CORE--SCIENTIFIC/CLINICAL

科学-临床核心有一个运动神经元疾病（MND）诊所， 其核心资源。 该诊所评估MND患者，并收集和 分发临床标本给计划项目赠款的成员。 该诊所对家族性病例、非典型MND 患者、脊髓灰质炎后患者和病毒或 免疫异常。 该诊所还参与以下活动： 领域：（a）家族性MND的研究，（B）免疫障碍的分析， MND的异常，（c）神经生理学，形态学和 小儿麻痹症后综合征的免疫学研究，（d）获得 MND患者的尸检组织，（e）对患者态度的研究 患者、家属和医生对MND的生命维持支持， (f)实施实验性治疗方案，（g）教育 MND患者和家属，以及住院医师、研究员和 辅助医务人员在诊断和护理MND患者。 的 科学核心也是血清，脊髓液和 尸检组织从良好的评估病人为广大调查人员。

The Scientific-Clinical core has a Motor Neuron Disease (MND) Clinic as its central resource. The clinic evaluates MND patients and collects and distributes clinical specimens to members of the Program Project Grant. The clinic has a special interest in familial cases, atypical MND patients, post-poliomyelitis patients, and patients with viral or dysimmune abnormalities. The clinic is also involved in the following areas: (a) studies of familial MND, (b) an analysis of dysimmune abnormalities in MND, (c) neurophysiological, morphological and immunological studies of post-poliomyelitis syndrome, (d) acquisition of autopsy tissues from MND patients, (e) studies of the attitudes of patients, families and physicians towards life-sustaining support in MND, (f) implementation of experimental treatment protocols, (g) education of MND patients and families, and training of residents, fellows, and paramedical individuals in the diagnosis and care of MND patients. The Scientific core also stands as a repository of sera, spinal fluids and autopsy tissues from well-evaluated patients for investigators at large.