Family care of brain tumor patients

描述（由申请人提供）：拟议研究的总体目标 是描述护理和医疗保健系统环境的影响 脑肿瘤患者的家庭照顾者。长期目标是 开始一项有计划的研究计划，旨在确定以下方面的负担指标： 脑肿瘤患者的护理人员并测试其有效性 维持该群体健康的护理人员的干预措施。具体目标 该项目的内容是： 1) 描述护理环境的影响 （包括护理人员、患者和家庭特征）和医疗保健 制度环境对照顾者的负担、焦虑和健康的影响 在患者患病期间和患者治疗结束时患有脑肿瘤 生活； 2) 给出护理情况的具体特征，描述 掌握护理知识和知识对负担、焦虑的调节作用 以及这些护理人员的健康。医疗保健报销的变化常常使 家庭成员有责任提供护理，即使他们可能生病了 准备提供这种护理。研究人员已经记录了其影响 为患有癌症等绝症的人以及患有癌症的人提供护理 认知和行为下降的人，例如痴呆症患者。 然而，在描述提供服务的影响方面所做的努力却很少。 照顾患有末期疾病和疾病的人 认知状态恶化。本研究将开始解决这些问题 关注脑肿瘤患者的护理人员来解决问题。

DESCRIPTION (provided by applicant): The overall goal of the proposed research is to describe the impact of the caregiving and health care system environments on family caregivers of persons with brain tumors. The long-term goal is to begin a planned program of study designed to identify indicators of burden in caregivers of patients with brain tumors and test the effectiveness of interventions to maintain healthy caregivers for this group. The specific aims of the project are: 1) to describe the effects of the caregiving environment (including caregiver, patient, and family characteristics) and the health care system environment on the burden, anxiety and health of caregivers of persons with a brain tumor during the patient's illness and at the end of the patient's life; and 2) given specific characteristics of the care situation, to describe the moderating effects of mastery and knowledge of care on the burden, anxiety and health of these caregivers. Changes in health care reimbursement often make family members responsible for providing care, even though they may be ill prepared to deliver this care. Researchers have documented the effects of providing care for a person with a terminal illness such as cancer and for a person with cognitive and behavioral decline such as the dementia patient. However, there have been minimal efforts to describe the impact of providing care for persons who suffer from both a terminal trajectory of illness and a deterioration in cognitive status. This study will begin to address these issues by focusing on caregivers of persons with a brain tumor.