GENETIC TIES AND THE FUTURE OF THE FAMILY
GENETIC TIES AND THE FUTURE OF THE FAMILY
批准号:
6536497
负责人:
MARK A ROTHSTEIN
金额:
$44.3万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
2001
资助国家:
美国
项目状态:
已结题
起止时间:
2001-07-01 至 2004-06-30
关键词:
behavioral /social science research tag belief biotechnology concept culture data collection methodology /evaluation disability insurance ethics family genetics family structure /dynamics gene expression genetic disorder diagnosis genetic screening health related legal human genetic material tag human rights human subject identity information dissemination locus of control malpractice /misconduct morals parent offspring interaction social psychology socioeconomics
中文摘要
描述:(申请人摘要):所提出的研究是一项全面的研究。
评估非法医鉴定的伦理、法律的和社会影响
身份测试,特别注重对家庭的影响。的
研究将解决以下问题:1)不同的哲学和伦理
对父母身份和亲子关系的看法; 2)概念
与家庭有关的法律的基础; 3)
家庭的不同概念以及人口和经济状况,
家庭; 4)关于社会模式影响的经验证据,
家庭结构对发展和幸福的影响; 5)遗传的重要性
亲子关系和血统在不同的亚文化; 6)身份测试和
现有的法律的框架,包括存在重大差异的领域;
8)家庭法的趋势以及正在制定的法律是否足以解决
新的遗传知识的伦理和社会影响; 9)广告的使用
诉讼和替代性争议解决办法,
儿童的父母身份; 10)身份测试对其他领域的影响
家庭关系的后果和家庭成员可能遭受的
基因隐私法填补隐私保护的空白; 11)激励措施
(b)在现有和可能的法律的制度下建立的; 12)
进行鉴别检测的实验室; 13)实验室质量问题; 14)
实验室隐私问题; 15)整合咨询与
试验.研究设计由哲学、社会科学、
法律的研究和分析方法。互联网搜索和调查
实验室将补充传统的以图书馆为基础的研究。一致
致力于跨学科工作,相关领域的领先专家
菲尔兹将在一系列的
多学科会议。选定的论文将构成一个学术基础
书其他成果将包括一套关于立法和
其他形式的监管,专业人员的指导方针,学术文章
期刊和专业出版物,并通过
大众媒体。所有的研究都将在一个重要的会议上达到高潮
在2002年的秋天。会议将向公众开放,
吸引不同的观众。
英文摘要
DESCRIPTION: (Applicant's Abstract): The proposed research is a comprehensive
assessment of the ethical, legal and social implications of non-forensic
identity testing, with a special focus on implications for families. The
research will address the following: 1) different philosophical and ethical
perspectives on parenthood and the parent-child relationship; 2) the conceptual
underpinnings of the law relevant to the family; 3) the historical roots of
different conceptions of the family and the demographics and economics of the
family; 4) empirical evidence concerning the effects of social patterns and
family structures on development and well-being; 5) the significance of genetic
parentage and lineage in different subcultures; 6) identity testing and the
media; 7) existing legal frameworks including areas of significant variation;
8) trends in family law and the adequacy of the developing law to address the
ethical and social implications of new genetic knowledge; 9) the use of ad
litems and alternative dispute resolution in conflicts about the testing and
parentage of children; 10) the implications of identity testing for other areas
of law that concern the consequences of family relationship and the potential
for genetic privacy laws to fill gaps in privacy protection; 11) incentives
created under existing and possible legal regimes; 12) standards governing
laboratories performing identity testing; 13) laboratory quality issues; 14)
laboratory privacy issues; 15) options for integration of counseling with
testing. The research design consists of philosophical, social science, and
legal methods of research and analysis. Internet searches and a survey of
laboratories would supplement traditional library-based research. In keeping
with a commitment to interdisciplinary work, leading experts in the relevant
fields would present papers for discussion and critique at a series of
multidisciplinary meetings. Selected papers would form the basis of a scholarly
book. Other outcomes would include a set of recommendations on legislation and
other forms of regulation, guidelines for professionals, articles in scholarly
journals and professional publications, and dissemination of findings through
the popular media. All lines of research would culminate in a major conference
in the fall of 2002. The conference would be open to the public and structured
to attract a diverse audience.
期刊论文(3)
专著(0)
科研奖励(0)
会议论文
The natural father: genetic paternity testing, marriage, and fatherhood.
亲生父亲:基因亲子鉴定、婚姻和父亲身份。
DOI:
10.1017/s0963180104131101
发表时间:
2004
期刊:
Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees
影响因子:
--
作者:
[Kaebnick,GregoryE]
通讯作者:
Kaebnick,GregoryE
DNA-based identity testing and the future of the family: a research agenda.
基于 DNA 的身份测试和家庭的未来:研究议程。
DOI:
--
发表时间:
2002
期刊:
American journal of law & medicine.
影响因子:
--
作者:
[Anderlik,MaryR, Rothstein,MarkA]
通讯作者:
Rothstein,MarkA
DOI:
10.2217/pme.13.51
发表时间:
2013-08-01
期刊:
Personalized medicine
影响因子:
2.3
作者:
[Ross LF, Rothstein MA, Clayton EW]
通讯作者:
Clayton EW
Addressing ELSI Issues in Unregulated Health Research Using Mobile Devices
-
批准号:9309157
-
项目类别:
-
资助金额:$67.66万
-
财政年份:2017
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6702050
-
项目类别:
-
资助金额:$1.79万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6622952
-
项目类别:
-
资助金额:$44.53万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6987008
-
项目类别:
-
资助金额:$3.57万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6745974
-
项目类别:
-
资助金额:$40.34万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6459442
-
项目类别:
-
资助金额:$56.56万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
PHARMACOGENOMICS AND MINORITY POPULATIONS
-
批准号:6442865
-
项目类别:
-
资助金额:$18.52万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
GENETIC INFORMATION AND LIFE INSURANCE UNDERWRITING
-
批准号:6439875
-
项目类别:
-
资助金额:$43.16万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
GENETIC TIES AND THE FUTURE OF THE FAMILY
-
批准号:6451026
-
项目类别:
-
资助金额:$37.15万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
GENETIC INFORMATION AND LIFE INSURANCE UNDERWRITING
-
批准号:6527041
-
项目类别:
-
资助金额:$35.26万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
GENETIC INFORMATION AND LIFE INSURANCE UNDERWRITING
-
批准号:6561881
-
项目类别:
-
资助金额:$2.82万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
PHARMACOGENOMICS AND MINORITY POPULATIONS
-
批准号:6145175
-
项目类别:
-
资助金额:$15.23万
-
财政年份:2000
-
负责人:MARK A ROTHSTEIN
-
依托单位:
PHARMACOGENOMICS AND MINORITY POPULATIONS
-
批准号:6520386
-
项目类别:
-
资助金额:$16.03万
-
财政年份:2000
-
负责人:MARK A ROTHSTEIN
-
依托单位:
PHARMACOGENOMICS AND MINORITY POPULATIONS
-
批准号:6387285
-
项目类别:
-
资助金额:$38.17万
-
财政年份:2000
-
负责人:MARK A ROTHSTEIN
-
依托单位:
LEGAL & ETHICAL ISSUES RAISED BY THE GENOME PROJECT
-
批准号:3435468
-
项目类别:
-
资助金额:$5.58万
-
财政年份:1990
-
负责人:MARK A ROTHSTEIN
-
依托单位:
LEGAL & ETHICAL ISSUES RAISED BY THE GENOME PROJECT
-
批准号:3435467
-
项目类别:
-
资助金额:$2.03万
-
财政年份:1990
-
负责人:MARK A ROTHSTEIN
-
依托单位:
海外基金