Mobile Tool for Adolescent Diabetes Management

描述（由申请人提供）： 本研究的目的是探讨如何移动的技术，也许在个人数字助理（PDA）的形式，可以帮助青少年患者管理他们的糖尿病。虽然糖尿病管理的总体目标在一段时间内没有改变，但实现这些目标的方法已经改变。尽管有新的临床进展，自我管理的质量并没有显着提高。事实上，许多人认为，相当数量的儿童，特别是青少年，血糖水平控制不佳。这可能是由于这一群体的特殊需要，这与儿童或成人的需要不同。任何希望提高这些患者糖尿病管理能力的干预措施都必须调查和了解这一群体的需求。该提案的研究目标是：（1）使用一个有充分记录的大型纵向数据库来检查在詹姆斯·惠特科姆·莱利（JWR）儿童医院接受治疗的印第安纳州青少年糖尿病患者的当前护理;（2）使用定性研究方法来确定青少年患者、父母和提供者在移动的信息系统中需要什么来帮助管理糖尿病。(3)根据患者和医生的需求，开发和测试移动的信息工具的用户可接受性;（4）将移动的信息工具作为青少年糖尿病管理计划的一个组成部分进行试点研究，以建立可行性并收集初步数据，供以后提交资助。目标1将通过使用现有数据库的纵向队列研究来实现。目标2和3将通过使用焦点小组、半结构化访谈和录像来实现。目标4将是一项与儿科内分泌学家、卫生服务研究人员、社会生态学家、生物统计学家和信息学家联合设计的前/后试点研究。这项研究请求将构成R 01提案的基础，以严格研究该工具对青少年糖尿病管理的影响

DESCRIPTION (provided by applicant): This objective of this research is to explore how mobile technology, perhaps in the form of personal digital assistants (PDA), can assist adolescent patients in managing their diabetes. Although the overall goal of diabetes management has not changed in some time, the methods to achieve those goals have. In spite of new clinical advances, the quality of self-management has not improved dramatically. In fact, many believe that a significant number of children, especially adolescents, have suboptimal control of their blood glucose levels. This is likely due to this group's special needs, which are not the same as either children's or adults'. Any intervention that hopes to improve these patients' competence in the management of their diabetes will have to investigate and understand this group's needs. The research aims of the proposal are: (1)To use a well documented, large longitudinal database to examine the current care of adolescents with diabetes in Indiana treated at the James Whitcomb Riley (JWR) Hospital for Children; (2) To determine, using qualitative research methods, what adolescent patients, parents, and providers need in a mobile information system to assist in the management of diabetes.; (3) To develop and test the user acceptability of a mobile information tool, based on both patient and physician needs; and (4) To conduct a pilot study of the mobile information tool as a component of a management program for adolescents with diabetes, to establish feasibility and gather preliminary data for a later grant submission. Aim 1 will be accomplished through a longitudinal cohort study using existing databases. Aim 2 and 3 will be achieved through the use of focus groups, semi-structured interviews, and videotaping. Aim 4 will be a before/after pilot study designed in conjunction with pediatric endocrinologists, health services researchers, social ecologists, biostatisticians, and informaticians. This research request will form the foundation of an R01 proposal to rigorously study the tool's impact on adolescent diabetes management