EXPERIENCE OF PARENTING YOUNG CHILDREN WITH IDDM

抚养患有 IDDM 的幼儿的经验

• 批准号: 2839246
• 负责人: SUSAN SULLIVAN-BOLYAI
• 金额: $ 0.62万
• 依托单位: YALE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 1998
• 资助国家: 美国
• 起止时间: 1998-11-16 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/2839246
• 关键词: clinical research; family nursing; human subject; insulin dependent diabetes mellitus; longitudinal human study; parent offspring interaction; patient care management; pediatric nursing; preschool child (1-5); psychological adaptation; social adjustment

Diabetes medical management in young children is a tremendous responsibility for parents. Little is known about how parents manage medical and developmental needs of this population. This descriptive longitudinal study will explore the experience of parenting a child three years and under with IDDM. The specific aims are to: 1) describe day-to-day medical and developmental management including parent-child interactions; 2) describe parental concerns related to medical, developmental, and family management issues; 3) describe parental resourcefulness in utilizing the surrounding environment for coping. Data will be collected over a 6 month period from 20 families using a task-time tool, NCAST Parent-Child Feeding and Teaching Interaction Assessment scales, a modified Diabetic Management Concern Questionnaire, the Coping Health Inventory for Parents Questionnaire, the Impact-on-Family Scale and open-ended interviews. Analysis will include t-tests and thematic procedures. It is hoped that the study will help nurses work with these families in a more focused manner.

幼儿的糖尿病医疗管理是一个巨大的 父母的责任。 关于父母的管理知之甚少 该人群的医疗和发展需求。 这个描述性 纵向研究将探索育儿的经验 三年及以下IDDM。 具体目的是：1）描述 日常医疗和发展管理，包括亲子 互动； 2）描述与医学有关的父母关注 发展和家庭管理问题； 3）描述父母 利用周围环境应对的机智。 数据将在6个月内使用20个家庭收集 任务时间工具，ncast亲子喂养和教学互动 评估量表，改良的糖尿病管理问题 问卷调查表，为父母问卷的应对健康清单， 在户主的影响力规模和开放式访谈。 分析将 包括t检验和主题程序。 希望这项研究 将帮助护士以更加集中的方式与这些家庭合作。

项目成果

Key issues in chronic illness research: lessons from the study of children with diabetes.

慢性病研究的关键问题：糖尿病儿童研究的教训。

• DOI: 10.1016/s0882-5963(99)80064-5
• 发表时间: 1999
• 期刊: Journal of pediatric nursing.
• 作者: Grey,M;Sullivan-Bolyai,S
• 通讯作者: Sullivan-Bolyai,S

Mothers' experiences raising young children with type 1 diabetes.

• DOI: 10.1111/j.1744-6155.2002.tb00158.x
• 发表时间: 2002-07-01
• 期刊: Journal for specialists in pediatric nursing : JSPN
• 作者: Sullivan-Bolyai, Susan;Deatrick, Janet;Grey, Margaret
• 通讯作者: Grey, Margaret

Constant vigilance: mothers' work parenting young children with type 1 diabetes.

• DOI: 10.1053/jpdn.2003.4
• 发表时间: 2003-02-01
• 期刊: Journal of pediatric nursing
• 作者: Sullivan-Bolyai, S;Deatrick, J;Grey, M
• 通讯作者: Grey, M