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Informed consent in gene transfer research

Informed consent in gene transfer research
基因转移研究中的知情同意
批准号：
6559332
负责人：
Benjamin Simon Wilfond
金额：
$0.0万
依托单位：
NATIONAL HUMAN GENOME RESEARCH INSTITUTE
依托单位国家：
美国
项目类别：
财政年份：
--
资助国家：
美国
项目状态：
未结题
起止时间：
至
来源：
https://reporter.nih.gov/project-details/6559332
关键词：
behavioral /social science research tag clinical research clinical trials gene therapy health science research analysis /evaluation human subject informed consent interview patient care personnel relations

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中文摘要
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英文摘要
The purpose of this study to is to understand how the participants (Principle Investigators (PIs), Study Coordinators (SC), Subjects, IRBS) understand the benefits of gene transfer research. The study will focus on the the relationship between research and treatment, the dual roles of researcher and clinicain, and the expectations of benefit by the participants. The study includes intervews with PIs, SCs, Subjects, and IRB Chairs. It also includes an analysis of gene transfer consent forms. Over 250 consent forms have been obtained and coding is almost complete. The interviews with IRB chairs is almost complete. The remaining interview are ongoing.
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GENETIC SCREENING IN PRIMARY CARE: ETHICS AND POLICY
  • 批准号：
    2031744
  • 项目类别：
  • 资助金额：
    $6.89万
  • 财政年份：
    1994
  • 负责人：
    Benjamin Simon Wilfond
  • 依托单位：
    UNIVERSITY OF ARIZONA
GENETIC SCREENING IN PRIMARY CARE: ETHICS AND POLICY
  • 批准号：
    2237033
  • 项目类别：
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    $1.46万
  • 财政年份：
    1994
  • 负责人：
    Benjamin Simon Wilfond
  • 依托单位：
    UNIVERSITY OF ARIZONA
GENETIC SCREENING IN PRIMARY CARE: ETHICS AND POLICY
  • 批准号：
    2591648
  • 项目类别：
  • 资助金额：
    $9.55万
  • 财政年份：
    1994
  • 负责人：
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  • 依托单位：
    UNIVERSITY OF ARIZONA
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  • 批准号：
    2237031
  • 项目类别：
  • 资助金额：
    $8.6万
  • 财政年份：
    1994
  • 负责人：
    Benjamin Simon Wilfond
  • 依托单位：
    UNIVERSITY OF ARIZONA
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