Future Planning, Aging Parents Adult Children with DD

未来规划、年迈父母、患有 DD 的成年子女

• 批准号: 6549988
• 负责人: MARTIN R. SHEEHAN
• 金额: $ 33.16万
• 依托单位: IRIS MEDIA, INC.
• 依托单位国家: 美国
• 财政年份: 2000
• 资助国家: 美国
• 起止时间: 2000-09-30 至 2004-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6549988
• 关键词: aging; caregivers; clinical research; decision making; developmental disease /disorder; educational resource design /development; functional ability; health care cost /financing; health related legal; human subject; life cycle; mental retardation; patient care planning; residential care facility; videotape /videodisc

DESCRIPTION (provided by applicant): The overall goal of the proposed project will be to develop, produce, and test a video training program that simplifies the future planning and paces the instruction using the stages of change model. The instructional program is targeted to older parents who have adult children with developmental disabilities living with them. Other users include local Arcs (formerly The Association for Retarded Citizens) and county case management MR/DD (Mental Retardation and Developmental Disabilities) service delivery systems. Instruction will use competency-based strategies that integrate the use of stages of change, social cognitive theory, video instruction, and suggested family activities. The basis for the proposed approach derives from Social Cognitive Theory and the Stages of Motivational Readiness for Change Model. The completed program will consist of a series of five training modules: 1) Building My Lifebook, 2) The Future Planning Process, 3) Gathering information, 4) Putting your plans into action, and 5) Keeping information current. The research component of this project is designed to demonstrate that the Life History Album kit and videos will be used by parents of developmentally disabled adults to begin to produce a Life History Album (LHA) and that after using these materials parents will have advanced along the stages of change towards undertaking and establishing permanency plans for their adult children. We intend to use a two-group (Control/Intervention) pre-posttest design with measurements at multiple (3) time points. We will be testing the effectiveness of the LHA in motivating parents to undertake permanency planning against one of the most common handbooks available on this subject, the Family Handbook on Future Planning produced by the Arc.

描述(由申请者提供)：该项目的总体目标是开发、制作和测试一个视频培训计划，以简化未来的规划，并使用变革阶段模型来调整教学进度。该指导计划针对的是与发育障碍的成年子女一起生活的年长父母。其他用户包括地方ARCs(前智障公民协会)和县病例管理MR/DD(智力发育迟滞和发育障碍)服务提供系统。教学将使用基于能力的策略，其中整合了变化阶段、社会认知理论、视频教学和建议的家庭活动的使用。提出的方法的基础来自社会认知理论和变革动机准备模型的阶段。完成的计划将由五个培训模块组成：1)建立我的生活手册，2)未来规划过程，3)收集信息，4)将您的计划付诸实施，5)保持信息更新。该项目的研究部分旨在证明，发育障碍成年人的父母将使用生活史相册工具包和视频开始制作一本生活史相册(LHA)，并且在使用这些材料后，父母将沿着为其成年子女承担和建立永久计划的变化阶段前进。我们打算使用两组(对照/干预)前测后设计，在多(3)个时间点进行测量。我们将测试LHA在激励父母进行永久性规划方面的有效性，并对照ARC编制的最常见的这一主题的手册之一--《未来规划家庭手册》。