PSYCHOLOGICAL OUTCOME IN CHILDHOOD CANCER SURVIVORS

儿童癌症幸存者的心理结果

• 批准号: 6765045
• 负责人: ANNE E KAZAK
• 金额: $ 37.1万
• 依托单位: CHILDREN'S HOSP OF PHILADELPHIA
• 依托单位国家: 美国
• 财政年份: 2004
• 资助国家: 美国
• 起止时间: 2004-08-01 至 2009-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/6765045
• 关键词: adolescence (12-20); attitude; behavioral /social science research tag; clinical research; coping; disease /disorder proneness /risk; health behavior; health care model; health care service evaluation; health care service utilization; health services research tag; human subject; interview; long term survivor; longitudinal human study; model design /development; neoplasm /cancer education; pediatric neoplasm /cancer; posttraumatic stress disorder; psychological aspect of cancer; psychological stressor; quality of life; questionnaires; relapse /recurrence; young adult human (21-34)

DESCRIPTION (provided by applicant): Appropriate care for long-term survivors of childhood cancer depends on understanding the psychology being a young adult long-term survivor, including psychosocial late effects, reactions to follow-up care, and predictors of distress and participation in health care. Although young adult cancer survivors have elevated rates of distress relative to norms, it is not known how their distress compares to that reported by a matched of never ill peers, or how other variables related to health care might be associated with distress. Beliefs about one's medical vulnerability and medical competence (health competence beliefs; HCB) are theoretically related to distress and to participation in health care, although these relationships have not been examined empirically with long-term survivors of childhood cancer. This study aims to examine these links. Aim 1 identifies distress that is cancer-specific by comparing long-term survivors of childhood cancer to a matched group of well individuals at the time of a medical visit and two months later. Aim 2 proposes to develop a reliable and valid brief screening tool of health competence beliefs (HCB) that are associated with distress. Aim 3 proposes to test the association among survivors HCB, health risk knowledge, psychological distress, and follow-up care. Analysis of existing data and focus groups of 8-12 long-term survivors will be used to develop the HCB measure. After pilot feasbility testing, 150 16-39 year old long-term survivors of childhood cancer and 300 never ill young adults will complete questionnaires assessing beliefs and distress at a routine follow-up/health maintenance medical visit, and two months later (by mail or Internet). Survivors will also complete the questionnaires 12 months later; medical late effect and treatment intensity will be rated and contact with the oncology medical team will be tracked over 12 months. The findings of this study are expected to inform the structure of follow-up visits by providing a tool to identify distressed survivors, as well as guidelines to optimize patients adaptive beliefs about their health competence, thereby maximizing long-term survivors' use of health care and enhancing their physical and psychological well-being.

描述（由申请人提供）：针对儿童癌症的长期幸存者的适当护理取决于理解心理学是年轻的成年长期幸存者，包括心理社会的后期影响，对后续护理的反应以及困扰和参与医疗保健的预测指标。尽管年轻的成年癌症幸存者相对于规范的困扰率升高，但尚不知道他们的苦难与从未生病的同伴匹配的遇险相比，或者与医疗保健相关的其他变量可能与遇险有关。尽管没有与儿童癌症的长期幸存者进行经验研究，但对自己的医疗脆弱性和医疗能力（健康能力信念； HCB）的信念在理论上与遇险和参与医疗保健有关。这项研究旨在检查这些联系。 AIM 1通过将儿童癌症的长期幸存者与医疗访问时的一组井人的长期幸存者进行比较，确定了特定于癌症的困扰。 AIM 2建议开发与困扰相关的健康能力信念（HCB）的可靠且有效的简短筛选工具。 AIM 3建议测试幸存者HCB，健康风险知识，心理困扰和后续护理之间的关联。对8-12个长期幸存者的现有数据和焦点小组的分析将用于制定HCB度量。经过飞行员的满足测试，150 16-39岁的儿童癌症和300岁的长期幸存者将在常规的随访/健康维护医疗访问中完成评估信念和困扰的问卷，并在两个月后（通过邮件或互联网）。幸存者还将在12个月后填写问卷；将在12个月内对医疗迟到的效果和治疗强度进行评级，并与肿瘤学医学团队接触。预计这项研究的结果将通过提供一种工具来识别苦恼的幸存者，以及优化患者对其健康能力的适应性信念，从而最大程度地提高长期幸存者对医疗保健的使用并增强其身体和心理健康的指南，从而为随访的结构提供信息。