Survey Of Individuals At Risk For Alzheimer

对阿尔茨海默病高危人群的调查

• 批准号: 6675286
• 负责人: ezekiel J emanuel
• 金额: --
• 依托单位: CLINICAL CENTER
• 依托单位国家: 美国
• 资助国家: 美国
• 起止时间: 至
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/6675286
• 关键词: Alzheimer's disease; aging; attitude; behavioral /social science research tag; clinical research; disease /disorder proneness /risk; genetic counseling; health behavior; health care service utilization; health related legal; health surveys; human subject; questionnaires; tissue donors; tissue resource /registry

This protocol seeks to survey individuals at risk for Alzheimer disease with respect to their (1) willingness to participate in clinical research should they develop Alzheimer disease, (2) willingness to utilize research advance directives, (3) attitudes toward research with stored tissues, (4) attitudes toward confidentiality of research results, and (5) experience with genetic counseling. The study was approved by the NIMH IRB. We surveyed 504 individuals and surveying is completed. Several papers are either in press or have been published.

该方案旨在调查阿尔茨海默病高危个体的以下方面：(1)如果他们患上阿尔茨海默病，是否愿意参与临床研究；(2)是否愿意利用研究进展指令；(3)对利用储存的组织进行研究的态度；(4)对研究结果保密的态度；(5)遗传咨询的经验。这项研究得到了NIMH IRB的批准。我们对504个个体进行了调查，并完成了调查。有几篇论文要么在印刷中，要么已经出版。