Education in Genetic Ethics ('EDGE')

遗传伦理教育（“EDGE”）

• 批准号: 6702050
• 负责人: MARK A ROTHSTEIN
• 金额: $ 1.79万
• 依托单位: UNIVERSITY OF LOUISVILLE
• 依托单位国家: 美国
• 财政年份: 2002
• 资助国家: 美国
• 起止时间: 2002-05-03 至 2005-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6702050
• 关键词: clinical research; computer assisted instruction; curriculum; education evaluation /planning; educational resource design /development; ethics; genetics; health related legal; health science research; social perception

The Institute for Bioethics, Health Policy, and Law at the University of Louisville, and collaborators from The Hastings Center, Stanford University Center for Biomedical Ethics, and Michigan State University, propose to develop, offer and evaluate a research ethics training program in human genetics called EDGE, or Education in Genetics Ethics. Course development will be responsiveness to identified unmet needs in research ethics training based upon a large scale national needs assessment conducted among a target audience of investigators involved in genetics research, including academicians, clinicians, laboratory practice professionals, genetic counselors, nurses and others involved in human genetics research. he target audience will be recruited as course participants, with special effort made to recruit those who have been traditionally under-represented in the field of research ethics. Interactive instruction for course participants will occur through a 2-day on-site workshop offered at different locations throughout the U.S. six times a year, and a computer-mediated Web-based course. The on-site course will include short, didactic sessions that address genetic research issues using general ethics principles; small group problem-solving and discussion sections involving genetics research ethics issues using specially developed case studies; plenary sessions highlighting historical and developing trends in the field provided by experienced investigators and scholars in the field; and evaluation sessions to assess research ethics experience and knowledge gained. The computer-mediated interaction through a specially developed Web site that includes instructor-provided electronic text or recorded presentation option, on- line readings, asynchronous participant problem-solving case study modules, interactive e-mail, chat room and e-board facilities, links to relevant Web-based resources, and on-line evaluation materials. Both courses, will provide continuing education credit, and are easily sustainable. The specific aims of this project are to: 1) develop a specialized and transportable research ethics training program based upon the unmet needs of genetics research; 2) deliver the EDGE training program using on-site and online methods; and 3) evaluate the impact of the course. The project includes a curriculum steering committee comprised of experts in the field of genetics research and genetics education, as well as select project team members, to provide on-going advance to the project.

路易斯维尔大学生物伦理、卫生政策和法律研究所以及黑斯廷斯中心、斯坦福大学生物医学伦理中心和密歇根州立大学的合作者提议开发、提供和评估人类遗传学研究伦理培训项目，称为 EDGE（即遗传学伦理教育）。课程开发将根据对参与遗传学研究的目标受众（包括院士、临床医生、实验室实践专业人员、遗传咨询师、护士和其他参与人类遗传学研究的人员）进行的大规模国家需求评估，对研究伦理培训中已确定的未满足需求做出反应。目标受众将被招募为课程参与者，并特别努力招募那些传统上在研究伦理领域代表性不足的人。课程参与者的互动教学将通过每年在美国不同地点举办六次的为期 2 天的现场研讨会以及计算机介导的网络课程进行。现场课程将包括简短的教学课程，使用一般伦理原则解决基因研究问题；使用专门开发的案例研究，涉及遗传学研究伦理问题的小组问题解决和讨论部分；全体会议强调该领域的历史和发展趋势，由该领域经验丰富的研究人员和学者提供；评估会议以评估研究伦理经验和所获得的知识。通过专门开发的网站进行计算机介导的交互，该网站包括教师提供的电子文本或录制的演示选项、在线阅读、异步参与者解决问题的案例研究模块、交互式电子邮件、聊天室和电子板设施、相关网络资源的链接以及在线评估材料。这两门课程都将提供继续教育学分，并且很容易持续。该项目的具体目标是：1）根据遗传学研究未满足的需求，制定专门的、可移植的研究伦理培训计划； 2) 采用现场和在线方式提供 EDGE 培训计划； 3) 评估课程的影响。该项目包括一个由遗传学研究和遗传学教育领域的专家以及选定的项目团队成员组成的课程指导委员会，为该项目提供持续的进展。