Cancer Caregiving in Latinos

描述（由申请人提供）：华盛顿特区拉丁裔人口迅速增长。癌症是拉丁美洲人死亡的主要原因。照顾癌症患者的负担会给家庭照顾者带来长期的身体和精神上的困扰，大量的研究表明，临终关怀能给病人带来更好的照顾，减轻照顾者的压力。然而，拉丁美洲人可能不太可能使用临终关怀服务，即使他们的需求可能更大。最近的研究表明，我们地区拉丁裔癌症护理人员的各种需求未得到满足，其中大多数是新移民——贫穷，没有保险，只会说西班牙语。大家庭是拉美裔人的传统资源，但移民家庭往往没有大家庭，这使得照顾者得不到支持，他们的角色和责任相互竞争，包括照顾孩子和赚取工资。此外，通常没有西班牙语的服务，在寻求正式服务方面可能存在文化障碍。为了研究这一未被充分研究的人群的癌症护理，拉丁美洲癌症研究联盟（LACRC）和首都临终关怀医院之间建立了一种双文化、双语、跨学科的学术/社区伙伴关系。本研究的总体目标是描述新移民拉丁裔癌症照护者的需求，确定与安宁疗护使用相关的文化因素，并了解安宁疗护使用如何影响照护者经验和结果。这些目标解决了NCI幸存者办公室的主要研究议程之一；了解癌症照顾者的需要和适应。为了实现这些目标，我们将使用定性方法进行6个焦点小组，拉丁裔失去亲人的前照顾者（N = 18安宁疗护使用者和18非安宁疗护使用者）和10个关键信息提供者访谈，以了解文化对护理的影响。分析将确定未来干预的因素，以协助拉丁裔照护者，包括促进增加安宁疗护的使用。本研究将是第一个比较拉丁裔人口安宁疗护与非安宁疗护使用的研究，为安宁疗护推广工作提供指导。它也将是第一个承认文化对拉丁裔护理决策和经验中特定因素的影响，并确定具体干预目标以帮助拉丁裔护理人员的研究。

DESCRIPTION (provided by applicant): The Washington, DC, area has a rapidly growing Latino population. Cancer is the leading cause of death in Latinos. The burden of caregiving for cancer patients can cause long- term physical and emotional distress for family caregivers and large studies have shown that hospice care results in better care for the patient and less stress for the caregiver. However, Latinos may be less likely to use hospice services, even though their needs may be greater. Recent studies indicate a variety of unmet needs in Latino cancer caregivers in our area, most of whom are new immigrants -- poor, uninsured, and monolingual in Spanish. Extended families, a traditional resource for Latinos, are often missing from immigrant families, Ieaving caregivers unsupported with competing roles and responsibilities, including childcare and wage earning. In addition, services are often not available in Spanish and there may be cultural barriers to seeking formal services. In order to study cancer caregiving in this understudied population, a bi-cultural, bi-lingual, interdisciplinary, academic/community partnership has been established between the Latin American Cancer Research Coalition (LACRC) and Capital Hospice. The overarching goals of the current project are to describe the needs of newly immigrated Latino cancer caregivers, determine cultural factors associated with hospice use, and to understand how hospice use influences the impact of caregiving on caregiver experience and outcomes. These goals address one of the NCI Office of Survivorship's primary research agenda's; to understand the needs and adjustment of cancer caregivers. To accomplish these goals, we will use qualitative methods to conduct 6 focus groups, of Latino bereaved former caregivers (N = 18 hospice users and 18 non-hospice users) and 10 key informant interviews with providers to understand the impact of culture on care giving. Analysis will identify factors for future interventions to assist Latino caregivers, including promotion of increased hospice use. The proposed study will be the first to compare hospice and non-hospice use in a Latino population, providing guidance to hospice outreach efforts. It will also be the first study to acknowledge the effects of culture on specific factors in Latino caregiving decisions and experience and to identify specific targets for intervention to assist Latino caregivers.