Cancer Caregiving in Latinos

描述（由申请人提供）：华盛顿，DC地区有一个快速增长的拉丁美洲人口。癌症是拉丁美洲人死亡的主要原因。癌症患者的临终关怀负担可能会给家庭照顾者带来长期的身体和情绪困扰，大型研究表明，临终关怀可以更好地照顾患者，减轻照顾者的压力。然而，拉丁美洲人可能不太可能使用临终关怀服务，即使他们的需求可能更大。最近的研究表明，在拉丁美洲癌症护理人员在我们地区，其中大多数是新移民的各种未满足的需求-穷人，没有保险，在西班牙语和单语。大家庭是拉丁美洲人的传统资源，但移民家庭往往缺少大家庭，使照顾者无法承担相互竞争的角色和责任，包括照顾孩子和挣工资。此外，往往没有西班牙语的服务，寻求正式服务可能存在文化障碍。为了研究这一未充分研究的人群中的癌症复发，拉丁美洲癌症研究联盟（LACRC）和首都临终关怀之间建立了一个双文化，双语，跨学科，学术/社区伙伴关系。当前项目的总体目标是描述新移民的拉丁美洲癌症护理人员的需求，确定与临终关怀使用相关的文化因素，并了解临终关怀使用如何影响临终关怀对护理人员经验和结果的影响。这些目标解决了NCI生存办公室的主要研究议程之一;了解癌症护理人员的需求和调整。为了实现这些目标，我们将使用定性的方法进行6个焦点小组，拉丁美洲丧失亲人的前照顾者（N = 18临终关怀用户和18非临终关怀用户）和10个关键的知情人与供应商的访谈，以了解文化对护理的影响。分析将确定未来干预措施的因素，以帮助拉丁美洲护理人员，包括促进增加临终关怀的使用。这项拟议的研究将是第一个比较临终关怀和非临终关怀在拉丁美洲人口的使用，提供指导临终关怀的推广工作。这也将是第一项研究，承认文化对拉丁裔护理决策和经验中特定因素的影响，并确定干预的具体目标，以帮助拉丁裔护理人员。

DESCRIPTION (provided by applicant): The Washington, DC, area has a rapidly growing Latino population. Cancer is the leading cause of death in Latinos. The burden of caregiving for cancer patients can cause long- term physical and emotional distress for family caregivers and large studies have shown that hospice care results in better care for the patient and less stress for the caregiver. However, Latinos may be less likely to use hospice services, even though their needs may be greater. Recent studies indicate a variety of unmet needs in Latino cancer caregivers in our area, most of whom are new immigrants -- poor, uninsured, and monolingual in Spanish. Extended families, a traditional resource for Latinos, are often missing from immigrant families, Ieaving caregivers unsupported with competing roles and responsibilities, including childcare and wage earning. In addition, services are often not available in Spanish and there may be cultural barriers to seeking formal services. In order to study cancer caregiving in this understudied population, a bi-cultural, bi-lingual, interdisciplinary, academic/community partnership has been established between the Latin American Cancer Research Coalition (LACRC) and Capital Hospice. The overarching goals of the current project are to describe the needs of newly immigrated Latino cancer caregivers, determine cultural factors associated with hospice use, and to understand how hospice use influences the impact of caregiving on caregiver experience and outcomes. These goals address one of the NCI Office of Survivorship's primary research agenda's; to understand the needs and adjustment of cancer caregivers. To accomplish these goals, we will use qualitative methods to conduct 6 focus groups, of Latino bereaved former caregivers (N = 18 hospice users and 18 non-hospice users) and 10 key informant interviews with providers to understand the impact of culture on care giving. Analysis will identify factors for future interventions to assist Latino caregivers, including promotion of increased hospice use. The proposed study will be the first to compare hospice and non-hospice use in a Latino population, providing guidance to hospice outreach efforts. It will also be the first study to acknowledge the effects of culture on specific factors in Latino caregiving decisions and experience and to identify specific targets for intervention to assist Latino caregivers.