'A study of the impact of the socio-economic, educational and demographic characteristics of people with Multiple Sclerosis (MS) on their healthcare i

“一项关于多发性硬化症 (MS) 患者的社会经济、教育和人口特征对其医疗保健影响的研究

• 批准号: 2258723
• 金额: --
• 依托单位: Swansea University
• 依托单位国家: 英国
• 项目类别: Studentship
• 财政年份: 2019
• 资助国家: 英国
• 起止时间: 2019 至 无数据
• 项目状态: 已结题
• 来源: https://gtr.ukri.org/projects?ref=studentship-2258723
• 关键词: study; impact; socio; economic; educational

This project will make use of the vibrant world-leading research environment of the data sciences and health informatics at Swansea University Medical School. It will use rich self-reported and clinical datasets in the MS Register, along with SAIL's world-leading databank of de-identified individual healthcare records to address this gap. The study will focus on the following questions:1. Do patients' socioeconomic, educational and demographic factors impact decision-making (diagnosis, referral and treatment) and healthcare journeys of people with MS? If so how?2. Is it possible to identify strategies that can be used to improve the care provided to people living with MS? Can that information be used to help doctors, other healthcare professionals and individuals to make better decisions?The study will adopt a mixed-methods (embedded) study design with a quantitative data analysis focus on the MS registry, and two focus.

该项目将利用斯旺西大学医学院充满活力的世界领先的数据科学和健康信息学研究环境。它将使用MS Register中丰富的自我报告和临床数据集，以及SAIL世界领先的未识别个人医疗记录数据库来弥补这一差距。这项研究将集中于以下问题：1。患者的社会经济、教育和人口因素是否会影响多发性硬化症患者的决策(诊断、转诊和治疗)和医疗过程？如果是，如何？2.是否有可能确定可用于改善向多发性硬化症患者提供的护理的策略？这些信息能否帮助医生、其他医疗保健专业人员和个人做出更好的决定？这项研究将采用混合方法(嵌入式)研究设计，重点是MS注册中心的定量数据分析，以及两个重点。