PETS-D: Parent Education Through Simulation-Diabetes

PETS-D：通过模拟糖尿病进行家长教育

基本信息

批准号：
8248276
负责人：
SUSAN SULLIVAN-BOLYAI
金额：
$ 40.43万
依托单位：
UNIV OF MASSACHUSETTS MED SCH WORCESTER
依托单位国家：
美国
项目类别：
财政年份：
2010
资助国家：
美国
起止时间：
2010-04-30 至 2014-03-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/8248276
关键词：
12 year old Absenteeism at work Accident and Emergency department Adolescent Affect Age American Anxiety Asthma Blood Glucose Camping Carbohydrates Caregivers Caring Child Child Care Child health care Childhood Chronic Chronic Disease Clinic Visits Clinical Clinical Trials Cognitive Communities Competence Complex Data Day Care Decision Making Devices Diabetes Mellitus Diagnosis Disease Disease Management Education Educational Intervention Educational process of instructing Emergency Situation Emotional Stress Environment Event Family Fathers Feeling Focus Groups Frequencies Fright Glycosylated hemoglobin A Goals Health Personnel Healthcare Hemoglobin Human Hyperglycemia Hypoglycemia Incidence Informal Social Control Injection of therapeutic agent Insulin Insulin-Dependent Diabetes Mellitus Intervention Interview Knowledge Lead Learning Length of Stay Life Measures Mediating Mediator of activation protein Medical Medical Students Metabolic Diseases Mothers Newly Diagnosed Nursing Faculty Nursing Students Outcome Parenting Education Parents Patient Simulation Patients Personal Satisfaction Physiological Pilot Projects Problem Solving Process Randomized Randomized Controlled Trials Regulation Reporting Resource Sharing School-Age Population Schools Self Management Single Parent Site Stress Technology Testing Time Training Treatment Efficacy Visit Visual Work age group base blood glucose regulation diabetes control diabetes education diabetes management diabetes mellitus nursing experience family management glucose monitor grandparent health care service utilization improved indexing innovation intervention effect medical complication novel nursing standards pet animal public health relevance simulation skills theories tool trend

项目摘要

DESCRIPTION (provided by applicant): Type 1 diabetes mellitus (T1DM) is the most common metabolic disorder in childhood with an incidence of approximately 1.7 per 1000 children under the age of 20. Studies report that parents are overwhelmed during the early days, after initial diagnosis, due to the complex management needs of young children with T1DM. Adding to this stress is the reduction in the average length of hospital stay from 5 days to 2 days. The proposed study builds on data collected during a focus group and 2 pilot studies that support the use of a theoretically derived (self regulation theory) intervention using a human patient simulator (HPS) as a means to enhance parent teaching and diabetes management during the early days of a child's diagnosis. For example, findings from a recent pilot study support undertaking this full-scale clinical trial with subjects who received the education with HPS having improved knowledge, problem-solving, confidence scores, and lower anxiety, and fear of hypoglycemia scores. The primary aim of this multi-site randomized controlled trial is to evaluate the efficacy of the intervention (HPS-PTE=Human Patient Simulation-Parent Teaching Enhancement) with 128 indexed mothers or fathers of children (5-12 years old) newly diagnosed with T1DM. We hypothesize that parents who are randomized to receive HPS-PTE will have significantly higher diabetes knowledge (cognitive visual schemata), technical skill competence, confidence, and lower worry and stress levels compared to those receiving standard diabetes education. In addition, we will describe parents' learning experiences with and without HPS-PTE enhancement, as well as the diabetes nurse educators' experiences using HPS-PTE. We will also explore the effect of the intervention on physiological factors such as hemoglobin A1C, and health care utilization; and whether parent knowledge and problem-solving competence, confidence, fear and anxiety mediate the effects of the intervention; and if parental education and two-parent vs. single parent caregivers moderate the impact of the intervention on child health and parent management outcomes. This study's contribution includes the testing of a theoretically based intervention to help parents manage young children newly diagnosed with T1DM. There is also potential that findings from this study could be used to develop interventions for children with other chronic conditions and to enhance diabetes education with grandparents, babysitters, and eventually school-aged children and adolescents. PUBLIC HEALTH RELEVANCE: This study has tremendous public health relevance and impact potential for enhancing health care education for families and their children who have chronic medical conditions especially as the incidence of Type 1 diabetes has increased in the past several years. This type of advanced visual technology could be easily transferred to school and other community-based settings such as the camp education environment. It also has potential for improving parent and family management of the illness that could result in fewer missed school and work days. School-aged children and adolescents could also be instructed in self-management with this type of enhanced educational strategy.

描述（由申请人提供）：1型糖尿病（T1DM）是童年时期最常见的代谢疾病，每1000名儿童20岁以下儿童的发生率约为1.7。增加这种压力的是，住院时间的平均长度从5天到2天减少。拟议的研究建立在焦点小组中收集的数据和2项初步研究的基础上，这些研究支持使用人类患者模拟器（HPS）使用理论上得出的（自调节理论）干预，作为在儿童诊断初期增强父母教学和糖尿病管理的一种手段。例如，最近的一项试点研究的发现支持进行这项全面临床试验的受试者接受HPS教育的受试者的知识，解决问题，信心评分和降低焦虑以及对低血糖评分的恐惧。这项多站点随机对照试验的主要目的是评估128名索引的母亲或新诊断为T1DM的儿童（5-12岁）的索引母亲（HPS-PTE =人类患者模拟 - 父母教学增强）的疗效。我们假设与接受标准糖尿病教育的父母随机接收HPS-PTE的父母将具有更高的糖尿病知识（认知视觉模式），技术技能能力，信心和压力水平较低。此外，我们将描述父母在有或没有HPS-PTE增强的情况下的学习经历，以及使用HPS-PTE的糖尿病护士教育者的经验。我们还将探讨干预对生理因素（例如血红蛋白A1C）和医疗保健利用的影响；父母的知识和解决问题的能力，信心，恐惧和焦虑是否介导了干预的影响；如果父母的教育和两父母与单亲护理人员减轻了干预对儿童健康和父母管理结果的影响。这项研究的贡献包括对理论上的干预进行测试，以帮助父母管理新诊断为T1DM的幼儿。这项研究的发现也可以用于为患有其他慢性疾病的儿童开发干预措施，并与祖父母，保姆以及最终学龄儿童和青少年一起增强糖尿病教育。公共卫生相关性：这项研究具有巨大的公共卫生相关性，并影响了对患有慢性医疗状况的家庭及其子女增强医疗保健教育的潜力，尤其是因为过去几年中1型糖尿病的发生率有所增加。这种高级视觉技术可以轻松地转移到学校和其他基于社区的环境，例如营地教育环境。它还具有改善疾病的父母和家庭管理的潜力，这可能导致较少的学业和工作日。学龄的儿童和青少年也可以通过这种增强的教育策略来指导自我管理。