Word on the Street - Creating Multigenerational Prostate Cancer Dialogue

坊间传闻——创建多代前列腺癌对话

• 批准号: 7068885
• 负责人: Elinor R. Schoenfeld
• 金额: $ 17.63万
• 依托单位: STATE UNIVERSITY NEW YORK STONY BROOK
• 依托单位国家: 美国
• 财政年份: 2006
• 资助国家: 美国
• 起止时间: 2006-04-26 至 2008-03-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/7068885
• 关键词: clinical research; community; decision making; family; prostate neoplasms

DESCRIPTION (provided by applicant): Prostate cancer statistics reveal the most glaring example of racial/ethnically-based cancer health disparities among American males. African American men have the highest reported rate of prostate cancer in the world, with an incidence rate that is 1.4 times higher than that of whites, and a mortality rate that is 2.3 times greater. Given the range of possible treatments, their uncertain efficacies, their possible negative effects on quality-of-life, and the lack of clear-cut medical guidelines, decisions surrounding a prostate cancer diagnosis can be particularly confusing and anxiety-producing. The goal of this pilot project is to understand current knowledge, beliefs, and practices that either facilitate or inhibit pathways to receiving work-up and treatment for prostate cancer in the African American community. Results from this project will provide the basis for development of a decision aid to promote active participation of African American men and their families in prostate cancer diagnosis and treatment decisions while planning for overcoming barriers that may hinder these decisions. The many medical, social, and economic obstacles that families face in the decision maze will be explored. To accomplish these objectives, researchers will work in partnership with community partners, healthcare providers and government to build a community network to aid individuals in this decision process. Community partners have a long and successful collaboration through the Witness Project of LI, a faith based breast cancer outreach effort began in Arkansas. The impetus for this proposal stems from community requests to expand efforts to prostate cancer. Key informant interviews, focus groups and town meetings will be used to collect and synthesize information about what our community is "saying, doing and thinking" about an elevated Prostate Specific Antigen (PSA), work-up and treatment for prostate cancer. The specific aims of this pilot project are to: 1-determines patient-, community-, and system-level variables that facilitate or obstruct pathways to work-up and treatment for prostate cancer among African Americans; 2- collaborate with community partners to develop a prostate cancer treatment decision-aid based on interviews, focus groups, and town meetings. This project has the potential to foster community dialogue and create a decision aid for a disease that has tremendous medical, social and societal impact for African Americans. Greater patient involvement in decision making is also believed to improve health care quality.

描述（由申请人提供）：前列腺癌统计数据揭示了美国男性中基于种族/民族的癌症健康差异的最明显例子。非洲裔美国人是世界上前列腺癌发病率最高的人群，发病率是白人的1.4倍，死亡率是白人的2.3倍。考虑到可能的治疗方法，其不确定的疗效，对生活质量可能产生的负面影响，以及缺乏明确的医疗指南，围绕前列腺癌诊断的决定可能特别令人困惑和焦虑。这个试点项目的目标是了解当前的知识，信念和做法，无论是促进或抑制途径接受检查和治疗的前列腺癌在非洲裔美国人社区。该项目的结果将为制定决策援助提供基础，以促进非洲裔美国男性及其家人积极参与前列腺癌诊断和治疗决策，同时计划克服可能阻碍这些决策的障碍。家庭在决策迷宫中面临的许多医疗，社会和经济障碍将被探讨。为了实现这些目标，研究人员将与社区合作伙伴，医疗保健提供者和政府合作，建立一个社区网络，以帮助个人在这一决策过程中。社区合作伙伴通过LI的见证项目进行了长期而成功的合作，该项目是一项始于阿肯色州的基于信仰的乳腺癌外展工作。该提案的推动力源于社区要求扩大对前列腺癌的努力。关键的线人访谈，焦点小组和城镇会议将被用来收集和综合信息，我们的社区是什么“说，做和思考”关于升高的前列腺特异性抗原（PSA），检查和治疗前列腺癌。该试点项目的具体目标是：1-确定患者，社区和系统层面的变量，促进或阻碍非裔美国人前列腺癌的检查和治疗途径; 2-与社区合作伙伴合作，根据访谈，焦点小组和城镇会议制定前列腺癌治疗决策援助。该项目有可能促进社区对话，并为一种对非裔美国人具有巨大医疗、社会和社会影响的疾病创造决策援助。患者更多地参与决策也被认为可以提高医疗保健质量。