Breast Cancer Treatment Decisions & Outcomes in Latinas

描述（由申请人提供）：在美国，评估女性乳腺癌患者的护理质量是一项重要的研究重点，因为人们关注治疗交付的质量。拉丁裔妇女可能特别容易受到与文化、环境和获取有关的护理机会和质量问题的影响。不幸的是，没有基于人群的研究同时评估美国拉丁裔乳腺癌妇女治疗过程和护理结果的决定因素。我们建议在洛杉矶县进行一项基于人群的研究，以检查可能与最近诊断为乳腺癌的拉丁裔妇女的四种结果相关的广泛决定因素（易感因素/使能因素、临床因素、外部影响以及患者知识和态度因素）：(1)明确的手术治疗（乳房切除术与乳房肿瘤切除术）和补充治疗选择（乳房肿瘤切除术后放疗和乳房切除术后重建）；(2)患者对治疗的满意度；(3)患者对治疗决策过程的满意度；(4)健康相关的生活质量。所有拉丁裔女性（使用经过验证的基于美国人口普查的姓氏策略确定）和20%随机抽样的最近诊断为乳腺癌的非拉丁裔女性（N=2,200）将从洛杉矶监测、流行病学和最终结果（SEER）集水区前瞻性地选择，使用登记处的快速病例确定过程，为期12个月。女性将被邀请通过邮件填写一份标准化的自我管理调查问卷，如果愿意，也可以通过电话填写问卷。我们预计75%的符合条件的患者将完成问卷调查（N=1,545名受访者），其中35%的人将自我认定为拉丁裔。

DESCRIPTION (provided by applicant): Evaluating the quality of care for women with breast cancer is an important research priority in the United States as there are concerns about the quality of treatment delivery. Latina women may be particularly vulnerable to access and quality of care issues related to culture, context and access. Unfortunately, there are no population-based studies that simultaneously evaluate determinants of treatment processes and outcomes of care for Latina women with breast cancer in the United States. We propose a population-based study in Los Angeles County to examine a broad array of determinants (predisposing/enabling factors, clinical factors, external influences and patient knowledge and attitudinal factors) that may be associated with four outcomes for Latina women recently diagnosed with breast cancer: (1) definitive surgical treatment (mastectomy vs. lumpectomy) and complementary treatment options (radiation therapy post-lumpectomy and reconstruction post-mastectomy); (2) patient satisfaction with the treatments received; (3) patient satisfaction with the process by which treatment decisions were made; and (4) health-related quality of life. All Latina women (identified using a validated U.S. Census-based surname strategy) and a 20% random sample of non-Latina women recently diagnosed with breast cancer (N=2,200) will be selected prospectively from the Los Angeles Surveillance, Epidemiology and End Results (SEER) catchment areas of a 12-month period using the registries' rapid case ascertainment process. Women will be invited to complete a standardized self-administered survey questionnaire in the mail with an invitation to complete the survey by telephone if preferred. We expect that 75% of eligible patients will complete the questionnaire (N=1,545 respondents) of whom 35% will self-designate as Latina.