GENETIC TIES AND THE FUTURE OF THE FAMILY
GENETIC TIES AND THE FUTURE OF THE FAMILY
批准号:
6536497
负责人:
MARK A ROTHSTEIN
金额:
$44.3万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
2001
资助国家:
美国
项目状态:
已结题
起止时间:
2001-07-01 至 2004-06-30
关键词:
behavioral /social science research tag belief biotechnology concept culture data collection methodology /evaluation disability insurance ethics family genetics family structure /dynamics gene expression genetic disorder diagnosis genetic screening health related legal human genetic material tag human rights human subject identity information dissemination locus of control malpractice /misconduct morals parent offspring interaction social psychology socioeconomics
中文摘要
描述:(申请人的摘要):所提出的研究是一项综合性的研究
评估非法医的伦理、法律和社会影响
身份测试,特别关注对家庭的影响。的
研究将解决以下问题:1)不同的哲学和伦理
对父母身份和亲子关系的看法; 2)概念性
与家庭相关的法律基础; 3)历史根源
不同的家庭观念以及人口统计和经济状况
家庭; 4)关于社会模式影响的经验证据
家庭结构对发展和福祉的影响; 5)遗传的意义
不同亚文化中的血统和血统; 6) 身份测试和
媒体; 7) 现有的法律框架,包括存在重大变化的领域;
8) 家庭法的趋势以及正在制定的法律是否足以解决家庭问题
新遗传知识的伦理和社会影响; 9)广告的使用
有关测试和测试的冲突中的诉讼事项和替代性争议解决
子女的父母身份; 10) 身份测试对其他领域的影响
涉及家庭关系后果和潜在后果的法律
制定基因隐私法以填补隐私保护方面的空白; 11)激励措施
根据现有和可能的法律制度创建; 12) 管理标准
进行身份测试的实验室; 13)实验室质量问题; 14)
实验室隐私问题; 15) 将咨询与咨询相结合的选项
测试。研究设计包括哲学、社会科学和
研究和分析的法律方法。互联网搜索和调查
实验室将补充传统的基于图书馆的研究。为了保持
致力于跨学科工作,相关领域的领先专家
领域将在一系列会议上提交论文供讨论和批评
多学科会议。选定的论文将构成学术研究的基础
书。其他成果将包括一系列关于立法和
其他形式的监管、专业人士指南、学术文章
期刊和专业出版物,并通过以下方式传播研究结果
大众媒体。所有研究领域都将在一次大型会议中达到顶峰
于 2002 年秋季举行。会议将向公众开放,并按结构安排
以吸引不同的观众。
英文摘要
DESCRIPTION: (Applicant's Abstract): The proposed research is a comprehensive
assessment of the ethical, legal and social implications of non-forensic
identity testing, with a special focus on implications for families. The
research will address the following: 1) different philosophical and ethical
perspectives on parenthood and the parent-child relationship; 2) the conceptual
underpinnings of the law relevant to the family; 3) the historical roots of
different conceptions of the family and the demographics and economics of the
family; 4) empirical evidence concerning the effects of social patterns and
family structures on development and well-being; 5) the significance of genetic
parentage and lineage in different subcultures; 6) identity testing and the
media; 7) existing legal frameworks including areas of significant variation;
8) trends in family law and the adequacy of the developing law to address the
ethical and social implications of new genetic knowledge; 9) the use of ad
litems and alternative dispute resolution in conflicts about the testing and
parentage of children; 10) the implications of identity testing for other areas
of law that concern the consequences of family relationship and the potential
for genetic privacy laws to fill gaps in privacy protection; 11) incentives
created under existing and possible legal regimes; 12) standards governing
laboratories performing identity testing; 13) laboratory quality issues; 14)
laboratory privacy issues; 15) options for integration of counseling with
testing. The research design consists of philosophical, social science, and
legal methods of research and analysis. Internet searches and a survey of
laboratories would supplement traditional library-based research. In keeping
with a commitment to interdisciplinary work, leading experts in the relevant
fields would present papers for discussion and critique at a series of
multidisciplinary meetings. Selected papers would form the basis of a scholarly
book. Other outcomes would include a set of recommendations on legislation and
other forms of regulation, guidelines for professionals, articles in scholarly
journals and professional publications, and dissemination of findings through
the popular media. All lines of research would culminate in a major conference
in the fall of 2002. The conference would be open to the public and structured
to attract a diverse audience.
期刊论文(3)
专著(0)
科研奖励(0)
会议论文
The natural father: genetic paternity testing, marriage, and fatherhood.
亲生父亲:基因亲子鉴定、婚姻和父亲身份。
DOI:
10.1017/s0963180104131101
发表时间:
2004
期刊:
Cambridge quarterly of healthcare ethics : CQ : the international journal of healthcare ethics committees
影响因子:
--
作者:
[Kaebnick,GregoryE]
通讯作者:
Kaebnick,GregoryE
DNA-based identity testing and the future of the family: a research agenda.
基于 DNA 的身份测试和家庭的未来:研究议程。
DOI:
--
发表时间:
2002
期刊:
American journal of law & medicine.
影响因子:
--
作者:
[Anderlik,MaryR, Rothstein,MarkA]
通讯作者:
Rothstein,MarkA
DOI:
10.2217/pme.13.51
发表时间:
2013-08-01
期刊:
Personalized medicine
影响因子:
2.3
作者:
[Ross LF, Rothstein MA, Clayton EW]
通讯作者:
Clayton EW
Addressing ELSI Issues in Unregulated Health Research Using Mobile Devices
-
批准号:9309157
-
项目类别:
-
资助金额:$67.66万
-
财政年份:2017
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6702050
-
项目类别:
-
资助金额:$1.79万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6622952
-
项目类别:
-
资助金额:$44.53万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6987008
-
项目类别:
-
资助金额:$3.57万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6745974
-
项目类别:
-
资助金额:$40.34万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
Education in Genetic Ethics ('EDGE')
-
批准号:6459442
-
项目类别:
-
资助金额:$56.56万
-
财政年份:2002
-
负责人:MARK A ROTHSTEIN
-
依托单位:
PHARMACOGENOMICS AND MINORITY POPULATIONS
-
批准号:6442865
-
项目类别:
-
资助金额:$18.52万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
GENETIC INFORMATION AND LIFE INSURANCE UNDERWRITING
-
批准号:6439875
-
项目类别:
-
资助金额:$43.16万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
GENETIC TIES AND THE FUTURE OF THE FAMILY
-
批准号:6451026
-
项目类别:
-
资助金额:$37.15万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
GENETIC INFORMATION AND LIFE INSURANCE UNDERWRITING
-
批准号:6527041
-
项目类别:
-
资助金额:$35.26万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
GENETIC INFORMATION AND LIFE INSURANCE UNDERWRITING
-
批准号:6561881
-
项目类别:
-
资助金额:$2.82万
-
财政年份:2001
-
负责人:MARK A ROTHSTEIN
-
依托单位:
PHARMACOGENOMICS AND MINORITY POPULATIONS
-
批准号:6145175
-
项目类别:
-
资助金额:$15.23万
-
财政年份:2000
-
负责人:MARK A ROTHSTEIN
-
依托单位:
PHARMACOGENOMICS AND MINORITY POPULATIONS
-
批准号:6520386
-
项目类别:
-
资助金额:$16.03万
-
财政年份:2000
-
负责人:MARK A ROTHSTEIN
-
依托单位:
PHARMACOGENOMICS AND MINORITY POPULATIONS
-
批准号:6387285
-
项目类别:
-
资助金额:$38.17万
-
财政年份:2000
-
负责人:MARK A ROTHSTEIN
-
依托单位:
LEGAL & ETHICAL ISSUES RAISED BY THE GENOME PROJECT
-
批准号:3435468
-
项目类别:
-
资助金额:$5.58万
-
财政年份:1990
-
负责人:MARK A ROTHSTEIN
-
依托单位:
LEGAL & ETHICAL ISSUES RAISED BY THE GENOME PROJECT
-
批准号:3435467
-
项目类别:
-
资助金额:$2.03万
-
财政年份:1990
-
负责人:MARK A ROTHSTEIN
-
依托单位:
海外基金