Breast Cancer Treatment Decisions & Outcomes in Latinas

乳腺癌治疗决策

• 批准号: 6941367
• 负责人: Steven J. Katz
• 金额: $ 54.75万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-09-01 至 2007-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6941367
• 关键词: Hispanic Americans; behavioral /social science research tag; breast neoplasms; clinical research; decision making; health care quality; health care service availability; health disparity; health services research tag; human subject; neoplasm /cancer radiation therapy; neoplasm /cancer surgery; neoplasm /cancer therapy; plastic surgery; psychological aspect of cancer; quality of life; questionnaires; racial /ethnic difference; satisfaction

DESCRIPTION (provided by applicant): Evaluating the quality of care for women with breast cancer is an important research priority in the United States as there are concerns about the quality of treatment delivery. Latina women may be particularly vulnerable to access and quality of care issues related to culture, context and access. Unfortunately, there are no population-based studies that simultaneously evaluate determinants of treatment processes and outcomes of care for Latina women with breast cancer in the United States. We propose a population-based study in Los Angeles County to examine a broad array of determinants (predisposing/enabling factors, clinical factors, external influences and patient knowledge and attitudinal factors) that may be associated with four outcomes for Latina women recently diagnosed with breast cancer: (1) definitive surgical treatment (mastectomy vs. lumpectomy) and complementary treatment options (radiation therapy post-lumpectomy and reconstruction post-mastectomy); (2) patient satisfaction with the treatments received; (3) patient satisfaction with the process by which treatment decisions were made; and (4) health-related quality of life. All Latina women (identified using a validated U.S. Census-based surname strategy) and a 20% random sample of non-Latina women recently diagnosed with breast cancer (N=2,200) will be selected prospectively from the Los Angeles Surveillance, Epidemiology and End Results (SEER) catchment areas of a 12-month period using the registries' rapid case ascertainment process. Women will be invited to complete a standardized self-administered survey questionnaire in the mail with an invitation to complete the survey by telephone if preferred. We expect that 75% of eligible patients will complete the questionnaire (N=1,545 respondents) of whom 35% will self-designate as Latina.

描述（由申请人提供）：评估乳腺癌女性患者的护理质量是美国的一项重要研究重点，因为人们对治疗质量存在担忧。 拉丁裔女性可能特别容易受到与文化、背景和获取相关的护理获取和质量问题的影响。 不幸的是，目前还没有基于人群的研究能够同时评估美国拉丁裔乳腺癌女性治疗过程和护理结果的决定因素。 我们提议在洛杉矶县进行一项基于人群的研究，以检查可能与最近诊断出患有乳腺癌的拉丁裔女性的四种结果相关的广泛决定因素（诱发/促成因素、临床因素、外部影响以及患者知识和态度因素）：（1）明确的手术治疗（乳房切除术与肿瘤切除术）和补充治疗方案（肿瘤切除术和重建后的放射治疗） 乳房切除术后）； (2) 患者对所接受治疗的满意度； (3) 患者对治疗决策过程的满意度； (4) 与健康相关的生活质量。 所有拉丁裔女性（使用经过验证的美国人口普查姓氏策略进行识别）和最近诊断出患有乳腺癌的非拉丁裔女性的 20% 随机样本（N = 2,200）将使用登记处的快速病例查明流程，从 12 个月的洛杉矶监测、流行病学和最终结果 (SEER) 服务区域中前瞻性地进行选择。 我们将邀请女性通过邮寄方式填写标准化的自填式调查问卷，如果愿意，还可邀请她们通过电话完成调查。 我们预计 75% 的符合条件的患者将完成调查问卷（N = 1,545 名受访者），其中 35% 将自称为拉丁裔。