasibility of a discharge intervention using parent experts as supplemental support for parents of children (1-10 years of age) newly diagnosed with type 1 diabetes. Specific aims are to: 1) determine if implementing a transitional support system using parents of children with type 1 diabetes to make home and/or phone contact with mothers is feasible; 2) refine parent expert curriculum to meet support needs for mothers; 3) compare concern, stress, feelings of competence, sleep patterns, illness, and perception of access to resources, between mothers receiving the intervention to those sent home with traditional support during the first week post-discharge, 1 & 6 months after diagnosis; 4) compare metabolic control, outpatient visits, hospitalization and consultation calls, between children receiving the intervention vs. those receiving traditional support during the first week post-discharge, 1 & 6 months after diagnosis; and 5) describe the experience of the parent experts. A feasibility study is planned with a mixed method prospective and randomized controlled clinical trial design. A convenience sample of 40 mothers of children between the ages of 1 and 10 will be recruited from two regional diabetes centers. At each site, 20 mothers will be randomly assigned to either the experimental (n=10) or control (n=10) stratified by age to study parent concerns and support needs in developmental stages. The findings will be used to design future intervention support programs for mothers caring for children newly diagnosed with type 1 diabetes.

描述：（根据申请人的摘要改编）这项研究将检查 使用家长专家作为出院干预的可行性 对孩子的父母（1-10岁）的补充支持 诊断为1型糖尿病。具体目的是：1）确定是否 使用类型儿童的父母实施过渡支持系统 1个糖尿病可以与母亲联系和/或电话联系； 2） 精炼家长专家课程，以满足母亲的支持需求； 3）比较 关注，压力，能力感，睡眠模式，疾病和 在接受干预的母亲之间，对获得资源的感知 在第一周以传统支持回家的人 诊断后1和6个月的入院后； 4）比较代谢控制， 儿童之间的门诊就诊，住院和咨询电话 接受干预措施与那些在接受传统支持的人 入院后的第一周，诊断后1和6个月； 5）描述 家长专家的经验。计划的可行性研究是混合的 方法前瞻性和随机对照临床试验设计。一个 40位1至10岁儿童母亲的便利样本将 可以从两个区域糖尿病中心招募。在每个网站上，有20个母亲将 随机分配给实验（n = 10）或对照（n = 10） 按年龄分层研究父母的关注和支持需求 阶段。这些发现将用于设计未来的干预支持 照顾新诊断为1型糖尿病的儿童的母亲计划。

项目成果

Maternal management behaviors for young children with type 1 diabetes.

• DOI: 10.1097/00005721-200305000-00005
• 发表时间: 2003-05-01
• 期刊: MCN. The American journal of maternal child nursing
• 作者: Sullivan-Bolyai, Susan;Knafl, Kathleen;Grey, Margaret
• 通讯作者: Grey, Margaret

Helping other mothers effectively work at raising young children with type 1 diabetes.

帮助其他母亲有效地抚养患有 1 型糖尿病的幼儿。

• DOI: 10.1177/014572170403000319
• 发表时间: 2004
• 期刊: The Diabetes educator
• 作者: Sullivan-Bolyai,Susan;Grey,Margaret;Deatrick,Janet;Gruppuso,Philip;Giraitis,Pamela;Tamborlane,William
• 通讯作者: Tamborlane,William