Family care of brain tumor patients

脑肿瘤患者的家庭护理

• 批准号: 6486453
• 负责人: Paula R Sherwood
• 金额: $ 2.56万
• 依托单位: MICHIGAN STATE UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-09-09 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/6486453
• 关键词: anxiety; behavioral /social science research tag; brain neoplasms; caregivers; clinical research; cognition; coping; dementia; family nursing; human data; nursing research; predoctoral investigator; stress management; terminal patient care

DESCRIPTION (provided by applicant): The overall goal of the proposed research is to describe the impact of the caregiving and health care system environments on family caregivers of persons with brain tumors. The long-term goal is to begin a planned program of study designed to identify indicators of burden in caregivers of patients with brain tumors and test the effectiveness of interventions to maintain healthy caregivers for this group. The specific aims of the project are: 1) to describe the effects of the caregiving environment (including caregiver, patient, and family characteristics) and the health care system environment on the burden, anxiety and health of caregivers of persons with a brain tumor during the patient's illness and at the end of the patient's life; and 2) given specific characteristics of the care situation, to describe the moderating effects of mastery and knowledge of care on the burden, anxiety and health of these caregivers. Changes in health care reimbursement often make family members responsible for providing care, even though they may be ill prepared to deliver this care. Researchers have documented the effects of providing care for a person with a terminal illness such as cancer and for a person with cognitive and behavioral decline such as the dementia patient. However, there have been minimal efforts to describe the impact of providing care for persons who suffer from both a terminal trajectory of illness and a deterioration in cognitive status. This study will begin to address these issues by focusing on caregivers of persons with a brain tumor.

描述（由申请人提供）：拟议研究的总体目标 是描述医疗保健系统环境的影响， 脑肿瘤患者的家庭照顾者。长期目标是 开始一项有计划的研究计划，旨在确定 脑肿瘤患者的护理人员，并测试其有效性， 采取干预措施，为这一群体提供健康的照顾者。具体目标 项目的主要内容是：1）描述环境的影响 （包括照顾者、患者和家庭特征）和医疗保健 制度环境对照顾者的负担、焦虑和健康的影响 在病人生病期间和病人生命结束时， 生活;和2）给定的护理情况的具体特点，描述 护理知识和掌握程度对护理负担、焦虑的调节作用 这些护理人员的健康。医疗保健报销的变化往往使 负责提供护理的家庭成员，即使他们可能生病 准备好提供这种护理。研究人员已经记录了 为患有癌症等绝症的人提供护理， 认知和行为下降的人，如痴呆症患者。 然而，很少有人努力描述提供 照顾那些患有绝症的人， 认知状态恶化。本研究将开始解决这些问题 通过关注脑肿瘤患者的照顾者来解决这些问题。